Literature DB >> 21603156

Risk of Disclosure, Perceptions of Risk, and Concerns about Privacy and Confidentiality as Factors in Survey Participation.

Mick P Couper1, Eleanor Singer, Frederick G Conrad, Robert M Groves.   

Abstract

This article reports on a web-based vignette experiment investigating how likely subjects would be to participate in surveys varying in topic sensitivity and risk of disclosure. A total of 3,672 participants each responded to a series of eight vignettes, along with a variety of background questions, concerns about confidentiality, trust in various institutions, and the like.Vignettes were randomly assigned to respondents, such that each respondent was exposed to four levels of disclosure risk for each level of topic sensitivity (high versus low). Half the sample was assigned to receive a confidentiality statement for all eight vignettes, while the other half received no mention of confidentiality in the vignettes. The order of presentation of vignettes was randomized for each respondent.Respondents were also asked for their subjective perceptions of risk, harm, and social as well as personal benefits for one of the eight vignettes. Adding these questions permits us to examine how objective risk information presented by the researcher relates to the subjective perception of risk by the participant, and to assess the importance of both for their willingness to participate in the surveys described.Under conditions resembling those of real surveys, objective risk information does not affect willingness to participate. On the other hand, topic sensitivity does have such effects, as do general attitudes toward privacy and survey organizations as well as subjective perceptions of risk, harm, and benefits. We discuss the limitations and implications of these findings.

Entities:  

Year:  2008        PMID: 21603156      PMCID: PMC3096944     

Source DB:  PubMed          Journal:  J Off Stat        ISSN: 0282-423X            Impact factor:   0.920


  4 in total

1.  Determining the identifiability of DNA database entries.

Authors:  B Malin; L Sweeney
Journal:  Proc AMIA Symp       Date:  2000

2.  Anticipating informed consent: an empirical approach.

Authors:  Ellen et Berscheid
Journal:  Am Psychol       Date:  1973-10

3.  Determinants of patient participation in clinical studies requiring informed consent: why patients enter a clinical trial.

Authors:  F W Verheggen; F Nieman; R Jonkers
Journal:  Patient Educ Couns       Date:  1998-10

4.  Empirical assessment of whether moderate payments are undue or unjust inducements for participation in clinical trials.

Authors:  Scott D Halpern; Jason H T Karlawish; David Casarett; Jesse A Berlin; David A Asch
Journal:  Arch Intern Med       Date:  2004-04-12
  4 in total
  13 in total

1.  The role of perceived benefits and costs in patients' medical decisions.

Authors:  Eleanor Singer; Mick P Couper; Angela Fagerlin; Floyd J Fowler; Carrie A Levin; Peter A Ubel; John Van Hoewyk; Brian J Zikmund-Fisher
Journal:  Health Expect       Date:  2011-11-10       Impact factor: 3.377

2.  Research Participants' Understanding of and Reactions to Certificates of Confidentiality.

Authors:  Laura M Beskow; Devon K Check; Natalie Ammarell
Journal:  AJOB Prim Res       Date:  2014-01-01

3.  Experimental Studies of Disclosure Risk, Disclosure Harm, Topic Sensitivity, and Survey Participation.

Authors:  Mick P Couper; Eleanor Singer; Frederick G Conrad; Robert M Groves
Journal:  J Off Stat       Date:  2010-06       Impact factor: 0.920

4.  Communicating disclosure risk in informed consent statements.

Authors:  Eleanor Singer; Mick P Couper
Journal:  J Empir Res Hum Res Ethics       Date:  2010-09       Impact factor: 1.742

5.  Response bias, weighting adjustments, and design effects in the Army Study to Assess Risk and Resilience in Servicemembers (Army STARRS).

Authors:  Ronald C Kessler; Steven G Heeringa; Lisa J Colpe; Carol S Fullerton; Nancy Gebler; Irving Hwang; James A Naifeh; Matthew K Nock; Nancy A Sampson; Michael Schoenbaum; Alan M Zaslavsky; Murray B Stein; Robert J Ursano
Journal:  Int J Methods Psychiatr Res       Date:  2013-12       Impact factor: 4.035

6.  Informed Consent for Web Paradata Use.

Authors:  Mick P Couper; Eleanor Singer
Journal:  Surv Res Methods       Date:  2013

7.  Do incentives exert undue influence on survey participation? Experimental evidence.

Authors:  Eleanor Singer; Mick P Couper
Journal:  J Empir Res Hum Res Ethics       Date:  2008-09       Impact factor: 1.742

8.  Sexual assault during the time of Gulf War I: a cross-sectional survey of U.S. service men who later applied for Department of Veterans Affairs PTSD disability benefits.

Authors:  Maureen Murdoch; Melissa A Polusny; Amy Street; Siamak Noorbaloochi; Alisha B Simon; Ann Bangerter; Joseph Grill; Emily Voller
Journal:  Mil Med       Date:  2014-03       Impact factor: 1.437

9.  The role of numeracy in informed consent for surveys.

Authors:  Mick P Couper; Eleanor Singer
Journal:  J Empir Res Hum Res Ethics       Date:  2009-12       Impact factor: 1.742

10.  Up-to-the-Minute Privacy Policies via Gossips in Participatory Epidemiological Studies.

Authors:  Aakash Sharma; Thomas Bye Nilsen; Katja Pauline Czerwinska; Daria Onitiu; Lars Brenna; Dag Johansen; Håvard D Johansen
Journal:  Front Big Data       Date:  2021-05-13
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