Literature DB >> 23204904

From powerlessness to empowerment: Mothers expect more than information from the prenatal consultation for preterm labour.

Nathalie Gaucher1, Antoine Payot.   

Abstract

BACKGROUND: Guidelines recommend supportive care for all newborns >26 weeks' gestational age and recognize the importance of prenatal consultation by a neonatalogist for mothers at risk of premature delivery. These recommendations are drawn from medical expert opinions and emphasize informing parents about prematurity. The literature regarding parents' perspectives of prenatal consultation is lacking.
OBJECTIVE: To explore mothers' concerns about preterm labour and their expectations from the prenatal consultation with a neonatologist.
METHODS: Interviews of women hospitalized for preterm labour (26 to 32 weeks' gestation) were conducted before they met with the neonatologist. The analysis was informed by grounded theory.
RESULTS: The women's stressful experience was their main focus; they expressed a strong sense of loss of control and powerlessness. The consultation was perceived as an added source of stress, but they all hoped that it would reassure them. They wanted information about prematurity and the roles they would play for their baby. They expected the neonatologist to be supportive, open and trustworthy.
CONCLUSION: Prenatal consultation is perceived as a source of both stress and reassurance. Women believe the latter can be achieved through a supportive consultation with the neonatologist, during which tools providing them with a sense of empowerment are presented.

Entities:  

Keywords:  Autonomy; Bioethics; Informed consent; Neonatology; Prenatal consultation

Year:  2011        PMID: 23204904      PMCID: PMC3225474          DOI: 10.1093/pch/16.10.638

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


  13 in total

1.  Prenatal consultation with a neonatologist prior to preterm delivery.

Authors:  D A Paul; S Epps; K H Leef; J L Stefano
Journal:  J Perinatol       Date:  2001 Oct-Nov       Impact factor: 2.521

2.  Parents' experiences of sharing neonatal information and decisions: consent, cost and risk.

Authors:  Priscilla Alderson; Joanna Hawthorne; Margaret Killen
Journal:  Soc Sci Med       Date:  2005-10-05       Impact factor: 4.634

3.  The advantages of prenatal consultation by a neonatologist.

Authors:  L P Halamek
Journal:  J Perinatol       Date:  2001-03       Impact factor: 2.521

4.  Informational needs of parents of sick neonates.

Authors:  N B Perlman; J L Freedman; R Abramovitch; H Whyte; H Kirpalani; M Perlman
Journal:  Pediatrics       Date:  1991-09       Impact factor: 7.124

5.  Perinatal care at the threshold of viability.

Authors:  Hugh MacDonald
Journal:  Pediatrics       Date:  2002-11       Impact factor: 7.124

6.  Comparison of mothers' and counselors' perceptions of predelivery counseling for extremely premature infants.

Authors:  Heather T Keenan; Mia W Doron; Beth A Seyda
Journal:  Pediatrics       Date:  2005-07       Impact factor: 7.124

7.  Deciding to resuscitate extremely premature babies: how do parents and neonatologists engage in the decision?

Authors:  Antoine Payot; Sylvie Gendron; Francine Lefebvre; Hubert Doucet
Journal:  Soc Sci Med       Date:  2006-12-28       Impact factor: 4.634

8.  Prenatal consultation practices at the border of viability: a regional survey.

Authors:  Tara K Bastek; Douglas K Richardson; John A F Zupancic; Jeffrey P Burns
Journal:  Pediatrics       Date:  2005-08       Impact factor: 7.124

9.  Fathers' experiences in the neonatal intensive care unit: a search for control.

Authors:  Vincent Arockiasamy; Liisa Holsti; Susan Albersheim
Journal:  Pediatrics       Date:  2008-01-08       Impact factor: 7.124

10.  Characterising doctor-parent communication in counselling for impending preterm delivery.

Authors:  J A F Zupancic; H Kirpalani; J Barrett; S Stewart; A Gafni; D Streiner; M L Beecroft; P Smith
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2002-09       Impact factor: 5.747

