Literature DB >> 20625339

A framework for conducting follow-up meetings with parents after a child's death in the pediatric intensive care unit.

Susan Eggly1, Kathleen L Meert, John Berger, Jerry Zimmerman, Kanwaljeet J S Anand, Christopher J L Newth, Rick Harrison, Joseph Carcillo, J Michael Dean, Douglas F Willson, Carol Nicholson.   

Abstract

OBJECTIVE: To describe a framework to assist pediatric intensive care unit physicians in conducting follow-up meetings with parents after their child's death. Many childhood deaths occur in pediatric intensive care units. Parents of children who die in pediatric intensive care units often desire a follow-up meeting with the physician(s) who cared for their child. DATA SOURCES: Prior research conducted by the Collaborative Pediatric Critical Care Research Network on the experiences and perspectives of bereaved parents and pediatric intensive care unit physicians regarding the desirability, content, and conditions of follow-up meetings.
RESULTS: The framework includes suggestions for inviting families to follow-up meetings (i.e., developing an institutional system, invitation timing, and format); preparing for the meeting (i.e., assessing family preferences; determining location, attendees, and discussion topics; reviewing medical and psychosocial history); structure of the meeting (i.e., opening, closing, and developing a meeting agenda); communicating effectively during the meeting; and follow-up for both parents and physicians.
CONCLUSION: This framework is based on the experience and perspectives of bereaved parents and pediatric intensive care unit physicians. Future research should be conducted to determine the extent to which physician-parent follow-up meetings provide a benefit to parents, families, physicians, and other healthcare providers participating in these encounters.

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Mesh:

Year:  2011        PMID: 20625339      PMCID: PMC3285236          DOI: 10.1097/PCC.0b013e3181e8b40c

Source DB:  PubMed          Journal:  Pediatr Crit Care Med        ISSN: 1529-7535            Impact factor:   3.624


  49 in total

1.  Recommendations for end-of-life care in the intensive care unit: The Ethics Committee of the Society of Critical Care Medicine.

Authors:  R D Truog; A F Cist; S E Brackett; J P Burns; M A Curley; M Danis; M A DeVita; S H Rosenbaum; D M Rothenberg; C L Sprung; S A Webb; G S Wlody; W E Hurford
Journal:  Crit Care Med       Date:  2001-12       Impact factor: 7.598

2.  'Memorable patient deaths': reactions of hospital doctors and their need for support.

Authors:  Thomas S Moores; Keri L Castle; Karen L Shaw; Michael R Stockton; Michael I Bennett
Journal:  Med Educ       Date:  2007-10       Impact factor: 6.251

3.  A broken heart--the physician's role: bereaved parents' perceptions of interactions with physicians.

Authors:  Katherine L Bright; Marlene Belew Huff; Karen Hollon
Journal:  Clin Pediatr (Phila)       Date:  2008-11-20       Impact factor: 1.168

4.  Compassionate silence in the patient-clinician encounter: a contemplative approach.

Authors:  Anthony L Back; Susan M Bauer-Wu; Cynda H Rushton; Joan Halifax
Journal:  J Palliat Med       Date:  2009-12       Impact factor: 2.947

5.  Interdisciplinary interventions to improve pediatric palliative care and reduce health care professional suffering.

Authors:  Cynda Hylton Rushton; Elizabeth Reder; Barbara Hall; Katherine Comello; Deborah E Sellers; Nancy Hutton
Journal:  J Palliat Med       Date:  2006-08       Impact factor: 2.947

6.  "This is just too awful; I just can't believe I experienced that...": medical students' reactions to their "most memorable" patient death.

Authors:  Jennifer Rhodes-Kropf; Sharon S Carmody; Deborah Seltzer; Ellen Redinbaugh; Nina Gadmer; Susan D Block; Robert M Arnold
Journal:  Acad Med       Date:  2005-07       Impact factor: 6.893

7.  Staff experiences with end-of-life care in the pediatric intensive care unit.

Authors:  K Jane Lee; Claretta Y Dupree
Journal:  J Palliat Med       Date:  2008-09       Impact factor: 2.947

8.  Difficult conversations: improving communication skills and relational abilities in health care.

Authors:  Elaine C Meyer; Deborah E Sellers; David M Browning; Kimberly McGuffie; Mildred Z Solomon; Robert D Truog
Journal:  Pediatr Crit Care Med       Date:  2009-05       Impact factor: 3.624

9.  Complicated grief and associated risk factors among parents following a child's death in the pediatric intensive care unit.

