Literature DB >> 22481182

The past, present, and future of the debate over return of research results and incidental findings.

Susan M Wolf1.   

Abstract

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Year:  2012        PMID： 22481182      PMCID： PMC4469992          DOI： 10.1038/gim.2012.26

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  4 in total

1.  When should an investigator share raw data with the subjects?

Authors:  Philip Reilly
Journal:  IRB       Date:  1980-11

2.  Human genome 10th anniversary. What would you do?

Authors:  Jennifer Couzin-Frankel
Journal:  Science       Date:  2011-02-11       Impact factor: 47.728

Review 3.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

4.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Authors:  Susan M Wolf; Brittney N Crock; Brian Van Ness; Frances Lawrenz; Jeffrey P Kahn; Laura M Beskow; Mildred K Cho; Michael F Christman; Robert C Green; Ralph Hall; Judy Illes; Moira Keane; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Bonnie Leroy; Karen J Maschke; William McGeveran; Pilar Ossorio; Lisa S Parker; Gloria M Petersen; Henry S Richardson; Joan A Scott; Sharon F Terry; Benjamin S Wilfond; Wendy A Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822
  4 in total
  34 in total

1.  Automatic Placement of Genomic Research Results in Medical Records: Do Researchers Have a Duty? Should Participants Have a Choice?

Authors:  Anya E R Prince; John M Conley; Arlene M Davis; Gabriel Lázaro-Muñoz; R Jean Cadigan
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Discussing molecular testing in oncology care: Comparing patient and physician information preferences.

Authors:  Ana P M Pinheiro; Rachel H Pocock; Jeffrey M Switchenko; Margie D Dixon; Walid L Shaib; Suresh S Ramalingam; Rebecca D Pentz
Journal:  Cancer       Date:  2017-01-31       Impact factor: 6.860

3.  Secondary variants--in defense of a more fitting term in the incidental findings debate.

Authors:  Gabrielle M Christenhusz; Koenraad Devriendt; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2013-05-22       Impact factor: 4.246

4.  Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.

Authors:  Ingrid A Holm
Journal:  Genet Test Mol Biomarkers       Date:  2017-01-31

5.  A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs.

Authors:  Debra S Brandt; Laura Shinkunas; Stephen L Hillis; Sandra E Daack-Hirsch; Martha Driessnack; Nancy R Downing; Megan F Liu; Lisa L Shah; Janet K Williams; Christian M Simon
Journal:  J Genet Couns       Date:  2013-04-02       Impact factor: 2.537

6.  Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.

Authors:  Ingrid A Holm; Brittany R Iles; Sonja I Ziniel; Phoebe L Bacon; Sarah K Savage; Kurt D Christensen; Elissa R Weitzman; Robert C Green; Noelle L Huntington
Journal:  J Empir Res Hum Res Ethics       Date:  2015-10       Impact factor: 1.742

7.  Flexible positions, managed hopes: the promissory bioeconomy of a whole genome sequencing cancer study.

Authors:  Rachel Haase; Marsha Michie; Debra Skinner
Journal:  Soc Sci Med       Date:  2015-02-13       Impact factor: 4.634

8.  Disclosure of genetic research results to members of a founder population.

Authors:  Rebecca L Anderson; Kathleen Murray; Jessica X Chong; Rebecca Ouwenga; Marina Antillon; Peixian Chen; Lorena Diaz de Leon; Kathryn J Swoboda; Lucille A Lester; Soma Das; Carole Ober; Darrel J Waggoner
Journal:  J Genet Couns       Date:  2014-04-29       Impact factor: 2.537

9.  Biobanks containing clinical specimens: defining characteristics, policies, and practices.

Authors:  Teresa Edwards; R Jean Cadigan; James P Evans; Gail E Henderson
Journal:  Clin Biochem       Date:  2013-12-15       Impact factor: 3.281

10.  Incidental variants are critical for genomics.

Authors:  Leslie G Biesecker
Journal:  Am J Hum Genet       Date:  2013-05-02       Impact factor: 11.025
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