Literature DB >> 31743427

Patient-reported outcomes in the Translational Breast Cancer Research Consortium.

Deborah J Bowen1, Eileen H Shinn2, Sophie Gregrowski3, Gretchen Kimmick4, Laura S Dominici5, Elizabeth S Frank6, Karen Lisa Smith7, Gabrielle Rocque8, Kathryn J Ruddy9, Teri Pollastro3, Michelle Melisko10, Tarah J Ballinger11, Oluwadamilola M Fayanju12, Antonio C Wolff7.   

Abstract

Members of the Translational Breast Cancer Research Consortium conducted an expert-driven literature review to identify a list of domains and to evaluate potential measures of these domains for inclusion in a list of preferred measures. Measures were included if they were easily available, free of charge, and had acceptable psychometrics based on published peer-reviewed analyses. A total of 22 domains and 52 measures were identified during the selection process. Taken together, these measures form a reliable and validated list of measurement tools that are easily available and used in multiple cancer trials to assess patient-reported outcomes in relevant patients.
© 2019 American Cancer Society.

Entities:  

Keywords:  breast cancer consortium; breast cancer treatment; clinical trials; patient-reported outcomes; translational clinical judgements

Mesh:

Year:  2019        PMID: 31743427      PMCID: PMC7063688          DOI: 10.1002/cncr.32615

Source DB:  PubMed          Journal:  Cancer        ISSN: 0008-543X            Impact factor:   6.860


  43 in total

1.  Evaluation of the psychometric properties of the EORTC chemotherapy-induced peripheral neuropathy questionnaire (QLQ-CIPN20).

Authors:  Jacobien M Kieffer; Tjeerd J Postma; Lonneke van de Poll-Franse; Floortje Mols; Jan J Heimans; Guido Cavaletti; Neil K Aaronson
Journal:  Qual Life Res       Date:  2017-06-20       Impact factor: 4.147

2.  The Structure of the FACT-Cog v3 in Cancer Patients, Students, and Older Adults.

Authors:  Daniel S J Costa; Vanessa Loh; Damian P Birney; Haryana M Dhillon; Joanna E Fardell; Danielle Gessler; Janette L Vardy
Journal:  J Pain Symptom Manage       Date:  2017-12-30       Impact factor: 3.612

3.  The BCPT symptom scales: a measure of physical symptoms for women diagnosed with or at risk for breast cancer.

Authors:  Annette L Stanton; Coen A Bernaards; Patricia A Ganz
Journal:  J Natl Cancer Inst       Date:  2005-03-16       Impact factor: 13.506

4.  Assessment of quality of life in women undergoing hormonal therapy for breast cancer: validation of an endocrine symptom subscale for the FACT-B.

Authors:  L J Fallowfield; S K Leaity; A Howell; S Benson; D Cella
Journal:  Breast Cancer Res Treat       Date:  1999-05       Impact factor: 4.872

5.  Validity, reliability, and responsiveness of the work productivity and activity impairment questionnaire in Crohn's disease.

Authors:  Margaret C Reilly; Laetitia Gerlier; Yves Brabant; Martin Brown
Journal:  Clin Ther       Date:  2008-02       Impact factor: 3.393

6.  Linking pain items from two studies onto a common scale using item response theory.

Authors:  Wen-Hung Chen; Dennis A Revicki; Jin-Shei Lai; Karon F Cook; Dagmar Amtmann
Journal:  J Pain Symptom Manage       Date:  2009-07-03       Impact factor: 3.612

7.  Hazards for pain severity and pain interference with daily living, with exploration of brief pain inventory cutpoints, among women with metastatic breast cancer.

Authors:  Liana D Castel; Amy P Abernethy; Yun Li; Venita Depuy; Benjamin R Saville; Katherine E Hartmann
Journal:  J Pain Symptom Manage       Date:  2007-06-21       Impact factor: 3.612

8.  The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.

Authors:  David Cella; Susan Yount; Nan Rothrock; Richard Gershon; Karon Cook; Bryce Reeve; Deborah Ader; James F Fries; Bonnie Bruce; Mattias Rose
Journal:  Med Care       Date:  2007-05       Impact factor: 2.983

9.  The Pittsburgh Sleep Quality Index: a new instrument for psychiatric practice and research.

Authors:  D J Buysse; C F Reynolds; T H Monk; S R Berman; D J Kupfer
Journal:  Psychiatry Res       Date:  1989-05       Impact factor: 3.222

10.  Measuring financial toxicity as a clinically relevant patient-reported outcome: The validation of the COmprehensive Score for financial Toxicity (COST).

Authors:  Jonas A de Souza; Bonnie J Yap; Kristen Wroblewski; Victoria Blinder; Fabiana S Araújo; Fay J Hlubocky; Lauren H Nicholas; Jeremy M O'Connor; Bruce Brockstein; Mark J Ratain; Christopher K Daugherty; David Cella
Journal:  Cancer       Date:  2016-10-07       Impact factor: 6.860

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  1 in total

1.  Relationship between genetic knowledge and familial communication of CRC risk and intent to communicate CRCP genetic information: insights from FamilyTalk eMERGE III.

Authors:  Sukh Makhnoon; Deborah J Bowen; Brian H Shirts; Stephanie M Fullerton; Hendrika W Meischke; Eric B Larson; James D Ralston; Kathleen Leppig; David R Crosslin; David Veenstra; Gail P Jarvik
Journal:  Transl Behav Med       Date:  2021-03-16       Impact factor: 3.046

  1 in total

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