Literature DB >> 7479464

Telling parents their child has severe congenital anomalies.

S Ryan1.   

Abstract

A large number of potential malformations exist, but the key skills in communicating with the parents of a malformed baby are the same. Dissatisfaction is common in this situation and has prompted a national initiative in improving standards of disclosure of disability and malformation--the Right from the start strategy (see appendix). Key skills include keeping the family together, ie, not removing the baby unnecessarily, knowing how parents like to be informed, listening, checking that parents have understood, being nonderogatory and, most importantly, emphasizing the positive side of their newborn child.

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Year:  1995        PMID: 7479464      PMCID: PMC2398224          DOI: 10.1136/pgmj.71.839.529

Source DB:  PubMed          Journal:  Postgrad Med J        ISSN: 0032-5473            Impact factor:   2.401


  12 in total

Review 1.  Doctor-patient communication: the Toronto consensus statement.

Authors:  M Simpson; R Buckman; M Stewart; P Maguire; M Lipkin; D Novack; J Till
Journal:  BMJ       Date:  1991-11-30

2.  Determinants of parental satisfaction with disclosure of disability.

Authors:  P Sloper; S Turner
Journal:  Dev Med Child Neurol       Date:  1993-09       Impact factor: 5.449

3.  Talking to the parents of a baby who is likely to develop permanent neurological impairment following a brain insult in the perinatal period.

Authors:  S Ryan
Journal:  Postgrad Med J       Date:  1995-06       Impact factor: 2.401

4.  The feelings and behaviour of parents of handicapped children.

Authors:  R Mac Keith
Journal:  Dev Med Child Neurol       Date:  1973-08       Impact factor: 5.449

5.  An instrument for assessment of videotapes of general practitioners' performance.

Authors:  J Cox; H Mulholland
Journal:  BMJ       Date:  1993-04-17

6.  Teaching communication skills to clinical students.

Authors:  I C McManus; C A Vincent; S Thom; J Kidd
Journal:  BMJ       Date:  1993-05-15

7.  Down's syndrome: is dissatisfaction with disclosure of diagnosis inevitable?

Authors:  C C Cunningham; P A Morgan; R B McGucken
Journal:  Dev Med Child Neurol       Date:  1984-02       Impact factor: 5.449

8.  The informing interview. Enabling parents to 'hear' and cope with bad news.

Authors:  B A Myers
Journal:  Am J Dis Child       Date:  1983-06

9.  Reactions of mothers and medical professionals to a film about Down syndrome.

Authors:  W C Cooley; E S Graham; J B Moeschler; J M Graham
Journal:  Am J Dis Child       Date:  1990-10

10.  Are there good ways to give 'bad news'?

Authors:  G L Krahn; A Hallum; C Kime
Journal:  Pediatrics       Date:  1993-03       Impact factor: 7.124

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  1 in total

1.  Developing a multidisciplinary team for disorders of sex development: planning, implementation, and operation tools for care providers.

Authors:  Mary Elizabeth Moran; Katrina Karkazis
Journal:  Adv Urol       Date:  2012-06-25
  1 in total

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