Literature DB >> 14718935

Data storage and DNA banking for biomedical research: technical, social and ethical issues.

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Abstract

Keywords:  Genetics and Reproduction

Mesh:

Year:  2003        PMID: 14718935     DOI: 10.1038/sj.ejhg.5201115

Source DB:  PubMed          Journal:  Eur J Hum Genet        ISSN: 1018-4813            Impact factor:   4.246


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  14 in total

1.  Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.

Authors:  Bernice S Elger; Arthur L Caplan
Journal:  EMBO Rep       Date:  2006-07       Impact factor: 8.807

2.  Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers.

Authors:  Kristien Hens; Herman Nys; Jean-Jacques Cassiman; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2009-08       Impact factor: 4.246

3.  International guidelines on biobank research leave researchers in ambiguity: why is this so?

Authors:  Joanna Stjernschantz Forsberg; Mats G Hansson; Kathinka Evers
Journal:  Eur J Epidemiol       Date:  2013-06-06       Impact factor: 8.082

4.  The policies of ethics committees in the management of biobanks used for research: an Italian survey.

Authors:  Corinna Porteri; Elena Togni; Patrizio Pasqualetti
Journal:  Eur J Hum Genet       Date:  2013-05-22       Impact factor: 4.246

Review 5.  Closure of population biobanks and direct-to-consumer genetic testing companies.

Authors:  Ma'n H Zawati; Pascal Borry; Heidi Carmen Howard
Journal:  Hum Genet       Date:  2011-06-26       Impact factor: 4.132

6.  Stem cell policy exceptionalism: proceed with caution.

Authors:  Geoffrey P Lomax; Steven R Peckman
Journal:  Stem Cell Rev Rep       Date:  2012-06       Impact factor: 5.739

7.  Biobanking, consent, and commercialization in international genetics research: the Type 1 Diabetes Genetics Consortium.

Authors:  Mark A Hall; Nancy M P King; Letitia H Perdue; Joan E Hilner; Beena Akolkar; Carla J Greenbaum; Catherine McKeon
Journal:  Clin Trials       Date:  2010       Impact factor: 2.486

8.  The use of human tissue in epidemiological research; ethical and legal considerations in two biobanks in Belgium.

Authors:  Carla Truyers; Eliane Kellen; Marc Arbyn; Leen Trommelmans; Herman Nys; Karen Hensen; Bert Aertgeerts; Stefaan Bartholomeeusen; Mats Hansson; Frank Buntinx
Journal:  Med Health Care Philos       Date:  2010-05

9.  Towards a data sharing Code of Conduct for international genomic research.

Authors:  Bartha Maria Knoppers; Jennifer R Harris; Anne Marie Tassé; Isabelle Budin-Ljøsne; Jane Kaye; Mylène Deschênes; Ma'n H Zawati
Journal:  Genome Med       Date:  2011-07-14       Impact factor: 11.117

10.  Biobank research and ethics: the problem of informed consent in Polish biobanks.

Authors:  Jakub Pawlikowski; Jarosław Sak; Krzysztof Marczewski
Journal:  Arch Med Sci       Date:  2011-11-08       Impact factor: 3.318

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