Literature DB >> 24379751

The Role of Law in the Debate over Return of Research Results and Incidental Findings: The Challenge of Developing Law for Translational Science.

Susan M Wolf1.   

Abstract

Entities:  

Year:  2012        PMID： 24379751      PMCID： PMC3874275          DOI： 10.2139/ssrn.2117289

Source DB:  PubMed          Journal:  Minn J Law Sci Technol        ISSN： 1552-9533


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  27 in total

1.  Law & bioethics: from values to violence.

Authors:  Susan M Wolf
Journal:  J Law Med Ethics       Date:  2004       Impact factor: 1.718

2.  The legal consensus about foregoing life-sustaining treatment: its status and its prospects.

Authors:  A Meisel
Journal:  Kennedy Inst Ethics J       Date:  1992-12

3.  Physicians' fears of malpractice lawsuits are not assuaged by tort reforms.

Authors:  Emily R Carrier; James D Reschovsky; Michelle M Mello; Ralph C Mayrell; David Katz
Journal:  Health Aff (Millwood)       Date:  2010-09       Impact factor: 6.301

4.  Translational and clinical science--time for a new vision.

Authors:  Elias A Zerhouni
Journal:  N Engl J Med       Date:  2005-10-12       Impact factor: 91.245

5.  Informed consent for population-based research involving genetics.

Authors:  L M Beskow; W Burke; J F Merz; P A Barr; S Terry; V B Penchaszadeh; L O Gostin; M Gwinn; M J Khoury
Journal:  JAMA       Date:  2001-11-14       Impact factor: 56.272

6.  Ethics committees in the courts.

Authors:  S M Wolf
Journal:  Hastings Cent Rep       Date:  1986-06       Impact factor: 2.683

7.  Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

Authors:  Ebony B Bookman; Aleisha A Langehorne; John H Eckfeldt; Kathleen C Glass; Gail P Jarvik; Michael Klag; Greg Koski; Arno Motulsky; Benjamin Wilfond; Teri A Manolio; Richard R Fabsitz; Russell V Luepker
Journal:  Am J Med Genet A       Date:  2006-05-15       Impact factor: 2.802

8.  Seven legal barriers to end-of-life care: myths, realities, and grains of truth.

Authors:  A Meisel; L Snyder; T Quill
Journal:  JAMA       Date:  2000-11-15       Impact factor: 56.272

Review 9.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

10.  The past, present, and future of the debate over return of research results and incidental findings.

Authors:  Susan M Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822
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  10 in total

Review 1.  Return of individual research results and incidental findings: facing the challenges of translational science.

Authors:  Susan M Wolf
Journal:  Annu Rev Genomics Hum Genet       Date:  2013-07-15       Impact factor: 8.929

2.  Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.

Authors:  Susan M Wolf; Wylie Burke; Barbara A Koenig
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

3.  Finding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.

Authors:  Elizabeth R Pike; Karen H Rothenberg; Benjamin E Berkman
Journal:  Georgetown Law J       Date:  2014

4.  Key Expert Stakeholder Perceptions of the Law of Genomics: Identified Problems and Potential Solutions.

Authors:  Fook Yee Cheung; Lauren Clatch; Susan M Wolf; Ellen Wright Clayton; Frances Lawrenz
Journal:  J Law Med Ethics       Date:  2020-03       Impact factor: 1.718

5.  The First Amendment Right to Speak About the Human Genome.

Authors:  Barbara J Evans
Journal:  Univ Pa J Const Law       Date:  2014-02-01

6.  Incidental computer tomography radiologic findings through research participation in the North Texas Healthy Heart Study.

Authors:  Anna Espinoza; Kendra Malone; Elizabeth Balyakina; Kimberly G Fulda; Roberto Cardarelli
Journal:  J Am Board Fam Med       Date:  2014 May-Jun       Impact factor: 2.657

Review 7.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

8.  THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.

Authors:  Barbara J Evans
Journal:  William Mary Law Rev       Date:  2019

9.  Minimizing liability risks under the ACMG recommendations for reporting incidental findings in clinical exome and genome sequencing.

Authors:  Barbara J Evans
Journal:  Genet Med       Date:  2013-09-12       Impact factor: 8.822

10.  A FAUSTIAN BARGAIN THAT UNDERMINES RESEARCH PARTICIPANTS' PRIVACY RIGHTS AND RETURN OF RESULTS.

Authors:  Barbara J Evans; Susan M Wolf
Journal:  Fla Law Rev       Date:  2019-09
  10 in total

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