Literature DB >> 27929677

Assessing Researcher Needs for a Virtual Biobank.

Jenna van Draanen1, Pamela Davidson2, Helene Bour-Jordan3, LeeAnna Bowman-Carpio2, David Boyle4, Steve Dubinett2, Brian Gardner5, Jachael Gardner2, Courtney McFall6, Dan Mercola7, Terry Nakazono2, Stephanie Soares8, Hubert Stoppler6, Margaret Tempero6, Scott Vandenberg6, Yu Jui Wan8, Sarah Dry5.   

Abstract

INTRODUCTION: Biosamples and associated clinical data accelerate translational and clinical research discoveries. A lack of high quality biosamples both stalls projects and limits research advances. In this study, we targeted a wide audience of University of California (UC) biobanking stakeholders who were either involved with the collection or the utilization of biosamples to assess the scope of their biobanking activities and their interest in virtual biobanking or cooperating in the formation of the UC-wide biorepository.
MATERIALS AND METHODS: Each institutional review board from the five UC medical campuses' provided a dataset of potential researchers involved with biobanking. Once identified, a brief six item web-based questionnaire was administered electronically to these researchers.
RESULTS: Most survey participants (80%) responded "yes" (n = 348) that they were actively collecting biosamples for research, and 68% of participants indicated they would either definitely (30%, n = 131) or maybe (38%, n = 166) request biosample materials now or within the next year. An equal proportion of participants responded yes (42% or n = 184) and maybe (42% or n = 182) when asked if they would voluntarily contribute specimens to a UC-wide virtual biobank. DISCUSSION: The results presented above show high levels of support among UC biobanking stakeholders for both requesting material from and contributing material to a UC-wide virtual biobank. In addition, a considerable number of individual researchers on our five UC medical campuses are conducting biospecimen research (i.e., well over n = 435 respondents).

Entities:  

Keywords:  biobank; biosamples; perceptions; stakeholder; virtual

Mesh:

Year:  2016        PMID: 27929677      PMCID: PMC5749588          DOI: 10.1089/bio.2016.0009

Source DB:  PubMed          Journal:  Biopreserv Biobank        ISSN: 1947-5543            Impact factor:   2.300


  18 in total

1.  National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue.

Authors:  Robert Mitchell
Journal:  Sci Technol Human Values       Date:  2010-05-01

2.  The Danubian Biobank project.

Authors:  Gerd Schmitz; Charalampos Aslanidis; Gerhard Liebisch; Evelyn Orsó
Journal:  Stud Health Technol Inform       Date:  2008

3.  Reforming the regulations governing research with human subjects.

Authors:  Ezekiel J Emanuel; Jerry Menikoff
Journal:  N Engl J Med       Date:  2011-07-25       Impact factor: 91.245

Review 4.  Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.

Authors:  Blanaid Mee; Eoin Gaffney; Sharon A Glynn; Simona Donatello; Paul Carroll; Elizabeth Connolly; Sarah Mc Garrigle; Terry Boyle; Delia Flannery; Francis J Sullivan; Paul McCormick; Mairead Griffin; Cian Muldoon; Joanna Fay; Tony O'Grady; Elaine Kay; Joe Eustace; Louise Burke; Asim A Sheikh; Stephen Finn; Richard Flavin; Francis J Giles
Journal:  Biopreserv Biobank       Date:  2013-02       Impact factor: 2.300

5.  A review of international biobanks and networks: success factors and key benchmarks.

Authors:  Jim Vaught; Andrea Kelly; Robert Hewitt
Journal:  Biopreserv Biobank       Date:  2010-03-17       Impact factor: 2.300

Review 6.  The Future of Biobanking: A Conceptual Look at How Biobanks Can Respond to the Growing Human Biospecimen Needs of Researchers.

Authors:  Stella B Somiari; Richard I Somiari
Journal:  Adv Exp Med Biol       Date:  2015       Impact factor: 2.622

Review 7.  Biobanking past, present and future: responsibilities and benefits.

Authors:  Yvonne G De Souza; John S Greenspan
Journal:  AIDS       Date:  2013-01-28       Impact factor: 4.177

Review 8.  Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.

Authors:  Don Chalmers; Dianne Nicol; Jane Kaye; Jessica Bell; Alastair V Campbell; Calvin W L Ho; Kazuto Kato; Jusaku Minari; Chih-Hsing Ho; Colin Mitchell; Fruzsina Molnár-Gábor; Margaret Otlowski; Daniel Thiel; Stephanie M Fullerton; Tess Whitton
Journal:  BMC Med Ethics       Date:  2016-07-12       Impact factor: 2.652

9.  Characterizing biobank organizations in the U.S.: results from a national survey.

Authors:  Gail E Henderson; R Jean Cadigan; Teresa P Edwards; Ian Conlon; Anders G Nelson; James P Evans; Arlene M Davis; Catherine Zimmer; Bryan J Weiner
Journal:  Genome Med       Date:  2013-01-25       Impact factor: 11.117

Review 10.  Current status, challenges, policies, and bioethics of biobanks.

Authors:  Byunghak Kang; Jaesun Park; Sangyun Cho; Meehee Lee; Namhee Kim; Haesook Min; Sooyoun Lee; Ok Park; Bokghee Han
Journal:  Genomics Inform       Date:  2013-12-31
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  4 in total

1.  Knowledge, perceptions and attitude of Egyptian physicians towards biobanking issues.

Authors:  Ahmed Samir Abdelhafiz; Eman A Sultan; Hany H Ziady; Douaa M Sayed; Walaa A Khairy
Journal:  PLoS One       Date:  2021-03-26       Impact factor: 3.240

Review 2.  The Significance of Biobanking in the Sustainability of Biomedical Research: A Review.

Authors:  Mahshid Zohouri; Abbas Ghaderi
Journal:  Iran Biomed J       Date:  2020-02-12

3.  Determinants of the willingness to participate in biobanking among Malaysian stakeholders in the Klang Valley.

Authors:  Latifah Amin; Hasrizul Hashim; Zurina Mahadi; Khaidzir Ismail
Journal:  BMC Med Res Methodol       Date:  2018-12-05       Impact factor: 4.615

Review 4.  Biobanking in health care: evolution and future directions.

Authors:  Luigi Coppola; Alessandra Cianflone; Anna Maria Grimaldi; Mariarosaria Incoronato; Paolo Bevilacqua; Francesco Messina; Simona Baselice; Andrea Soricelli; Peppino Mirabelli; Marco Salvatore
Journal:  J Transl Med       Date:  2019-05-22       Impact factor: 5.531

  4 in total

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