Literature DB >> 19998102

Personal genome testing: do you know what you are buying?

Heidi C Howard1, Pascal Borry.   

Abstract

Mesh：

Year:  2009        PMID： 19998102     DOI： 10.1080/15265160902894005

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  11 in total

1.  Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories.

Authors:  Yeyang Su; Heidi C Howard; Pascal Borry
Journal:  J Community Genet       Date:  2011-05-28

2.  Is there a doctor in the house? : The presence of physicians in the direct-to-consumer genetic testing context.

Authors:  Heidi Carmen Howard; Pascal Borry
Journal:  J Community Genet       Date:  2011-09-06

3.  Legislation on direct-to-consumer genetic testing in seven European countries.

Authors:  Pascal Borry; Rachel E van Hellemondt; Dominique Sprumont; Camilla Fittipaldi Duarte Jales; Emmanuelle Rial-Sebbag; Tade Matthias Spranger; Liam Curren; Jane Kaye; Herman Nys; Heidi Howard
Journal:  Eur J Hum Genet       Date:  2012-01-25       Impact factor: 4.246

4.  Genetic counseling and the ethical issues around direct to consumer genetic testing.

Authors:  Alice K Hawkins; Anita Ho
Journal:  J Genet Couns       Date:  2012-06       Impact factor: 2.537

5.  Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

Authors:  Bartha Maria Knoppers
Journal:  EMBO Rep       Date:  2010-05-07       Impact factor: 8.807

6.  Perception of direct-to-consumer genetic testing and direct-to-consumer advertising of genetic tests among members of a large managed care organization.

Authors:  Alanna Kulchak Rahm; Heather Spencer Feigelson; Nicole Wagner; Anh Quynh Le; Eve Halterman; Nadine Cornish; James W Dearing
Journal:  J Genet Couns       Date:  2012-01-26       Impact factor: 2.537

Review 7.  Genetic testing and common disorders in a public health framework: how to assess relevance and possibilities. Background Document to the ESHG recommendations on genetic testing and common disorders.

Authors:  Frauke Becker; Carla G van El; Dolores Ibarreta; Eleni Zika; Stuart Hogarth; Pascal Borry; Anne Cambon-Thomsen; Jean Jacques Cassiman; Gerry Evers-Kiebooms; Shirley Hodgson; A Cécile J W Janssens; Helena Kaariainen; Michael Krawczak; Ulf Kristoffersson; Jan Lubinski; Christine Patch; Victor B Penchaszadeh; Andrew Read; Wolf Rogowski; Jorge Sequeiros; Lisbeth Tranebjaerg; Irene M van Langen; Helen Wallace; Ron Zimmern; Jörg Schmidtke; Martina C Cornel
Journal:  Eur J Hum Genet       Date:  2011-04       Impact factor: 4.246

8.  Regional differences in awareness and attitudes regarding genetic testing for disease risk and ancestry.

Authors:  Charles R Jonassaint; Eunice R Santos; Crystal M Glover; Perry W Payne; Grace-Ann Fasaye; Nefertiti Oji-Njideka; Stanley Hooker; Wenndy Hernandez; Morris W Foster; Rick A Kittles; Charmaine D Royal
Journal:  Hum Genet       Date:  2010-06-13       Impact factor: 4.132

9.  A tiered-layered-staged model for informed consent in personal genome testing.

Authors:  Eline M Bunnik; A Cecile J W Janssens; Maartje H N Schermer
Journal:  Eur J Hum Genet       Date:  2012-11-21       Impact factor: 4.246

10.  Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing.

Authors:  Lisa Soleymani Lehmann; David J Kaufman; Richard R Sharp; Tanya A Moreno; Joanna L Mountain; J Scott Roberts; Robert C Green
Journal:  Genet Med       Date:  2012-01-12       Impact factor: 8.822
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