Literature DB >> 25145576

An emerging field of research: challenges in pediatric decision making.

Ellen A Lipstein1,2,3, William B Brinkman2,3,4, Alexander G Fiks5,6, Kristin S Hendrix7, Jennifer Kryworuchko8, Victoria A Miller6,9, Lisa A Prosser10,11, Wendy J Ungar12,13, David Fox14,15.   

Abstract

There is growing interest in pediatric decision science, spurred by policies advocating for children's involvement in medical decision making. Challenges specific to pediatric decision research include the dynamic nature of child participation in decisions due to the growth and development of children, the family context of all pediatric decisions, and the measurement of preferences and outcomes that may inform decision making in the pediatric setting. The objectives of this article are to describe each of these challenges, to provide decision researchers with insight into pediatric decision making, and to establish a blueprint for future research that will contribute to high-quality pediatric medical decision making. Much work has been done to address gaps in pediatric decision science, but substantial work remains. Understanding and addressing the challenges that exist in pediatric decision making may foster medical decision-making science across the age spectrum.
© The Author(s) 2014.

Entities:  

Keywords:  decision psychology; family-centered care; patient decision making; pediatrics

Mesh:

Year:  2014        PMID: 25145576      PMCID: PMC4336633          DOI: 10.1177/0272989X14546901

Source DB:  PubMed          Journal:  Med Decis Making        ISSN: 0272-989X            Impact factor:   2.583


  52 in total

1.  Too important to ignore: informal caregivers and other significant others.

Authors:  Werner B F Brouwer
Journal:  Pharmacoeconomics       Date:  2006       Impact factor: 4.981

Review 2.  Facing persistent challenges in pediatric decision-making: new Hastings Center guidelines.

Authors:  Nancy Berlinger; Raymond Barfield; Alan R Fleischman
Journal:  Pediatrics       Date:  2013-10-07       Impact factor: 7.124

3.  Adolescents' and parents' conceptions of parental authority and personal autonomy.

Authors:  J G Smetana; P Asquith
Journal:  Child Dev       Date:  1994-08

4.  Health-related quality of life (HRQL) scores reported from parents and their children with chronic illness differed depending on utility elicitation method.

Authors:  L Sung; N L Young; M L Greenberg; M McLimont; T Samanta; J Wong; J Rubenstein; S Ingber; J J Doyle; B M Feldman
Journal:  J Clin Epidemiol       Date:  2004-11       Impact factor: 6.437

5.  Family patterns of decision-making in pediatric clinical trials.

Authors:  Julia A Snethen; Marion E Broome; Kathleen Knafl; Janet A Deatrick; Denise B Angst
Journal:  Res Nurs Health       Date:  2006-06       Impact factor: 2.228

6.  Parental angst making and revisiting decisions about treatment of attention-deficit/hyperactivity disorder.

Authors:  William B Brinkman; Susan N Sherman; April R Zmitrovich; Marty O Visscher; Lori E Crosby; Kieran J Phelan; Edward F Donovan
Journal:  Pediatrics       Date:  2009-07-27       Impact factor: 7.124

7.  Informed consent, parental permission, and assent in pediatric practice. Committee on Bioethics, American Academy of Pediatrics.

Authors: 
Journal:  Pediatrics       Date:  1995-02       Impact factor: 7.124

8.  "Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children.

Authors:  Pamela S Hinds; Linda L Oakes; Judy Hicks; Brent Powell; Deo Kumar Srivastava; Sheri L Spunt; Joann Harper; Justin N Baker; Nancy K West; Wayne L Furman
Journal:  J Clin Oncol       Date:  2009-10-05       Impact factor: 44.544

9.  Learning to participate: effect of child age and parental education on participation in pediatric visits.

Authors:  Elizabeth D Cox; Maureen A Smith; Roger L Brown; Mary A Fitzpatrick
Journal:  Health Commun       Date:  2009-04

10.  Evaluating deliberation in pediatric primary care.

Authors:  Elizabeth D Cox; Maureen A Smith; Roger L Brown
Journal:  Pediatrics       Date:  2007-07       Impact factor: 7.124

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  25 in total

1.  Impact of shared decision making on asthma quality of life and asthma control among children.

Authors:  Yhenneko J Taylor; Hazel Tapp; Lindsay E Shade; Tsai-Ling Liu; Jessica Lauren Mowrer; Michael F Dulin
Journal:  J Asthma       Date:  2017-10-11       Impact factor: 2.515

2.  Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials.

Authors:  Sara E Landers; Jenny K R Francis; Marilyn C Morris; Christine Mauro; Susan L Rosenthal
Journal:  Ethics Hum Res       Date:  2020-05

3.  Management of Adolescent-Parent Dyads' Discordance for Willingness to Participate in a Reproductive Health Clinical Trial.

Authors:  Jenny K R Francis; Lauren Dapena Fraiz; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Susan L Rosenthal
Journal:  J Empir Res Hum Res Ethics       Date:  2017-12-10       Impact factor: 1.742

4.  Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences.

Authors:  Michelle L McGowan; Cynthia A Prows; Melissa DeJonckheere; William B Brinkman; Lisa Vaughn; Melanie F Myers
Journal:  J Empir Res Hum Res Ethics       Date:  2018-05-28       Impact factor: 1.742

5.  Shared decision-making aid for juvenile idiopathic arthritis: moving from informative patient education to interactive critical thinking.

Authors:  Yasser El Miedany; M El Gaafary; H Lotfy; N El Aroussy; D Mekkawy; S I Nasef; Y Farag; S Almedany; Ghada Wassif
Journal:  Clin Rheumatol       Date:  2019-07-20       Impact factor: 2.980

6.  Parent Preferences for Pediatric Clinician Messaging to Promote Smoking Cessation Treatment.

Authors:  Brian P Jenssen; Mary Kate Kelly; Jennifer Faerber; Chloe Hannan; David A Asch; Justine Shults; Robert A Schnoll; Alexander G Fiks
Journal:  Pediatrics       Date:  2020-06-22       Impact factor: 7.124

7.  Adolescents' and Parents' Genomic Testing Decisions: Associations With Age, Race, and Sex.

Authors:  Melanie F Myers; Lisa J Martin; Cynthia A Prows
Journal:  J Adolesc Health       Date:  2019-11-01       Impact factor: 5.012

8.  A Learning Loop Model of Collaborative Decision-Making in Chronic Illness.

Authors:  Sarah D Ronis; Lawrence C Kleinman; Kurt C Stange
Journal:  Acad Pediatr       Date:  2019-04-19       Impact factor: 3.107

9.  Adolescents and Their Parents Differ on Descriptions of a Reproductive Health Study.

Authors:  Jenny K R Francis; Lily F Hoffman; Mei-Chen Hu; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Susan L Rosenthal
Journal:  J Pediatr Adolesc Gynecol       Date:  2015-09-25       Impact factor: 1.814

Review 10.  Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?

Authors:  Donna Rowen; Oliver Rivero-Arias; Nancy Devlin; Julie Ratcliffe
Journal:  Pharmacoeconomics       Date:  2020-04       Impact factor: 4.981

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