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  12 in total

1.  CPS position statement for prenatal counselling before a premature birth: Simple rules for complicated decisions.

Authors:  Annie Janvier; Keith J Barrington; Khalid Aziz; Eduardo Bancalari; Daniel Batton; Carlo Bellieni; Brahim Bensouda; Carlos Blanco; Po-Yin Cheung; Felicia Cohn; Thierry Daboval; Peter Davis; Eugene Dempsey; Amélie Dupont-Thibodeau; Emanuela Ferretti; Barbara Farlow; Matteo Fontana; Etienne Fortin-Pellerin; Aviva Goldberg; Thor Willy Ruud Hansen; Marlyse Haward; Lajos Kovacs; Anie Lapointe; John Lantos; Colin Morley; Ahmed Moussa; Gabriel Musante; Sophie Nadeau; Colm Pf O'Donnell; Kristina Orfali; Antoine Payot; C Anthony Ryan; Guilherme Sant'anna; Ola D Saugstad; Sadath Sayeed; Theophil A Stokes; Eduard Verhagen
Journal:  Paediatr Child Health       Date:  2014-01       Impact factor: 2.253

2.  Mothers' strategies in handling the prematurely born infant: a qualitative study.

Authors:  Afsaneh Arzani; Leila Valizadeh; Vahid Zamanzadeh; Easa Mohammadi
Journal:  J Caring Sci       Date:  2015-03-01

3.  Counselling and management for anticipated extremely preterm birth.

Authors:  Brigitte Lemyre; Gregory Moore
Journal:  Paediatr Child Health       Date:  2017-08-11       Impact factor: 2.253

4.  Communication between neonatologists and parents when prognosis is uncertain.

Authors:  Laura L Drach; Debra A Hansen; Tracy M King; Erica M S Sibinga
Journal:  J Perinatol       Date:  2020-05-07       Impact factor: 2.521

5.  Development of a video decision aid to inform parents on potential outcomes of extreme prematurity.

Authors:  Ú Guillén; S Suh; E Wang; V Stickelman; H Kirpalani
Journal:  J Perinatol       Date:  2016-08-18       Impact factor: 2.521

6.  Shared Decision Making at the Limit of Viability: A Blueprint for Physician Action.

Authors:  Thierry Daboval; Sarah Shidler; Daniel Thomas
Journal:  PLoS One       Date:  2016-11-28       Impact factor: 3.240

7.  Antenatal Consultation and Postnatal Stress in Mothers of Preterm Neonates (A Two-Center Observational Case-Control Study).

Authors:  Elisabeth Pichler-Stachl; Nariae Baik-Schneditz; Bernhard Schwaberger; Berndt Urlesberger; Gerhard Pichler; Po-Yin Cheung; Georg M Schmölzer
Journal:  Front Pediatr       Date:  2017-12-20       Impact factor: 3.418

Review 8.  Conceptualizing pathways linking women's empowerment and prematurity in developing countries.

Authors:  Patience A Afulani; Molly Altman; Joseph Musana; May Sudhinaraset
Journal:  BMC Pregnancy Childbirth       Date:  2017-11-08       Impact factor: 3.105

9.  Prenatal parental involvement in decision for delivery room management at 22-26 weeks of gestation in France - The EPIPAGE-2 Cohort Study.

Authors:  Cerise Levaillant; Laurence Caeymaex; Hélène Béhal; Monique Kaminski; Caroline Diguisto; Barthélémy Tosello; Elie Azria; Olivier Claris; Pierre Bétrémieux; Laurence Foix L'Hélias; Patrick Truffert
Journal:  PLoS One       Date:  2019-08-29       Impact factor: 3.240

10.  Antenatal consultation for parents whose child may require admission to neonatal intensive care: a focus group study for media design.

Authors:  Patrick von Hauff; Karen Long; Barbara Taylor; Michael A van Manen
Journal:  BMC Pregnancy Childbirth       Date:  2016-05-14       Impact factor: 3.007

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