Literature DB >> 25950735

With great (participant) rights comes great (researcher) responsibility.

Gail E Henderson1.   

Abstract

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Year:  2015        PMID： 25950735     DOI： 10.1038/gim.2015.67

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  8 in total

1.  Health-information altruists--a potentially critical resource.

Authors:  Isaac S Kohane; Russ B Altman
Journal:  N Engl J Med       Date:  2005-11-10       Impact factor: 91.245

2.  Stewardship practices of U.S. biobanks.

Authors:  Gail E Henderson; Teresa P Edwards; R Jean Cadigan; Arlene M Davis; Catherine Zimmer; Ian Conlon; Bryan J Weiner
Journal:  Sci Transl Med       Date:  2013-12-11       Impact factor: 17.956

3.  Glad you asked: participants' opinions of re-consent for dbGap data submission.

Authors:  Evette J Ludman; Stephanie M Fullerton; Leslie Spangler; Susan Brown Trinidad; Monica M Fujii; Gail P Jarvik; Eric B Larson; Wylie Burke
Journal:  J Empir Res Hum Res Ethics       Date:  2010-09       Impact factor: 1.742

4.  Flexible positions, managed hopes: the promissory bioeconomy of a whole genome sequencing cancer study.

Authors:  Rachel Haase; Marsha Michie; Debra Skinner
Journal:  Soc Sci Med       Date:  2015-02-13       Impact factor: 4.634

5.  Community engagement in US biobanking: multiplicity of meaning and method.

Authors:  K M Haldeman; R J Cadigan; A Davis; A Goldenberg; G E Henderson; D Lassiter; E Reavely
Journal:  Public Health Genomics       Date:  2014-02-19       Impact factor: 2.000

6.  Public Comments on Proposed Regulatory Reforms That Would Impact Biospecimen Research: The Good, the Bad, and the Puzzling.

Authors:  R Jean Cadigan; Daniel K Nelson; Gail E Henderson; Anders G Nelson; Arlene M Davis
Journal:  IRB       Date:  2015 Sep-Oct

7.  Underutilization of specimens in biobanks: an ethical as well as a practical concern?

Authors:  R Jean Cadigan; Eric Juengst; Arlene Davis; Gail Henderson
Journal:  Genet Med       Date:  2014-04-24       Impact factor: 8.822

8.  Framework for responsible sharing of genomic and health-related data.

Authors:  Bartha Maria Knoppers
Journal:  Hugo J       Date:  2014-10-17
  8 in total

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