Literature DB >> 29226745

Management of Adolescent-Parent Dyads' Discordance for Willingness to Participate in a Reproductive Health Clinical Trial.

Jenny K R Francis1, Lauren Dapena Fraiz2, Ariel M de Roche2, Marina Catallozzi2,3, Carmen Radecki Breitkopf4, Susan L Rosenthal2,3.   

Abstract

The objective of this study is to understand the resolution of discordance between adolescent-parent dyads about participation in research. Adolescent (14-17 years) and parent dyads were recruited from NYC pediatric clinics to assess attitudes toward research participation. A subset of dyads participated in videotaped discussions about participation in a hypothetical study. Videos from dyads that held strongly discordant opinions about participation ( n = 30) were content-coded and analyzed using a thematic framework approach. Strategies used to resolve discordance included asserting authority, granting autonomy, or recognizing inaccurate assumptions using a variety of communication behaviors. Missed opportunities to enroll initially discordant dyads may be avoided by allowing time for adolescents and parents to elicit information, clarify a situation, or convince the other.

Entities:  

Keywords:  adolescent; consent; decision making; discordance; dyads; parent; qualitative; reproductive health

Mesh:

Year:  2017        PMID: 29226745      PMCID: PMC5768459          DOI: 10.1177/1556264617745409

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  36 in total

1.  Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocols.

Authors:  Janet L Brody; Robert D Annett; David G Scherer; Mandy L Perryman; Keely M W Cofrin
Journal:  J Adolesc Health       Date:  2005-09       Impact factor: 5.012

2.  Qualitative data analysis for health services research: developing taxonomy, themes, and theory.

Authors:  Elizabeth H Bradley; Leslie A Curry; Kelly J Devers
Journal:  Health Serv Res       Date:  2007-08       Impact factor: 3.402

3.  Risk and Rationality in Adolescent Decision Making: Implications for Theory, Practice, and Public Policy.

Authors:  Valerie F Reyna; Frank Farley
Journal:  Psychol Sci Public Interest       Date:  2006-09-01

4.  The effects of affective and cognitive empathy on adolescents' behavior and outcomes in conflicts with mothers.

Authors:  Caspar J Van Lissa; Skyler T Hawk; Wim H J Meeus
Journal:  J Exp Child Psychol       Date:  2017-02-10

5.  Perceptions of the parent-adolescent relationship: a longitudinal investigation.

Authors:  Matt McGue; Irene Elkins; Brent Walden; William G Iacono
Journal:  Dev Psychol       Date:  2005-11

6.  Disclosing Study Information to Children and Adolescents: Is What They Want, What Their Parents Think They Want?

Authors:  Alan R Tait; Michael E Geisser; Lamira Ray; Raymond J Hutchinson; Terri Voepel-Lewis
Journal:  Acad Pediatr       Date:  2017-06-10       Impact factor: 3.107

7.  Empirically-derived Knowledge on Adolescent Assent to Pediatric Biomedical Research.

Authors:  David G Scherer; Janet L Brody; Robert D Annett; Charles Turner; Jeanne Dalen; Yesel Yoon
Journal:  AJOB Prim Res       Date:  2013

8.  Participation in cancer clinical trials: race-, sex-, and age-based disparities.

Authors:  Vivek H Murthy; Harlan M Krumholz; Cary P Gross
Journal:  JAMA       Date:  2004-06-09       Impact factor: 56.272

9.  Parents' and Adolescents' Attitudes about Parental Involvement in Clinical Research.

Authors:  Susan L Rosenthal; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Lisa S Ipp; Jane Chang; Jenny K R Francis; Mei-Chen Hu
Journal:  J Pediatr Adolesc Gynecol       Date:  2016-01-25       Impact factor: 1.814

10.  The Effects of Requiring Parental Consent for Research on Adolescents' Risk Behaviors: A Meta-analysis.

Authors:  Chao Liu; Ronald B Cox; Isaac J Washburn; Julie M Croff; Hugh C Crethar
Journal:  J Adolesc Health       Date:  2017-03-28       Impact factor: 5.012

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  6 in total

1.  Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials.

Authors:  Sara E Landers; Jenny K R Francis; Marilyn C Morris; Christine Mauro; Susan L Rosenthal
Journal:  Ethics Hum Res       Date:  2020-05

2.  A Research Agenda for Emergency Medicine-based Adolescent Sexual and Reproductive Health.

Authors:  Melissa K Miller; Lauren S Chernick; Monika K Goyal; Jennifer L Reed; Fahd A Ahmad; Erin F Hoehn; Michelle S Pickett; Kristin Stukus; Cynthia J Mollen
Journal:  Acad Emerg Med       Date:  2019-07-26       Impact factor: 3.451

3.  Adolescent-Parent Dyadic Retention in an Interview Study and Changes in Willingness to Participate in a Hypothetical Microbicide Safety Study.

Authors:  Jenny K R Francis; Ariel M de Roche; Christine Mauro; Sara E Landers; Jane Chang; Marina Catallozzi; Carmen Radecki Breitkopf; Susan L Rosenthal
Journal:  J Pediatr Adolesc Gynecol       Date:  2018-06-12       Impact factor: 1.814

4.  Adolescents' and Parents' Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year.

Authors:  Rebecca K Tsevat; Carmen Radecki Breitkopf; Sara E Landers; Ariel M de Roche; Christine Mauro; Lisa S Ipp; Marina Catallozzi; Susan L Rosenthal
Journal:  J Empir Res Hum Res Ethics       Date:  2018-08-13       Impact factor: 1.742

5.  A reflection on ethical and methodological challenges of using separate interviews with adolescent-older carer dyads in rural South Africa.

Authors:  Dumile Gumede; Nothando B Ngwenya; Stella Namukwaya; Sarah Bernays; Janet Seeley
Journal:  BMC Med Ethics       Date:  2019-07-08       Impact factor: 2.652

6.  Innovative Approaches to Obtain Minors' Consent for Biomedical HIV Prevention Trials: Multi-Site Quasi-Experimental Study of Adolescent and Parent Perspectives.

Authors:  Amelia Knopf; Claire Burke Draucker; J Dennis Fortenberry; Daniel H Reirden; Renata Arrington-Sanders; John Schneider; Diane Straub; Rebecca Baker; Giorgos Bakoyannis; Gregory D Zimet; Mary A Ott
Journal:  JMIR Res Protoc       Date:  2020-03-30
  6 in total

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