Literature DB >> 30080812

Caring for Parents After the Death of a Child.

Tessie October1, Karen Dryden-Palmer2, Beverley Copnell3, Kathleen L Meert4.   

Abstract

OBJECTIVES: To describe the health outcomes of bereaved parents and identify practical strategies for critical care providers as they support and provide anticipatory guidance to bereaved parents. DATA SOURCES: PubMed and PsycInfo databases with search terms of bereavement, grief, with parent and pediatric or child complimented by personal experience and knowledge. STUDY SELECTION: We sought studies describing parental health outcomes and needs of bereaved parents after the death of their child. DATA SYNTHESIS: A narrative literature review was performed and framed from the perspective of PICU providers who care for bereaved parents. We aimed to describe experiences of grief and short- and long-term consequences and approaches to the care of parents and families in the immediate period and in the months after the death of a child.
CONCLUSIONS: The death of a child is a traumatic experience that can put parents at risk for adverse mental and physical health during bereavement. Health professionals working in PICUs can benefit from knowing these risks to best support bereaved parents, both during their child's hospitalization and in the early postdeath period. The bereavement experience of parents is an adaptive process, and ongoing professional support may be required for vulnerable families. After the child's hospitalization and death, a bereavement follow-up meeting with PICU physician(s) and staff may allow parents to gain additional information, emotional support, and provide an opportunity for parents to give feedback on their experiences.

Entities:  

Mesh:

Year:  2018        PMID: 30080812      PMCID: PMC6082144          DOI: 10.1097/PCC.0000000000001466

Source DB:  PubMed          Journal:  Pediatr Crit Care Med        ISSN: 1529-7535            Impact factor:   3.624


  43 in total

1.  Cancer incidence and survival following bereavement.

Authors:  I Levav; R Kohn; J Iscovich; J H Abramson; W Y Tsai; D Vigdorovich
Journal:  Am J Public Health       Date:  2000-10       Impact factor: 9.308

2.  The impact of circumstances surrounding the death of a child on parents' grief.

Authors:  Leoniek Wijngaards-de Meij; Margaret Stroebe; Wolfgang Stroebe; Henk Schut; Jan Van den Bout; Peter G M Van Der Heijden; Iris Dijkstra
Journal:  Death Stud       Date:  2008

3.  Parental bereavement after the death of an offspring in a motor vehicle collision: a population-based study.

Authors:  James M Bolton; Wendy Au; Randy Walld; Dan Chateau; Patricia J Martens; William D Leslie; Murray W Enns; Jitender Sareen
Journal:  Am J Epidemiol       Date:  2013-10-31       Impact factor: 4.897

4.  Mortality in parents following the death of a child: a nationwide follow-up study from Sweden.

Authors:  Mikael Rostila; Jan Saarela; Ichiro Kawachi
Journal:  J Epidemiol Community Health       Date:  2011-11-01       Impact factor: 3.710

5.  Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death.

Authors:  Mary Ellen Macdonald; Stephen Liben; Franco A Carnevale; Janet E Rennick; Susan L Wolf; Donald Meloche; S Robin Cohen
Journal:  Pediatrics       Date:  2005-10       Impact factor: 7.124

6.  The impact of a child death on marital adjustment.

Authors:  J M Najman; J C Vance; F Boyle; G Embleton; B Foster; J Thearle
Journal:  Soc Sci Med       Date:  1993-10       Impact factor: 4.634

7.  Examining the needs of bereaved parents in the pediatric intensive care unit: a qualitative study.

Authors:  Kathleen L Meert; Sherylyn H Briller; Stephanie Myers Schim; Celia Thurston; Allison Kabel
Journal:  Death Stud       Date:  2009-09

8.  Follow-up study of complicated grief among parents eighteen months after a child's death in the pediatric intensive care unit.

Authors:  Kathleen L Meert; Katherine Shear; Christopher J L Newth; Rick Harrison; John Berger; Jerry Zimmerman; K J S Anand; Joseph Carcillo; Amy E Donaldson; J Michael Dean; Douglas F Willson; Carol Nicholson
Journal:  J Palliat Med       Date:  2011-01-31       Impact factor: 2.947

9.  Feasibility and perceived benefits of a framework for physician-parent follow-up meetings after a child's death in the PICU.

