Literature DB >> 24763288

Underutilization of specimens in biobanks: an ethical as well as a practical concern?

R Jean Cadigan1, Eric Juengst2, Arlene Davis2, Gail Henderson1.   

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Year:  2014        PMID: 24763288      PMCID: PMC4189984          DOI: 10.1038/gim.2014.38

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


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  8 in total

1.  What makes clinical research ethical?

Authors:  E J Emanuel; D Wendler; C Grady
Journal:  JAMA       Date:  2000 May 24-31       Impact factor: 56.272

2.  The essential nature of sharing in science.

Authors:  Beth A Fischer; Michael J Zigmond
Journal:  Sci Eng Ethics       Date:  2010-11-25       Impact factor: 3.525

3.  Biobanks in the United States: how to identify an undefined and rapidly evolving population.

Authors:  Gregory J Boyer; Warren Whipple; R Jean Cadigan; Gail E Henderson
Journal:  Biopreserv Biobank       Date:  2012-12       Impact factor: 2.300

4.  Stewardship practices of U.S. biobanks.

Authors:  Gail E Henderson; Teresa P Edwards; R Jean Cadigan; Arlene M Davis; Catherine Zimmer; Ian Conlon; Bryan J Weiner
Journal:  Sci Transl Med       Date:  2013-12-11       Impact factor: 17.956

Review 5.  Human biological materials in research: ethical issues and the role of stewardship in minimizing research risks.

Authors:  B R Jeffers
Journal:  ANS Adv Nurs Sci       Date:  2001-12       Impact factor: 1.824

6.  Respecting donors to biobank research.

Authors:  Tom Tomlinson
Journal:  Hastings Cent Rep       Date:  2012-12-18       Impact factor: 2.683

7.  Neglected ethical issues in biobank management: Results from a U.S. study.

Authors:  R Jean Cadigan; Dragana Lassiter; Kaaren Haldeman; Ian Conlon; Erik Reavely; Gail E Henderson
Journal:  Life Sci Soc Policy       Date:  2013-12-01

8.  Characterizing biobank organizations in the U.S.: results from a national survey.

Authors:  Gail E Henderson; R Jean Cadigan; Teresa P Edwards; Ian Conlon; Anders G Nelson; James P Evans; Arlene M Davis; Catherine Zimmer; Bryan J Weiner
Journal:  Genome Med       Date:  2013-01-25       Impact factor: 11.117

  8 in total
  14 in total

1.  Ensuring Effective Utilization of Biospecimens: Design, Marketing, and Other Important Approaches.

Authors:  Marianna J Bledsoe; Katherine C Sexton
Journal:  Biopreserv Biobank       Date:  2019-06       Impact factor: 2.300

2.  Self-reported race and ethnicity of US biobank participants compared to the US Census.

Authors:  Elizabeth Gross Cohn; Nalo Hamilton; Elaine L Larson; Janet K Williams
Journal:  J Community Genet       Date:  2017-06-16

3.  Achieving and Maintaining Sustainability in Biobanking Through Business Planning, Marketing, and Access.

Authors:  Marianne K Henderson; Kirstin Goldring; Daniel Simeon-Dubach
Journal:  Biopreserv Biobank       Date:  2016-11-18       Impact factor: 2.300

Review 4.  Opportunities and Risks for Research Biobanks in the COVID-19 Era and Beyond.

Authors:  Daniel Simeon-Dubach; Marianne K Henderson
Journal:  Biopreserv Biobank       Date:  2020-10-08       Impact factor: 2.300

5.  With great (participant) rights comes great (researcher) responsibility.

Authors:  Gail E Henderson
Journal:  Genet Med       Date:  2015-05-07       Impact factor: 8.822

6.  Challenges to biobanking in LMICs during COVID-19: time to reconceptualise research ethics guidance for pandemics and public health emergencies?

Authors:  Shenuka Singh; Rosemary Jean Cadigan; Keymanthri Moodley
Journal:  J Med Ethics       Date:  2021-05-12       Impact factor: 5.926

7.  Toward better governance of human genomic data.

Authors:  Kieran C O'Doherty; Mahsa Shabani; Edward S Dove; Heidi Beate Bentzen; Pascal Borry; Michael M Burgess; Don Chalmers; Jantina De Vries; Lisa Eckstein; Stephanie M Fullerton; Eric Juengst; Kazuto Kato; Jane Kaye; Bartha Maria Knoppers; Barbara A Koenig; Spero M Manson; Kimberlyn M McGrail; Amy L McGuire; Eric M Meslin; Dianne Nicol; Barbara Prainsack; Sharon F Terry; Adrian Thorogood; Wylie Burke
Journal:  Nat Genet       Date:  2021-01       Impact factor: 41.307

8.  Samples and data accessibility in research biobanks: an explorative survey.

Authors:  Marco Capocasa; Paolo Anagnostou; Flavio D'Abramo; Giulia Matteucci; Valentina Dominici; Giovanni Destro Bisol; Fabrizio Rufo
Journal:  PeerJ       Date:  2016-02-25       Impact factor: 2.984

9.  Building Research Support Capacity across Human Health Biobanks during the COVID-19 Pandemic.

Authors:  Jennifer A Byrne; Jane E Carpenter; Candace Carter; Kathleen Phillips; Stephen Braye; Peter H Watson; Amanda Rush
Journal:  Biomark Insights       Date:  2021-06-14

10.  Closure of a human tissue biobank: individual, institutional, and field expectations during cycles of promise and disappointment.

Authors:  Neil Stephens; Rebecca Dimond
Journal:  New Genet Soc       Date:  2015-11-26
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