Literature DB >> 22081224

iDASH: integrating data for analysis, anonymization, and sharing.

Lucila Ohno-Machado1, Vineet Bafna, Aziz A Boxwala, Brian E Chapman, Wendy W Chapman, Kamalika Chaudhuri, Michele E Day, Claudiu Farcas, Nathaniel D Heintzman, Xiaoqian Jiang, Hyeoneui Kim, Jihoon Kim, Michael E Matheny, Frederic S Resnic, Staal A Vinterbo.   

Abstract

iDASH (integrating data for analysis, anonymization, and sharing) is the newest National Center for Biomedical Computing funded by the NIH. It focuses on algorithms and tools for sharing data in a privacy-preserving manner. Foundational privacy technology research performed within iDASH is coupled with innovative engineering for collaborative tool development and data-sharing capabilities in a private Health Insurance Portability and Accountability Act (HIPAA)-certified cloud. Driving Biological Projects, which span different biological levels (from molecules to individuals to populations) and focus on various health conditions, help guide research and development within this Center. Furthermore, training and dissemination efforts connect the Center with its stakeholders and educate data owners and data consumers on how to share and use clinical and biological data. Through these various mechanisms, iDASH implements its goal of providing biomedical and behavioral researchers with access to data, software, and a high-performance computing environment, thus enabling them to generate and test new hypotheses.

Mesh:

Year:  2011        PMID: 22081224      PMCID: PMC3277627          DOI: 10.1136/amiajnl-2011-000538

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  29 in total

Review 1.  Bioinformatics in the post-sequence era.

Authors:  Minoru Kanehisa; Peer Bork
Journal:  Nat Genet       Date:  2003-03       Impact factor: 38.330

2.  Never too old for anonymity: a statistical standard for demographic data sharing via the HIPAA Privacy Rule.

Authors:  Bradley Malin; Kathleen Benitez; Daniel Masys
Journal:  J Am Med Inform Assoc       Date:  2011 Jan-Feb       Impact factor: 4.497

3.  Overcoming barriers to NLP for clinical text: the role of shared tasks and the need for additional creative solutions.

Authors:  Wendy W Chapman; Prakash M Nadkarni; Lynette Hirschman; Leonard W D'Avolio; Guergana K Savova; Ozlem Uzuner
Journal:  J Am Med Inform Assoc       Date:  2011 Sep-Oct       Impact factor: 4.497

4.  The disclosure of diagnosis codes can breach research participants' privacy.

Authors:  Grigorios Loukides; Joshua C Denny; Bradley Malin
Journal:  J Am Med Inform Assoc       Date:  2010 May-Jun       Impact factor: 4.497

5.  Re-identification of DNA through an automated linkage process.

Authors:  B Malin; L Sweeney
Journal:  Proc AMIA Symp       Date:  2001

6.  Guaranteeing anonymity when sharing medical data, the Datafly System.

Authors:  L Sweeney
Journal:  Proc AMIA Annu Fall Symp       Date:  1997

7.  Automated surveillance to detect postprocedure safety signals of approved cardiovascular devices.

Authors:  Frederic S Resnic; Thomas P Gross; Danica Marinac-Dabic; Nilsa Loyo-Berrios; Sharon Donnelly; Sharon-Lise T Normand; Michael E Matheny
Journal:  JAMA       Date:  2010-11-10       Impact factor: 56.272

8.  Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research.

Authors:  Bradley Malin; David Karp; Richard H Scheuermann
Journal:  J Investig Med       Date:  2010-01       Impact factor: 2.895

9.  Protecting patient privacy by quantifiable control of disclosures in disseminated databases.

Authors:  Lucila Ohno-Machado; Paulo Sérgio Panse Silveira; Staal Vinterbo
Journal:  Int J Med Inform       Date:  2004-08       Impact factor: 4.046

10.  Ethical and practical issues associated with aggregating databases.

Authors:  David R Karp; Shelley Carlin; Robert Cook-Deegan; Daniel E Ford; Gail Geller; David N Glass; Hank Greely; Joel Guthridge; Jeffrey Kahn; Richard Kaslow; Cheryl Kraft; Kathleen Macqueen; Bradley Malin; Richard H Scheuerman; Jeremy Sugarman
Journal:  PLoS Med       Date:  2008-09-23       Impact factor: 11.069

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  69 in total

1.  National Centers for Biomedical Computing: from the BISTI report to the future.

Authors:  Jeremy M Berg
Journal:  J Am Med Inform Assoc       Date:  2012-01-18       Impact factor: 4.497

2.  Development of a HIPAA-compliant environment for translational research data and analytics.

Authors:  Wayne Bradford; John F Hurdle; Bernie LaSalle; Julio C Facelli
Journal:  J Am Med Inform Assoc       Date:  2013-08-02       Impact factor: 4.497

3.  Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders.

Authors:  Katherine K Kim; Dennis K Browe; Holly C Logan; Roberta Holm; Lori Hack; Lucila Ohno-Machado
Journal:  J Am Med Inform Assoc       Date:  2013-12-03       Impact factor: 4.497

4.  WebDISCO: a web service for distributed cox model learning without patient-level data sharing.

Authors:  Chia-Lun Lu; Shuang Wang; Zhanglong Ji; Yuan Wu; Li Xiong; Xiaoqian Jiang; Lucila Ohno-Machado
Journal:  J Am Med Inform Assoc       Date:  2015-07-09       Impact factor: 4.497

5.  Sharing my health data: a survey of data sharing preferences of healthy individuals.

Authors:  Elizabeth A Bell; Lucila Ohno-Machado; M Adela Grando
Journal:  AMIA Annu Symp Proc       Date:  2014-11-14

6.  An Evolving Ecosystem for Natural Language Processing in Department of Veterans Affairs.

Authors:  Jennifer H Garvin; Megha Kalsy; Cynthia Brandt; Stephen L Luther; Guy Divita; Gregory Coronado; Doug Redd; Carrie Christensen; Brent Hill; Natalie Kelly; Qing Zeng Treitler
Journal:  J Med Syst       Date:  2017-01-03       Impact factor: 4.460

7.  A Scalable Privacy-preserving Data Generation Methodology for Exploratory Analysis.

Authors:  Jaideep Vaidya; Basit Shafiq; Muazzam Asani; Nabil Adam; Xiaoqian Jiang; Lucila Ohno-Machado
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

8.  Developing a framework for digital objects in the Big Data to Knowledge (BD2K) commons: Report from the Commons Framework Pilots workshop.

Authors:  Kathleen M Jagodnik; Simon Koplev; Sherry L Jenkins; Lucila Ohno-Machado; Benedict Paten; Stephan C Schurer; Michel Dumontier; Ruben Verborgh; Alex Bui; Peipei Ping; Neil J McKenna; Ravi Madduri; Ajay Pillai; Avi Ma'ayan
Journal:  J Biomed Inform       Date:  2017-05-10       Impact factor: 6.317

9.  Questioning the limits of genomic privacy.

Authors:  Bartha M Knoppers; Edward S Dove; Jan-Eric Litton; J J Nietfeld
Journal:  Am J Hum Genet       Date:  2012-09-07       Impact factor: 11.025

10.  An electronic medical record system with treatment recommendations based on patient similarity.

Authors:  Yu Wang; Yu Tian; Li-Li Tian; Yang-Ming Qian; Jing-Song Li
Journal:  J Med Syst       Date:  2015-03-12       Impact factor: 4.460

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