OBJECTIVE: To describe the relationship between health-related quality of life (HRQL) as measured by utility when elicited from parents and their children with chronic illness. STUDY DESIGN AND SETTING: We enrolled families of children admitted for cancer chemotherapy and those attending outpatient rheumatology, hemophilia and bone marrow transplantation clinics. Children in grade 6 or higher were included. The child's HRQL was rated by parent and child using the Standard Gamble (SG), Visual Analogue Scale (VAS), Time Trade-Off (TTO), and Health Utilities Index Mark 2/3 (HUI2 and HUI3). RESULTS: 22 families were included. The mean parent SG was 0.92 +/- 0.09, which was similar to the mean SG elicited from their children of 0.92 +/- 0.10. The parent and child SG were moderately concordant (ICC=0.64, 95% CI=0.30, 0.83; P=.0005). In contrast, TTO scores were not concordant (ICC=0.14, 95% CI=-0.29, 0.53; P=.3), with parents (mean TTO=0.77 +/- 0.31) rating HRQL worse than children (mean TTO=0.92 +/- 0.11; P=.04). Similarly, the mean parent HUI2 of 0.82 +/- 0.22 was lower than the child HUI2 of 0.95 +/- 0.07; P=.02 and HUI2 were not concordant (ICC=0.11, 95% CI=-0.35, 0.53; P=.3) between parents and children. CONCLUSION: Parents and children rate HRQL similarly according to SG, but parents rate HRQL significantly worse using TTO and HUI2.
OBJECTIVE: To describe the relationship between health-related quality of life (HRQL) as measured by utility when elicited from parents and their children with chronic illness. STUDY DESIGN AND SETTING: We enrolled families of children admitted for cancer chemotherapy and those attending outpatient rheumatology, hemophilia and bone marrow transplantation clinics. Children in grade 6 or higher were included. The child's HRQL was rated by parent and child using the Standard Gamble (SG), Visual Analogue Scale (VAS), Time Trade-Off (TTO), and Health Utilities Index Mark 2/3 (HUI2 and HUI3). RESULTS: 22 families were included. The mean parent SG was 0.92 +/- 0.09, which was similar to the mean SG elicited from their children of 0.92 +/- 0.10. The parent and child SG were moderately concordant (ICC=0.64, 95% CI=0.30, 0.83; P=.0005). In contrast, TTO scores were not concordant (ICC=0.14, 95% CI=-0.29, 0.53; P=.3), with parents (mean TTO=0.77 +/- 0.31) rating HRQL worse than children (mean TTO=0.92 +/- 0.11; P=.04). Similarly, the mean parent HUI2 of 0.82 +/- 0.22 was lower than the child HUI2 of 0.95 +/- 0.07; P=.02 and HUI2 were not concordant (ICC=0.11, 95% CI=-0.35, 0.53; P=.3) between parents and children. CONCLUSION: Parents and children rate HRQL similarly according to SG, but parents rate HRQL significantly worse using TTO and HUI2.
Authors: L Nandini Moorthy; Margaret Peterson; Karen B Onel; Melanie J Harrison; Thomas J A Lehman Journal: Curr Rheumatol Rep Date: 2005-12 Impact factor: 4.592
Authors: Ellen A Lipstein; William B Brinkman; Alexander G Fiks; Kristin S Hendrix; Jennifer Kryworuchko; Victoria A Miller; Lisa A Prosser; Wendy J Ungar; David Fox Journal: Med Decis Making Date: 2014-08-21 Impact factor: 2.583
Authors: Erinn T Rhodes; Lisa A Prosser; Tracy A Lieu; Thomas J Songer; David S Ludwig; Lori M Laffel Journal: Pediatr Diabetes Date: 2011-04-13 Impact factor: 4.866
Authors: Charlotte Sun; Alaina J Brown; Anuja Jhingran; Michael Frumovitz; Lois Ramondetta; Diane C Bodurka Journal: Int J Gynecol Cancer Date: 2014-07 Impact factor: 3.437
Authors: Matthew T Wheeler; Paul A Heidenreich; Victor F Froelicher; Mark A Hlatky; Euan A Ashley Journal: Ann Intern Med Date: 2010-03-02 Impact factor: 25.391
Authors: Wendy J Ungar; Katherine Boydell; Sharon Dell; Brian M Feldman; Deborah Marshall; Andrew Willan; James G Wright Journal: Pharmacoeconomics Date: 2012-08-01 Impact factor: 4.981
Authors: Joyce M Lee; Kirsten Rhee; Michael J O'grady; Anirban Basu; Aaron Winn; Priya John; David O Meltzer; Craig Kollman; Lori M Laffel; Jean M Lawrence; William V Tamborlane; Tim Wysocki; Dongyuan Xing; Elbert S Huang Journal: Med Care Date: 2011-10 Impact factor: 2.983