Literature DB >> 23254911

Respecting donors to biobank research.

Tom Tomlinson.   

Abstract

The most common way for people to consent to research with their banked biological material is through signing a blanket consent, which allows any future use, giving the donor no information or control. This does not respect the donor or the philosophy if donation.
© 2012 by The Hastings Center.

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Year:  2012        PMID： 23254911     DOI： 10.1002/hast.115

Source DB:  PubMed          Journal:  Hastings Cent Rep        ISSN： 0093-0334            Impact factor:   2.683


  13 in total

1.  Proposed regulations for research with biospecimens: responses from stakeholders at CTSA consortium institutions.

Authors:  Jeffrey R Botkin; Rebecca Anderson; Tom Murray; Laura M Beskow; Karen Maschke; Leona Cuttler
Journal:  Am J Med Genet A       Date:  2014-01-23       Impact factor: 2.802

2.  Impact of non-welfare interests on willingness to donate to biobanks: an experimental survey.

Authors:  Michele C Gornick; Kerry A Ryan; Scott Y H Kim
Journal:  J Empir Res Hum Res Ethics       Date:  2014-08-11       Impact factor: 1.742

3.  Ethics and practice of Trials within Cohorts: An emerging pragmatic trial design.

Authors:  Scott Yh Kim; James Flory; Clare Relton
Journal:  Clin Trials       Date:  2017-12-11       Impact factor: 2.486

4.  Health Research with Big Data: Time for Systemic Oversight.

Authors:  Effy Vayena; Alessandro Blasimme
Journal:  J Law Med Ethics       Date:  2018-03-27       Impact factor: 1.718

5.  Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.

Authors:  Teddy D Warner; Carol J Weil; Christopher Andry; Howard B Degenholtz; Lisa Parker; Latarsha J Carithers; Michelle Feige; David Wendler; Rebecca D Pentz
Journal:  J Empir Res Hum Res Ethics       Date:  2018-02-01       Impact factor: 1.742

6.  Broad Consent for Research With Biological Samples: Workshop Conclusions.

Authors:  Christine Grady; Lisa Eckstein; Ben Berkman; Dan Brock; Robert Cook-Deegan; Stephanie M Fullerton; Hank Greely; Mats G Hansson; Sara Hull; Scott Kim; Bernie Lo; Rebecca Pentz; Laura Rodriguez; Carol Weil; Benjamin S Wilfond; David Wendler
Journal:  Am J Bioeth       Date:  2015       Impact factor: 11.229

7.  Underutilization of specimens in biobanks: an ethical as well as a practical concern?

Authors:  R Jean Cadigan; Eric Juengst; Arlene Davis; Gail Henderson
Journal:  Genet Med       Date:  2014-04-24       Impact factor: 8.822

8.  Current Status and Future Challenges of Biobank Research in Malaysia.

Authors:  Latifah Amin; Angelina Olesen; Zurina Mahadi; Maznah Ibrahim
Journal:  Asian Bioeth Rev       Date:  2021-03-31

9.  The moral concerns of biobank donors: the effect of non-welfare interests on willingness to donate.

Authors:  Raymond G De Vries; Tom Tomlinson; H Myra Kim; Chris D Krenz; Kerry A Ryan; Nicole Lehpamer; Scott Y H Kim
Journal:  Life Sci Soc Policy       Date:  2016-03-11

10.  Understanding the Public's Reservations about Broad Consent and Study-By-Study Consent for Donations to a Biobank: Results of a National Survey.

Authors:  Raymond Gene De Vries; Tom Tomlinson; Hyungjin Myra Kim; Chris Krenz; Diana Haggerty; Kerry A Ryan; Scott Y H Kim
Journal:  PLoS One       Date:  2016-07-14       Impact factor: 3.240
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