Literature DB >> 19919316

The role of numeracy in informed consent for surveys.

Mick P Couper1, Eleanor Singer.   

Abstract

If empirical estimates of disclosure risk are included in informed consent statements for surveys or other forms of research, participants must be able to understand the information provided. Using data from an online vignette-based experiment, this article explores the role that numeracy or quantitative literacy may play in comprehension of disclosure risk. Results suggest that less numerate persons are less sensitive to extreme differences in the disclosure risk described in the hypothetical vignettes.

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Mesh：

Year:  2009        PMID： 19919316      PMCID： PMC2857726          DOI： 10.1525/jer.2009.4.4.17

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN： 1556-2646            Impact factor:   1.742


  13 in total

1.  Essentials of the disclosure review process: a federal perspective.

Authors:  Alvan O Zarate; Laura Zayatz
Journal:  J Empir Res Hum Res Ethics       Date:  2006-09       Impact factor: 1.742

2.  Experimental Studies of Disclosure Risk, Disclosure Harm, Topic Sensitivity, and Survey Participation.

Authors:  Mick P Couper; Eleanor Singer; Frederick G Conrad; Robert M Groves
Journal:  J Off Stat       Date:  2010-06       Impact factor: 0.920

3.  Informed consent: consequences for response rate and response quality in social surveys.

Authors:  E Singer
Journal:  Am Sociol Rev       Date:  1978-04

4.  Risk of Disclosure, Perceptions of Risk, and Concerns about Privacy and Confidentiality as Factors in Survey Participation.

Authors:  Mick P Couper; Eleanor Singer; Frederick G Conrad; Robert M Groves
Journal:  J Off Stat       Date:  2008       Impact factor: 0.920

5.  The role of numeracy in understanding the benefit of screening mammography.

Authors:  L M Schwartz; S Woloshin; W C Black; H G Welch
Journal:  Ann Intern Med       Date:  1997-12-01       Impact factor: 25.391

6.  Knowledge and understanding among cancer patients consenting to participate in clinical trials.

Authors:  Mia Bergenmar; Clementine Molin; Nils Wilking; Yvonne Brandberg
Journal:  Eur J Cancer       Date:  2008-09-23       Impact factor: 9.162

7.  Are We Misjudging How Well Informed Consent Forms are Read?

Authors:  Louise-Anne McNutt; Eve Waltermaurer; Robert A Bednarczyk; Bonnie E Carlson; Jeroo Kotval; Jeanne McCauley; Jacquelyn C Campbell; Daniel E Ford
Journal:  J Empir Res Hum Res Ethics       Date:  2008-03       Impact factor: 1.742

8.  The test of functional health literacy in adults: a new instrument for measuring patients' literacy skills.

Authors:  R M Parker; D W Baker; M V Williams; J R Nurss
Journal:  J Gen Intern Med       Date:  1995-10       Impact factor: 5.128

9.  Validation of the Subjective Numeracy Scale: effects of low numeracy on comprehension of risk communications and utility elicitations.

Authors:  Brian J Zikmund-Fisher; Dylan M Smith; Peter A Ubel; Angela Fagerlin
Journal:  Med Decis Making       Date:  2007-07-24       Impact factor: 2.583

10.  Measuring numeracy without a math test: development of the Subjective Numeracy Scale.

Authors:  Angela Fagerlin; Brian J Zikmund-Fisher; Peter A Ubel; Aleksandra Jankovic; Holly A Derry; Dylan M Smith
Journal:  Med Decis Making       Date:  2007-07-19       Impact factor: 2.583
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  5 in total

1.  Self-Regulation Principles Underlying Risk Perception and Decision Making within the Context of Genomic Testing.

Authors:  Linda D Cameron; Barbara Bowles Biesecker; Ellen Peters; Jennifer M Taber; William M P Klein
Journal:  Soc Personal Psychol Compass       Date:  2017-05-05

2.  Experimental Studies of Disclosure Risk, Disclosure Harm, Topic Sensitivity, and Survey Participation.

Authors:  Mick P Couper; Eleanor Singer; Frederick G Conrad; Robert M Groves
Journal:  J Off Stat       Date:  2010-06       Impact factor: 0.920

Review 3.  New perspectives for motivating better decisions in older adults.

Authors:  JoNell Strough; Wändi Bruine de Bruin; Ellen Peters
Journal:  Front Psychol       Date:  2015-06-22

4.  Impact of different privacy conditions and incentives on survey response rate, participant representativeness, and disclosure of sensitive information: a randomized controlled trial.

Authors:  Maureen Murdoch; Alisha Baines Simon; Melissa Anderson Polusny; Ann Kay Bangerter; Joseph Patrick Grill; Siamak Noorbaloochi; Melissa Ruth Partin
Journal:  BMC Med Res Methodol       Date:  2014-07-16       Impact factor: 4.615

5.  Developing a Better and More User-Friendly Numeracy Scale for Patients.

Authors:  W Trey Hill; Gary L Brase; Kevin L Kenney
Journal:  Health Lit Res Pract       Date:  2019-08-08
  5 in total

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