Literature DB >> 19623080

Personal utility and genomic information: look before you leap.

Scott D Grosse1, Colleen M McBride, James P Evans, Muin J Khoury.   

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Year:  2009        PMID: 19623080      PMCID: PMC3417335          DOI: 10.1097/GIM.0b013e3181af0a80

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


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  17 in total

Review 1.  Economic analyses of human genetics services: a systematic review.

Authors:  Josh J Carlson; Nora Beidler Henrikson; David L Veenstra; Scott D Ramsey
Journal:  Genet Med       Date:  2005-10       Impact factor: 8.822

2.  Exploring preference anomalies in double bounded contingent valuation.

Authors:  Verity Watson; Mandy Ryan
Journal:  J Health Econ       Date:  2006-11-22       Impact factor: 3.883

Review 3.  Genetic screening by DNA technology: a systematic review of health economic evidence.

Authors:  Wolf Rogowski
Journal:  Int J Technol Assess Health Care       Date:  2006       Impact factor: 2.188

4.  Disclosure of APOE genotype for risk of Alzheimer's disease.

Authors:  Robert C Green; J Scott Roberts; L Adrienne Cupples; Norman R Relkin; Peter J Whitehouse; Tamsen Brown; Susan LaRusse Eckert; Melissa Butson; A Dessa Sadovnick; Kimberly A Quaid; Clara Chen; Robert Cook-Deegan; Lindsay A Farrer
Journal:  N Engl J Med       Date:  2009-07-16       Impact factor: 91.245

5.  Comparison of health-related quality of life measures for chronic renal failure: quality of well-being scale, short-form-6D, and the kidney disease quality of life instrument.

Authors:  Karen L Saban; Kevin T Stroupe; Fred B Bryant; Domenic J Reda; Margaret M Browning; Denise M Hynes
Journal:  Qual Life Res       Date:  2008-09-13       Impact factor: 4.147

6.  Valuing the benefit of diagnostic testing for genetic causes of idiopathic developmental disability: willingness to pay from families of affected children.

Authors:  D A Regier; J M Friedman; N Makela; M Ryan; C A Marra
Journal:  Clin Genet       Date:  2009-06       Impact factor: 4.438

7.  Health behavior changes after genetic risk assessment for Alzheimer disease: The REVEAL Study.

Authors:  Serena Chao; J Scott Roberts; Theresa M Marteau; Rebecca Silliman; L Adrienne Cupples; Robert C Green
Journal:  Alzheimer Dis Assoc Disord       Date:  2008 Jan-Mar       Impact factor: 2.703

8.  Understanding why rheumatoid arthritis patient treatment preferences differ by race.

Authors:  Florina Constantinescu; Suzanne Goucher; Arthur Weinstein; Wally Smith; Liana Fraenkel
Journal:  Arthritis Rheum       Date:  2009-04-15

9.  The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop.

Authors:  Muin J Khoury; Colleen M McBride; Sheri D Schully; John P A Ioannidis; W Gregory Feero; A Cecile J W Janssens; Marta Gwinn; Denise G Simons-Morton; Jay M Bernhardt; Michele Cargill; Stephen J Chanock; George M Church; Ralph J Coates; Francis S Collins; Robert T Croyle; Barry R Davis; Gregory J Downing; Amy Duross; Susan Friedman; Mitchell H Gail; Geoffrey S Ginsburg; Robert C Green; Mark H Greene; Philip Greenland; Jeffrey R Gulcher; Andro Hsu; Kathy L Hudson; Sharon L R Kardia; Paul L Kimmel; Michael S Lauer; Amy M Miller; Kenneth Offit; David F Ransohoff; J Scott Roberts; Rebekah S Rasooly; Kari Stefansson; Sharon F Terry; Steven M Teutsch; Angela Trepanier; Kay L Wanke; John S Witte; Jianfeng Xu
Journal:  Genet Med       Date:  2009-08       Impact factor: 8.822

10.  Evaluating the utility of personal genomic information.

Authors:  Morris W Foster; John J Mulvihill; Richard R Sharp
Journal:  Genet Med       Date:  2009-08       Impact factor: 8.822

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  36 in total

1.  Points to consider in assessing and appraising predictive genetic tests.

Authors:  Wolf H Rogowski; Scott D Grosse; Jürgen John; Helena Kääriäinen; Alastair Kent; Ulf Kristofferson; Jörg Schmidtke
Journal:  J Community Genet       Date:  2010-10-16

2.  The prospect of genome-guided preventive medicine: a need and opportunity for genetic counselors.

Authors:  Julianne M O'Daniel
Journal:  J Genet Couns       Date:  2010-05-04       Impact factor: 2.537

Review 3.  Incidental findings from clinical genome-wide sequencing: a review.

Authors:  Z Lohn; S Adam; P H Birch; J M Friedman
Journal:  J Genet Couns       Date:  2013-05-26       Impact factor: 2.537

4.  Evaluation of genetic tests for susceptibility to common complex diseases: why, when and how?

Authors:  Caroline Fiona Wright; Mark Kroese
Journal:  Hum Genet       Date:  2009-11-20       Impact factor: 4.132

5.  Primary care physicians' awareness, experience and opinions of direct-to-consumer genetic testing.

Authors:  Karen P Powell; Whitney A Cogswell; Carol A Christianson; Gaurav Dave; Amit Verma; Sonja Eubanks; Vincent C Henrich
Journal:  J Genet Couns       Date:  2011-07-16       Impact factor: 2.537

6.  Considerations for the impact of personal genome information: a study of genomic profiling among genetics and genomics professionals.

Authors:  Julianne M O'Daniel; Susanne B Haga; Huntington F Willard
Journal:  J Genet Couns       Date:  2010-03-30       Impact factor: 2.537

7.  Ethical signposts for clinical geneticists in secondary variant and incidental finding disclosure discussions.

Authors:  Gabrielle M Christenhusz; Koenraad Devriendt; Hilde Van Esch; Kris Dierickx
Journal:  Med Health Care Philos       Date:  2015-08

8.  Valuations of genetic test information for treatable conditions: the case of colorectal cancer screening.

Authors:  Vikram Kilambi; F Reed Johnson; Juan Marcos González; Ateesha F Mohamed
Journal:  Value Health       Date:  2014-11-06       Impact factor: 5.725

Review 9.  Decision making about cancer screening: an assessment of the state of the science and a suggested research agenda from the ASPO Behavioral Oncology and Cancer Communication Special Interest Group.

Authors:  Marc T Kiviniemi; Jennifer L Hay; Aimee S James; Isaac M Lipkus; Helen I Meissner; Michael Stefanek; Jamie L Studts; John F P Bridges; David R Close; Deborah O Erwin; Resa M Jones; Karen Kaiser; Kathryn M Kash; Kimberly M Kelly; Simon J Craddock Lee; Jason Q Purnell; Laura A Siminoff; Susan T Vadaparampil; Catharine Wang
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2009-11       Impact factor: 4.254

10.  Personalized medicine and genomics: challenges and opportunities in assessing effectiveness, cost-effectiveness, and future research priorities.

Authors:  Rena Conti; David L Veenstra; Katrina Armstrong; Lawrence J Lesko; Scott D Grosse
Journal:  Med Decis Making       Date:  2010-01-04       Impact factor: 2.583

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