Literature DB >> 22935716

Return of research results from genomic biobanks: cost matters.

Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps.   

Abstract

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Year:  2012        PMID： 22935716      PMCID： PMC3635086          DOI： 10.1038/gim.2012.105

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  5 in total

1.  Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.

Authors:  Christopher A Cassa; Sarah K Savage; Patrick L Taylor; Robert C Green; Amy L McGuire; Kenneth D Mandl
Journal:  Genome Res       Date:  2012-01-06       Impact factor: 9.043

2.  DNA donor rights affirmed.

Authors:  Erika Check Hayden
Journal:  Nature       Date:  2012-03-21       Impact factor: 49.962

3.  Taking aims seriously: repository research and limits on the duty to return individual research findings.

Authors:  Pilar Ossorio
Journal:  Genet Med       Date:  2012-03-08       Impact factor: 8.822

4.  Practical implementation issues and challenges for biobanks in the return of individual research results.

Authors:  Marianna J Bledsoe; William E Grizzle; Brian J Clark; Nikolajs Zeps
Journal:  Genet Med       Date:  2012-02-09       Impact factor: 8.822

5.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Authors:  Susan M Wolf; Brittney N Crock; Brian Van Ness; Frances Lawrenz; Jeffrey P Kahn; Laura M Beskow; Mildred K Cho; Michael F Christman; Robert C Green; Ralph Hall; Judy Illes; Moira Keane; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Bonnie Leroy; Karen J Maschke; William McGeveran; Pilar Ossorio; Lisa S Parker; Gloria M Petersen; Henry S Richardson; Joan A Scott; Sharon F Terry; Benjamin S Wilfond; Wendy A Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822
  5 in total
  28 in total

1.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

Review 2.  Return of individual research results and incidental findings: facing the challenges of translational science.

Authors:  Susan M Wolf
Journal:  Annu Rev Genomics Hum Genet       Date:  2013-07-15       Impact factor: 8.929

3.  Returning Results: Let's Be Honest!

Authors:  Bernice S Elger; Eva De Clercq
Journal:  Genet Test Mol Biomarkers       Date:  2017-02-24

Review 4.  Returning Results in Biobank Research: Global Trends and Solutions.

Authors:  Eva De Clercq; Jane Kaye; Susan M Wolf; Barbara A Koenig; Bernice S Elger
Journal:  Genet Test Mol Biomarkers       Date:  2017-02-01

Review 5.  Disclosure of incidental findings from next-generation sequencing in pediatric genomic research.

Authors:  Ruqayyah Abdul-Karim; Benjamin E Berkman; David Wendler; Annette Rid; Javed Khan; Tom Badgett; Sara Chandros Hull
Journal:  Pediatrics       Date:  2013-02-11       Impact factor: 7.124

6.  Use of human specimens in research: the evolving United States regulatory, policy, and scientific landscape.

Authors:  Marianna J Bledsoe; William E Grizzle
Journal:  Diagn Histopathol (Oxf)       Date:  2013-09

7.  Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles.

Authors:  Laura M Beskow; P Pearl O'Rourke
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

8.  Managing the Ethical Issues of Genomic Research using Pathology Specimens.

Authors:  Nikolajs Zeps; Marianna J Bledsoe
Journal:  Clin Biochem Rev       Date:  2015-02

Review 9.  A critical analysis of cancer biobank practices in relation to biospecimen quality.

Authors:  Amanda Rush; Kevin Spring; Jennifer A Byrne
Journal:  Biophys Rev       Date:  2015-10-22

10.  Allocation of Resources to Communication of Research Result Summaries.

Authors:  Julie E Richards; Emmi Bane; Stephanie M Fullerton; Evette J Ludman; Gail Jarvik
Journal:  J Empir Res Hum Res Ethics       Date:  2016-09-19       Impact factor: 1.742
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