Authors:  Kathleen L Meert; Amy E Donaldson; Christopher J L Newth; Rick Harrison; John Berger; Jerry Zimmerman; K J S Anand; Joseph Carcillo; J Michael Dean; Douglas F Willson; Carol Nicholson; Katherine Shear
Journal:  Arch Pediatr Adolesc Med       Date:  2010-11

10.  Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit.

Authors:  Kathleen L Meert; Susan Eggly; Murray Pollack; K J S Anand; Jerry Zimmerman; Joseph Carcillo; Christopher J L Newth; J Michael Dean; Douglas F Willson; Carol Nicholson
Journal:  Pediatr Crit Care Med       Date:  2008-01       Impact factor: 3.624

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  10 in total

1.  A Provider-Based Survey To Assess Bereavement Care Knowledge, Attitudes, and Practices in Pediatric Oncologists.

Authors:  Jasmin Jensen; Cindy Weng; Holly L Spraker-Perlman
Journal:  J Palliat Med       Date:  2017-01-10       Impact factor: 2.947

Review 2.  Caring for Parents After the Death of a Child.

Authors:  Tessie October; Karen Dryden-Palmer; Beverley Copnell; Kathleen L Meert
Journal:  Pediatr Crit Care Med       Date:  2018-08       Impact factor: 3.624

Review 3.  Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology.

Authors:  Wendy G Lichtenthal; Corinne R Sweeney; Kailey E Roberts; Geoffrey W Corner; Leigh A Donovan; Holly G Prigerson; Lori Wiener
Journal:  Pediatr Blood Cancer       Date:  2015-12       Impact factor: 3.167

Review 4.  Family-centered care in the pediatric intensive care unit.

Authors:  Kathleen L Meert; Jeff Clark; Susan Eggly
Journal:  Pediatr Clin North Am       Date:  2013-03-07       Impact factor: 3.278

5.  Language Analysis as a Window to Bereaved Parents' Emotions During a Parent-Physician Bereavement Meeting.

Authors:  Susan Eggly; Mark A Manning; Richard B Slatcher; Robert A Berg; David L Wessel; Christopher J L Newth; Thomas P Shanley; Rick Harrison; Heidi Dalton; J Michael Dean; Allan Doctor; Tammara Jenkins; Kathleen L Meert
Journal:  J Lang Soc Psychol       Date:  2014-10-30

6.  Meaning making during parent-physician bereavement meetings after a child's death.

Authors:  Kathleen L Meert; Susan Eggly; Karen Kavanaugh; Robert A Berg; David L Wessel; Christopher J L Newth; Thomas P Shanley; Rick Harrison; Heidi Dalton; J Michael Dean; Allan Doctor; Tammara Jenkins; Crystal L Park
Journal:  Health Psychol       Date:  2015-04       Impact factor: 4.267

7.  Bereaved Families: A Qualitative Study of Therapeutic Intervention.

Authors:  Valeria Moriconi; María Cantero-García
Journal:  Front Psychol       Date:  2022-02-28

Review 8.  Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review.

Authors:  Merel M van Kempen; Eline M Kochen; Marijke C Kars
Journal:  Acta Paediatr       Date:  2022-02-07       Impact factor: 4.056

9.  Feasibility and perceived benefits of a framework for physician-parent follow-up meetings after a child's death in the PICU.

Authors:  Kathleen L Meert; Susan Eggly; Robert A Berg; David L Wessel; Christopher J L Newth; Thomas P Shanley; Rick Harrison; Heidi Dalton; Amy E Clark; J Michael Dean; Allan Doctor; Carol E Nicholson
Journal:  Crit Care Med       Date:  2014-01       Impact factor: 7.598

10.  Physicians' conceptualization of "closure" as a benefit of physician-parent follow-up meetings after a child's death in the pediatric intensive care unit.

Authors:  Susan Eggly; Kathleen L Meert; John Berger; Jerry Zimmerman; K J S Anand; Christopher J L Newth; Rick Harrison; Joseph Carcillo; J Michael Dean; Douglas F Willson
Journal:  J Palliat Care       Date:  2013       Impact factor: 2.250

  10 in total

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