Literature DB >> 26700929

Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology.

Wendy G Lichtenthal1, Corinne R Sweeney1,2, Kailey E Roberts1, Geoffrey W Corner1,3, Leigh A Donovan4, Holly G Prigerson5, Lori Wiener6.   

Abstract

After a child's death to cancer, families commonly want continued connection with the healthcare team that cared for their child, yet bereavement follow-up is often sporadic. A comprehensive literature search found that many bereaved parents experience poor psychological outcomes during bereavement and that parents want follow-up and benefit from continued connection with their child's healthcare providers. Evidence suggests that the standard of care should consist of at least one meaningful contact between the healthcare team and bereaved parents to identify those at risk for negative psychosocial sequelae and to provide resources for bereavement support.
© 2015 Wiley Periodicals, Inc.

Entities:  

Keywords:  bereaved parents; bereavement; cancer; death of a child; palliative care; pediatric oncology

Mesh:

Year:  2015        PMID: 26700929      PMCID: PMC4692196          DOI: 10.1002/pbc.25700

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


  90 in total

1.  Bereaved parents' perspectives on their needs.

Authors:  Norma Mammone D'Agostino; Deborah Berlin-Romalis; Vesna Jovcevska; Maru Barrera
Journal:  Palliat Support Care       Date:  2008-03

2.  GRADE: an emerging consensus on rating quality of evidence and strength of recommendations.

Authors:  Gordon H Guyatt; Andrew D Oxman; Gunn E Vist; Regina Kunz; Yngve Falck-Ytter; Pablo Alonso-Coello; Holger J Schünemann
Journal:  BMJ       Date:  2008-04-26

3.  Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?

Authors:  Wendy G Lichtenthal; Geoffrey W Corner; Corinne R Sweeney; Lori Wiener; Kailey E Roberts; Raymond E Baser; Yuelin Li; William Breitbart; David W Kissane; Holly G Prigerson
Journal:  J Clin Oncol       Date:  2015-06-01       Impact factor: 44.544

4.  Parental grieving after a child dies from cancer: is stress from stem cell transplant a factor?

Authors:  Donna Drew; Belinda Goodenough; Lucy Maurice; Tali Foreman; Liane Willis
Journal:  Int J Palliat Nurs       Date:  2005-06

5.  A randomized controlled trial of an internet-based therapist-assisted indicated preventive intervention for prolonged grief disorder.

Authors:  Brett T Litz; Yonit Schorr; Eileen Delaney; Teresa Au; Anthony Papa; Annie B Fox; Sue Morris; Angela Nickerson; Susan Block; Holly G Prigerson
Journal:  Behav Res Ther       Date:  2014-07-24

6.  The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring.

Authors:  Barbara L Jones; Nancy Contro; Kendra D Koch
Journal:  Pediatrics       Date:  2014-02       Impact factor: 7.124

7.  A qualitative study of advice from bereaved parents and siblings.

Authors:  Amanda L Thompson; Kimberly S Miller; Maru Barrera; Betty Davies; Terrah L Foster; Mary Jo Gilmer; Nancy Hogan; Kathryn Vannatta; Cynthia A Gerhardt
Journal:  J Soc Work End Life Palliat Care       Date:  2011

8.  Terminal care of the dying child. Psychosocial implications of care.

Authors:  E H Whittam
Journal:  Cancer       Date:  1993-05-15       Impact factor: 6.860

9.  Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: loss of continuity and lack of closure.

Authors:  Anthony L Back; Jessica P Young; Ellen McCown; Ruth A Engelberg; Elizabeth K Vig; Lynn F Reinke; Marjorie D Wenrich; Barbara B McGrath; J Randall Curtis
Journal:  Arch Intern Med       Date:  2009-03-09

10.  Physicians' conceptualization of "closure" as a benefit of physician-parent follow-up meetings after a child's death in the pediatric intensive care unit.

Authors:  Susan Eggly; Kathleen L Meert; John Berger; Jerry Zimmerman; K J S Anand; Christopher J L Newth; Rick Harrison; Joseph Carcillo; J Michael Dean; Douglas F Willson
Journal:  J Palliat Care       Date:  2013       Impact factor: 2.250

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  17 in total

1.  Delivery of care consistent with the psychosocial standards in pediatric cancer: Current practices in the United States.

Authors:  Michele A Scialla; Kimberly S Canter; Fang Fang Chen; E Anders Kolb; Eric Sandler; Lori Wiener; Anne E Kazak
Journal:  Pediatr Blood Cancer       Date:  2017-10-28       Impact factor: 3.167

2.  A Provider-Based Survey To Assess Bereavement Care Knowledge, Attitudes, and Practices in Pediatric Oncologists.

Authors:  Jasmin Jensen; Cindy Weng; Holly L Spraker-Perlman
Journal:  J Palliat Med       Date:  2017-01-10       Impact factor: 2.947

3.  Regret and unfinished business in parents bereaved by cancer: A mixed methods study.

Authors:  Wendy G Lichtenthal; Kailey E Roberts; Corinne Catarozoli; Elizabeth Schofield; Jason M Holland; Justin J Fogarty; Taylor C Coats; Lamia P Barakat; Justin N Baker; Tara M Brinkman; Robert A Neimeyer; Holly G Prigerson; Talia Zaider; William Breitbart; Lori Wiener
Journal:  Palliat Med       Date:  2020-02-05       Impact factor: 4.762

4.  How I approach expressing condolences and longitudinal remembering to a family after the death of a child.

Authors:  Meaghann S Weaver; Wendy G Lichtenthal; Kara Larson; Lori Wiener
Journal:  Pediatr Blood Cancer       Date:  2018-10-14       Impact factor: 3.167

5.  Charting a path to high-quality end-of-life care for children with cancer.

Authors:  Prasanna Ananth; Joanne Wolfe; Emily E Johnston
Journal:  Cancer       Date:  2022-08-25       Impact factor: 6.921

6.  An open trial of meaning-centered grief therapy: Rationale and preliminary evaluation.

Authors:  Wendy G Lichtenthal; Corinne Catarozoli; Melissa Masterson; Elizabeth Slivjak; Elizabeth Schofield; Kailey E Roberts; Robert A Neimeyer; Lori Wiener; Holly G Prigerson; David W Kissane; Yuelin Li; William Breitbart
Journal:  Palliat Support Care       Date:  2019-01-26

7.  Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions.

Authors:  Abby R Rosenberg; Joanne Wolfe
Journal:  Lancet Child Adolesc Health       Date:  2017-07-24

8.  Audit of Psychosocial and Palliative Care Support for Children Having Allogeneic Stem Cell Transplants at the New Zealand National Allogeneic Transplant Centre.

Authors:  Amanda M Evans; Hiran Thabrew; Bruce Arroll; Nyree Cole; Ross Drake
Journal:  Children (Basel)       Date:  2021-04-29

Review 9.  Palliative Care in Pediatric Oncology and Hematopoietic Stem Cell Transplantation.

Authors:  Allison Uber; Jonathan S Ebelhar; Ashley Foster Lanzel; Anna Roche; Viviana Vidal-Anaya; Katharine E Brock
Journal:  Curr Oncol Rep       Date:  2022-01-21       Impact factor: 5.075

10.  Documentation of Caregivers as a Standard of Care.

Authors:  Allison J Applebaum; Erin E Kent; Wendy G Lichtenthal
Journal:  J Clin Oncol       Date:  2021-05-04       Impact factor: 50.717

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