Authors:  Kathleen L Meert; Susan Eggly; Robert A Berg; David L Wessel; Christopher J L Newth; Thomas P Shanley; Rick Harrison; Heidi Dalton; Amy E Clark; J Michael Dean; Allan Doctor; Carol E Nicholson
Journal:  Crit Care Med       Date:  2014-01       Impact factor: 7.598

10.  Cancer survival in parents who lost a child: a nationwide study in Denmark.

Authors:  J Li; C Johansen; J Olsen
Journal:  Br J Cancer       Date:  2003-06-02       Impact factor: 7.640

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  13 in total

1.  Integration of Pediatric Palliative Care Into Cardiac Intensive Care: A Champion-Based Model.

Authors:  Katie M Moynihan; Jennifer M Snaman; Erica C Kaye; Wynne E Morrison; Aaron G DeWitt; Loren D Sacks; Jess L Thompson; Jennifer M Hwang; Valerie Bailey; Deborah A Lafond; Joanne Wolfe; Elizabeth D Blume
Journal:  Pediatrics       Date:  2019-08       Impact factor: 7.124

2.  Addressing Perinatal Mental Health Risk within a Fetal Care Center.

Authors:  Lacy Chavis; Tiffany Willis; Jeannie Zuk; Allison G Dempsey; Joanna C M Cole
Journal:  J Clin Psychol Med Settings       Date:  2021-03

3.  Characterizing the Language Used to Discuss Death in Family Meetings for Critically Ill Infants.

Authors:  Margaret H Barlet; Mary C Barks; Peter A Ubel; J Kelly Davis; Kathryn I Pollak; Erica C Kaye; Kevin P Weinfurt; Monica E Lemmon
Journal:  JAMA Netw Open       Date:  2022-10-03

4.  Association of Illness Severity With Family Outcomes Following Pediatric Septic Shock.

Authors:  Elizabeth Y Killien; Jerry J Zimmerman; Jane L Di Gennaro; R Scott Watson
Journal:  Crit Care Explor       Date:  2022-06-15

5.  My Grief App for Prolonged Grief in Bereaved Parents: A Pilot Study.

Authors:  Rakel Eklund; Maarten C Eisma; Paul A Boelen; Filip K Arnberg; Josefin Sveen
Journal:  Front Psychiatry       Date:  2022-04-25       Impact factor: 5.435

6.  "It Can Be Hard But It's Not Bad": Three Questions to Solicit Caregiver Perceptions of Benefits and Burdens to Participating in Pediatric Palliative Care Research.

Authors:  Cheryl Reggio; Catriona Mowbray; Mia K Waldron; Adelaide L Rood; Gabriella Sibilia; Kim Mooney-Doyle; Pamela S Hinds
Journal:  J Palliat Med       Date:  2021-04-23       Impact factor: 2.947

7.  Bereaved parents' experiences of research participation.

Authors:  Ashleigh E Butler; Helen Hall; Beverley Copnell
Journal:  BMC Palliat Care       Date:  2018-11-07       Impact factor: 3.234

8.  'Cold bedrooms' and other cooling facilities in UK children's hospices, how they are used and why they are offered: A mixed methods study.

Authors:  Julia Hackett; Bryony Beresford
Journal:  Palliat Med       Date:  2021-01-11       Impact factor: 4.762

9.  'It was like an airbag, it cushioned the blow': A multi-site qualitative study of bereaved parents' experiences of using cooling facilities.

Authors:  Julia Hackett; Emily Heavey; Bryony Beresford
Journal:  Palliat Med       Date:  2022-01-20       Impact factor: 4.762

10.  Paved With Good Intentions: Hospital Visitation Restrictions in the Age of Coronavirus Disease 2019.

Authors:  Erica Andrist; Rachel G Clarke; Meghan Harding
Journal:  Pediatr Crit Care Med       Date:  2020-10       Impact factor: 3.971

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