Literature DB >> 11659340

Privacy and disclosure in medical genetics examined in an ethics of care.

Dorothy C Wertz, John C Fletcher.   

Abstract

The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of false paternity to an unsuspecting husband; 2) disclosure of a patient's genetic make-up to his or her unknowing spouse; 3) disclosure of information, against a patient's wishes, to relatives at genetic risk; 4) disclosure of ambiguous test results; 5) disclosure of adventitious nonmedical information, e.g., fetal sex; and 6) disclosure to institutional third parties, such as employers and insurers....

Entities:  

Keywords:  Analytical Approach; Empirical Approach; Genetics and Reproduction; Professional Patient Relationship

Mesh:

Year:  1991        PMID: 11659340     DOI: 10.1111/j.1467-8519.1991.tb00161.x

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  12 in total

1.  Provider gender and moral reasoning: the politics of an "ethics of care.

Authors:  Dorothy C Wertz
Journal:  J Genet Couns       Date:  1994-06       Impact factor: 2.537

2.  When Should Genome Researchers Disclose Misattributed Parentage?

Authors:  Amulya Mandava; Joseph Millum; Benjamin E Berkman
Journal:  Hastings Cent Rep       Date:  2015-02-11       Impact factor: 2.683

3.  "If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.

Authors:  Deborah R Gordon; Barbara A Koenig
Journal:  New Genet Soc       Date:  2021-12-13

4.  The right not to know: an autonomy based approach.

Authors:  R Andorno
Journal:  J Med Ethics       Date:  2004-10       Impact factor: 2.903

Review 5.  Guidelines for disclosing genetic information to family members: from development to use.

Authors:  Béatrice Godard; Thierry Hurlimann; Martin Letendre; Nathalie Egalité
Journal:  Fam Cancer       Date:  2006       Impact factor: 2.375

6.  Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results.

Authors:  Marisa Greenberg; Rachel A Smith
Journal:  Health Commun       Date:  2015-10-27

7.  Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.

Authors:  Deborah R Gordon; Carmen Radecki Breitkopf; Marguerite Robinson; Wesley O Petersen; Jason S Egginton; Kari G Chaffee; Gloria M Petersen; Susan M Wolf; Barbara A Koenig
Journal:  AJOB Empir Bioeth       Date:  2018-12-31

8.  Gender and the human genome.

Authors:  Ruth Chadwick
Journal:  Mens Sana Monogr       Date:  2009-01

9.  An old problem in a new age: Revisiting the clinical dilemma of misattributed paternity.

Authors:  Laura Hercher; Leila Jamal
Journal:  Appl Transl Genom       Date:  2016-02-01

10.  How should we deal with misattributed paternity? A survey of lay public attitudes.

Authors:  Georgia Lowe; Jonathan Pugh; Guy Kahane; Louise Corben; Sharon Lewis; Martin Delatycki; Julian Savulescu
Journal:  AJOB Empir Bioeth       Date:  2017-09-29
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