Literature DB >> 28146646

Returning Results in Biobank Research: Global Trends and Solutions.

Eva De Clercq1, Jane Kaye2, Susan M Wolf3, Barbara A Koenig4, Bernice S Elger1,5.   

Abstract

In many countries around the world, biobanks have become crucial resources for the conduct of biomedical research, facilitating many kinds of research, including international collaborations. The focus of this special issue is on a looming ethical issue that has become a focus of debate-the return of research results and incidental findings to biobank participants. Although the articles in this issue do not provide a final answer to the ethical, legal, and social dilemmas that arise in the context of the return of results, the intent of the collection is to approach this issue from multiple perspectives and within an international context spanning the United Kingdom, continental Europe including Eastern Europe, the United States, and the Middle East.

Entities:  

Keywords:  biobank; dilemma; ethics; guidelines; return of results

Mesh:

Year:  2017        PMID: 28146646      PMCID: PMC5367909          DOI: 10.1089/gtmb.2016.0394

Source DB:  PubMed          Journal:  Genet Test Mol Biomarkers        ISSN: 1945-0257


  9 in total

1.  EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Authors:  Sarah B Garrett; Barbara A Koenig; Arleen Brown; Jen R Hult; Elizabeth A Boyd; Sarah Dry; Daniel Dohan
Journal:  Clin Transl Sci       Date:  2015-01-10       Impact factor: 4.689

2.  Return of research results from genomic biobanks: cost matters.

Authors:  Marianna J Bledsoe; Ellen Wright Clayton; Amy L McGuire; William E Grizzle; P Pearl O'Rourke; Nikolajs Zeps
Journal:  Genet Med       Date:  2012-08-30       Impact factor: 8.822

3.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Authors:  Susan M Wolf; Brittney N Crock; Brian Van Ness; Frances Lawrenz; Jeffrey P Kahn; Laura M Beskow; Mildred K Cho; Michael F Christman; Robert C Green; Ralph Hall; Judy Illes; Moira Keane; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Bonnie Leroy; Karen J Maschke; William McGeveran; Pilar Ossorio; Lisa S Parker; Gloria M Petersen; Henry S Richardson; Joan A Scott; Sharon F Terry; Benjamin S Wilfond; Wendy A Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822

4.  Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.

Authors:  Sarah S Kalia; Kathy Adelman; Sherri J Bale; Wendy K Chung; Christine Eng; James P Evans; Gail E Herman; Sophia B Hufnagel; Teri E Klein; Bruce R Korf; Kent D McKelvey; Kelly E Ormond; C Sue Richards; Christopher N Vlangos; Michael Watson; Christa L Martin; David T Miller
Journal:  Genet Med       Date:  2016-11-17       Impact factor: 8.822

5.  ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.

Authors: 
Journal:  Genet Med       Date:  2014-11-13       Impact factor: 8.822

Review 6.  Biobanks in the era of personalized medicine: objectives, challenges, and innovation: Overview.

Authors:  Judita Kinkorová
Journal:  EPMA J       Date:  2016-02-22       Impact factor: 6.543

7.  Biosamples as gifts? How participants in biobanking projects talk about donation.

Authors:  Louise Locock; Anne-Marie R Boylan
Journal:  Health Expect       Date:  2015-06-12       Impact factor: 3.377

8.  Return of results in genomic biobank research: ethics matters.

Authors:  Susan M Wolf
Journal:  Genet Med       Date:  2013-02       Impact factor: 8.822

9.  ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.

Authors:  Robert C Green; Jonathan S Berg; Wayne W Grody; Sarah S Kalia; Bruce R Korf; Christa L Martin; Amy L McGuire; Robert L Nussbaum; Julianne M O'Daniel; Kelly E Ormond; Heidi L Rehm; Michael S Watson; Marc S Williams; Leslie G Biesecker
Journal:  Genet Med       Date:  2013-06-20       Impact factor: 8.822

  9 in total
  4 in total

1.  Current Status and Future Challenges of Biobank Research in Malaysia.

Authors:  Latifah Amin; Angelina Olesen; Zurina Mahadi; Maznah Ibrahim
Journal:  Asian Bioeth Rev       Date:  2021-03-31

2.  What Egyptians think. Knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.

Authors:  Ahmed S Abdelhafiz; Eman A Sultan; Hany H Ziady; Ebtesam Ahmed; Walaa A Khairy; Douaa M Sayed; Rana Zaki; Merhan A Fouda; Rania M Labib
Journal:  BMC Med Ethics       Date:  2019-08-09       Impact factor: 2.652

3.  Associations between the Willingness to Donate Samples to Biobanks and Selected Psychological Variables.

Authors:  Jakub Pawlikowski; Michał Wiechetek; Anita Majchrowska
Journal:  Int J Environ Res Public Health       Date:  2022-02-23       Impact factor: 3.390

4.  Comparison of factors influencing the willingness to donate biospecimens among guardians of children with cancer and adult cancer patients.

Authors:  Hongxiang Gao; Baige Cao; Nan Dang; Song Gu; Min Xu; Bin Ji; Yiqi Shi; Shijian Liu; Congrong Wang
Journal:  Cancer Med       Date:  2022-02-03       Impact factor: 4.452

  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.