Literature DB >> 11763368

Human biological materials in research: ethical issues and the role of stewardship in minimizing research risks.

B R Jeffers1.   

Abstract

Recent scientific and technologic advances generated from the human genome project have increased the ability of researchers to study human biological materials. This has enhanced the ease with which highly personal information such as genetic makeup can be revealed about individuals, families, and communities. In addition, a change in the societal value of human biological tissue from waste to commercial resource has occurred. A new model of stewardship is developed that can be used as a guide for protecting human research participants who are involved in studies that include collecting and handling human biological samples. Nursing implications to ensure protection of human research participants are discussed.

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction

Mesh：

Substances：

Year:  2001        PMID： 11763368     DOI： 10.1097/00012272-200112000-00005

Source DB:  PubMed          Journal:  ANS Adv Nurs Sci        ISSN： 0161-9268            Impact factor:   1.824


  7 in total

1.  Meeting the governance challenges of next-generation biorepository research.

Authors:  Stephanie M Fullerton; Nicholas R Anderson; Greg Guzauskas; Dena Freeman; Kelly Fryer-Edwards
Journal:  Sci Transl Med       Date:  2010-01-20       Impact factor: 17.956

2.  New phosphate langbeinites, K2MTi(PO4)3 (M = Er, Yb or Y), and an alternative description of the langbeinite framework.

Authors:  Stefan T Norberg
Journal:  Acta Crystallogr B       Date:  2002-09-24

3.  Differences in preferences for models of consent for biobanks between Black and White women.

Authors:  Katherine M Brown; Bettina F Drake; Sarah Gehlert; Leslie E Wolf; James DuBois; Joann Seo; Krista Woodward; Hannah Perkins; Melody S Goodman; Kimberly A Kaphingst
Journal:  J Community Genet       Date:  2015-08-25

4.  Thematic analysis of cardiac care patients' explanations for declining contribution to a genomic research-based biobank.

Authors:  Pamela Holtzclaw Williams; Lynne S Nemeth; Jennifer E Sanner; Lorraine Q Frazier
Journal:  Am J Crit Care       Date:  2013-07       Impact factor: 2.228

5.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Authors:  Susan M Wolf; Brittney N Crock; Brian Van Ness; Frances Lawrenz; Jeffrey P Kahn; Laura M Beskow; Mildred K Cho; Michael F Christman; Robert C Green; Ralph Hall; Judy Illes; Moira Keane; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Bonnie Leroy; Karen J Maschke; William McGeveran; Pilar Ossorio; Lisa S Parker; Gloria M Petersen; Henry S Richardson; Joan A Scott; Sharon F Terry; Benjamin S Wilfond; Wendy A Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822

6.  Underutilization of specimens in biobanks: an ethical as well as a practical concern?

Authors:  R Jean Cadigan; Eric Juengst; Arlene Davis; Gail Henderson
Journal:  Genet Med       Date:  2014-04-24       Impact factor: 8.822

Review 7.  Big data, open science and the brain: lessons learned from genomics.

Authors:  Suparna Choudhury; Jennifer R Fishman; Michelle L McGowan; Eric T Juengst
Journal:  Front Hum Neurosci       Date:  2014-05-16       Impact factor: 3.169
  7 in total

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