Literature DB >> 12530454

Perception of genetic risk among genetic counselors.

J Roggenbuck1, J E Olson, T A Sellers, C Ludowese.   

Abstract

A mailed survey of female prenatal genetic counselors, obstetric nurses, and high school biology teachers was conducted to determine if these groups hold different attitudes toward genetic risk and to investigate the extent to which any differences result from the effect of different professional experiences. In this study, the participants were 166 genetic counselors, 116 obstetric nurses, and 78 biology teachers (n=360). Survey participants completed a written questionnaire designed to assess their numeric estimate of the empiric risk for birth defects/genetic problems, their subjective perception of this risk, and their personal use of prenatal diagnosis. Genetic counselors were found to be less likely than the other groups to consider the frequency of birth defects/genetic problems as rare and were 10 times more likely than nurses and 8 times more likely than teachers to have had prenatal diagnosis. Furthermore, more than half of the prenatal diagnosis procedures had by genetic counselors were not medically indicated. These results suggest that genetic counselors have an increased perception of genetic risks relative to nurses or teachers. Possible explanations for this funding are discussed, and the potential role of discordant risk perception in creating biases in genetic counseling process is explored.

Entities:  

Keywords:  Empirical Approach; Genetics and Reproduction

Mesh:

Year:  2000        PMID: 12530454     DOI: 10.1023/a:1009481123596

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  24 in total

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Authors:  B Sjögren; N Uddenberg
Journal:  Prenat Diagn       Date:  1990-02       Impact factor: 3.050

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Journal:  Am J Hum Genet       Date:  1992-05       Impact factor: 11.025

3.  Parental perceptions of genetic risk: correlation with choice of prenatal diagnostic procedures.

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Journal:  Int J Gynaecol Obstet       Date:  1990-01       Impact factor: 3.561

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Journal:  Am J Med Genet       Date:  1990-04

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Authors:  J H Pearn
Journal:  J Med Genet       Date:  1973-06       Impact factor: 6.318

6.  Reactions of mothers and medical professionals to a film about Down syndrome.

Authors:  W C Cooley; E S Graham; J B Moeschler; J M Graham
Journal:  Am J Dis Child       Date:  1990-10

7.  Characteristics of women who refuse an offer of prenatal diagnosis: data from the California maternal serum alpha fetoprotein blood test experience.

Authors:  N Press; C H Browner
Journal:  Am J Med Genet       Date:  1998-08-06

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Authors:  A Lippman-Hand; F C Fraser
Journal:  Am J Med Genet       Date:  1979

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Authors:  E E Ekwo; J O Kim; C A Gosselink
Journal:  Am J Med Genet       Date:  1987-12

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Authors:  S Kessler; E K Levine
Journal:  Am J Med Genet       Date:  1987-10
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  4 in total

1.  Does receiving genetic counseling impact genetic counselor practice?

Authors:  Elizabeth Peters; Patricia McCarthy Veach; Erin E Ward; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2004-10       Impact factor: 2.537

2.  Are Australasian Genetic Counselors Interested in Private Practice at the Primary Care Level of Health Service?

Authors:  Vrunda Sane; Linda Humphreys; Madelyn Peterson
Journal:  J Genet Couns       Date:  2015-01-21       Impact factor: 2.537

Review 3.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

4.  "It's challenging on a personal level"--exploring the 'lived experience' of Australian and Canadian prenatal genetic counselors.

Authors:  Melody A Menezes; Jan M Hodgson; Margaret A Sahhar; Maryanne Aitken; Sylvia A Metcalfe
Journal:  J Genet Couns       Date:  2010-07-24       Impact factor: 2.537

  4 in total

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