Literature DB >> 21765576

Experimental Studies of Disclosure Risk, Disclosure Harm, Topic Sensitivity, and Survey Participation.

Mick P Couper1, Eleanor Singer, Frederick G Conrad, Robert M Groves.   

Abstract

This article extends earlier work (Couper et al. 2008) that explores how survey topic and risk of identity and attribute disclosure, along with mention of possible harms resulting from such disclosure, affect survey participation. The first study uses web-based vignettes to examine respondents' expressed willingness to participate in the hypothetical surveys described, whereas the second study uses a mail survey to examine actual participation. Results are consistent with the earlier experiments. In general, we find that under normal survey conditions, specific information about the risk of identity or attribute disclosure influences neither respondents' expressed willingness to participate in a hypothetical survey nor their actual participation in a real survey. However, when the possible harm resulting from disclosure is made explicit, the effect on response becomes significant. In addition, sensitivity of the survey topic is a consistent and strong predictor of both expressed willingness to participate and actual participation.

Entities:  

Year:  2010        PMID: 21765576      PMCID: PMC3134940     

Source DB:  PubMed          Journal:  J Off Stat        ISSN: 0282-423X            Impact factor:   0.920


  3 in total

1.  Determining the identifiability of DNA database entries.

Authors:  B Malin; L Sweeney
Journal:  Proc AMIA Symp       Date:  2000

2.  Risk of Disclosure, Perceptions of Risk, and Concerns about Privacy and Confidentiality as Factors in Survey Participation.

Authors:  Mick P Couper; Eleanor Singer; Frederick G Conrad; Robert M Groves
Journal:  J Off Stat       Date:  2008       Impact factor: 0.920

3.  The role of numeracy in informed consent for surveys.

Authors:  Mick P Couper; Eleanor Singer
Journal:  J Empir Res Hum Res Ethics       Date:  2009-12       Impact factor: 1.742

  3 in total
  11 in total

1.  The role of perceived benefits and costs in patients' medical decisions.

Authors:  Eleanor Singer; Mick P Couper; Angela Fagerlin; Floyd J Fowler; Carrie A Levin; Peter A Ubel; John Van Hoewyk; Brian J Zikmund-Fisher
Journal:  Health Expect       Date:  2011-11-10       Impact factor: 3.377

2.  Research Participants' Understanding of and Reactions to Certificates of Confidentiality.

Authors:  Laura M Beskow; Devon K Check; Natalie Ammarell
Journal:  AJOB Prim Res       Date:  2014-01-01

3.  Why do people participate in health-related studies?

Authors:  Hannah Bongartz; Nicole Rübsamen; Heike Raupach-Rosin; Manas K Akmatov; Rafael T Mikolajczyk
Journal:  Int J Public Health       Date:  2017-08-31       Impact factor: 3.380

4.  Communicating disclosure risk in informed consent statements.

Authors:  Eleanor Singer; Mick P Couper
Journal:  J Empir Res Hum Res Ethics       Date:  2010-09       Impact factor: 1.742

5.  Response bias, weighting adjustments, and design effects in the Army Study to Assess Risk and Resilience in Servicemembers (Army STARRS).

Authors:  Ronald C Kessler; Steven G Heeringa; Lisa J Colpe; Carol S Fullerton; Nancy Gebler; Irving Hwang; James A Naifeh; Matthew K Nock; Nancy A Sampson; Michael Schoenbaum; Alan M Zaslavsky; Murray B Stein; Robert J Ursano
Journal:  Int J Methods Psychiatr Res       Date:  2013-12       Impact factor: 4.035

6.  Informed Consent for Web Paradata Use.

Authors:  Mick P Couper; Eleanor Singer
Journal:  Surv Res Methods       Date:  2013

7.  The role of numeracy in informed consent for surveys.

Authors:  Mick P Couper; Eleanor Singer
Journal:  J Empir Res Hum Res Ethics       Date:  2009-12       Impact factor: 1.742

8.  Harnessing health plan enrollee data to boost membership in patient-powered research networks.

Authors:  Xiaoxue Chen; Abiy Agiro; W Benjamin Nowell; Sara Loud; Robert McBurney; Kalen Young; Rebecca Sutphen; Elizabeth Bourquardez Clark; Cristina M Burroughs; Jeffrey R Curtis; Antoine G Sreih; Peter A Merkel; Kevin Haynes
Journal:  BMC Health Serv Res       Date:  2020-05-25       Impact factor: 2.655

9.  Willingness to Participate in Passive Mobile Data Collection.

Authors:  Florian Keusch; Bella Struminskaya; Christopher Antoun; Mick P Couper; Frauke Kreuter
Journal:  Public Opin Q       Date:  2019-06-06

10.  Nonprobability Web surveys to measure sexual behaviors and attitudes in the general population: a comparison with a probability sample interview survey.

Authors:  Bob Erens; Sarah Burkill; Mick P Couper; Frederick Conrad; Soazig Clifton; Clare Tanton; Andrew Phelps; Jessica Datta; Catherine H Mercer; Pam Sonnenberg; Philip Prah; Kirstin R Mitchell; Kaye Wellings; Anne M Johnson; Andrew J Copas
Journal:  J Med Internet Res       Date:  2014-12-08       Impact factor: 5.428

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