Literature DB >> 19325321

Disclosure of genetic information within families.

Agatha M Gallo1, Denise B Angst, Kathleen A Knafl.   

Abstract

Entities:  

Mesh：

Year:  2009        PMID： 19325321      PMCID： PMC2677756          DOI： 10.1097/01.NAJ.0000348607.31983.6e

Source DB:  PubMed          Journal:  Am J Nurs        ISSN： 0002-936X            Impact factor:   2.220


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  23 in total

Review 1.  Genetic testing and screening.

Authors:  Dale Halsey Lea; Janet K Williams
Journal:  Am J Nurs       Date:  2002-07       Impact factor: 2.220

2.  Voluntary disclosure of BRCA1 mutation test results.

Authors:  Ken R Smith; Cathleen D Zick; Robert N Mayer; Jeffery R Botkin
Journal:  Genet Test       Date:  2002

3.  Personal experiences of cystic fibrosis (CF) carrier couples prospectively identified in CF families.

Authors:  Lidewij Henneman; Loes Kooij; Katelijne Bouman; Leo P ten Kate
Journal:  Am J Med Genet       Date:  2002-07-15

4.  The best experts: the narratives of those who have a genetic condition.

Authors:  Alan Petersen
Journal:  Soc Sci Med       Date:  2006-01-23       Impact factor: 4.634

Review 5.  Communicating genetic information in families--a review of guidelines and position papers.

Authors:  Laura E Forrest; Martin B Delatycki; Loane Skene; MaryAnne Aitken
Journal:  Eur J Hum Genet       Date:  2007-03-28       Impact factor: 4.246

6.  All in the family: evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results.

Authors:  Chanita Hughes; Caryn Lerman; Marc Schwartz; Beth N Peshkin; Lari Wenzel; Steven Narod; Camille Corio; Kenneth P Tercyak; Danielle Hanna; Claudine Isaacs; David Main
Journal:  Am J Med Genet       Date:  2002-01-15

7.  Ethical issues with genetic testing in pediatrics.

Authors: 
Journal:  Pediatrics       Date:  2001-06       Impact factor: 7.124

8.  Disclosure of personal medical information: differences among parents and affected adults for genetic and nongenetic conditions.

Authors:  Summer Johnson; Nancy E Kass; Marvin Natowicz
Journal:  Genet Test       Date:  2005

9.  "Family matters": a conceptual framework for genetic testing in children.

Authors:  Allyn McConkie-Rosell; Gail A Spiridigliozzi
Journal:  J Genet Couns       Date:  2004-02       Impact factor: 2.537

10.  Parent-child factors and their effect on communicating BRCA1/2 test results to children.

Authors:  Kenneth P Tercyak; Beth N Peshkin; Tiffani A DeMarco; Barbara M Brogan; Caryn Lerman
Journal:  Patient Educ Couns       Date:  2002-06
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  22 in total

1.  Effect of Disclosing Genetic Risk for Coronary Heart Disease on Information Seeking and Sharing: The MI-GENES Study (Myocardial Infarction Genes).

Authors:  Sherry-Ann N Brown; Hayan Jouni; Tariq S Marroush; Iftikhar J Kullo
Journal:  Circ Cardiovasc Genet       Date:  2017-08

2.  Disclosing cancer genetic information within families: perspectives of counselees and their at-risk relatives.

Authors:  Afsaneh Hayat Roshanai; Claudia Lampic; Richard Rosenquist; Karin Nordin
Journal:  Fam Cancer       Date:  2010-12       Impact factor: 2.375

3.  Challenges of genetic testing in adolescents with cardiac arrhythmia syndromes.

Authors:  Lilian Liou Cohen; Marina Stolerman; Christine Walsh; David Wasserman; Siobhan M Dolan
Journal:  J Med Ethics       Date:  2011-09-27       Impact factor: 2.903

4.  Genetic Privacy, Disease Prevention, and the Principle of Rescue.

Authors:  Madison K Kilbride
Journal:  Hastings Cent Rep       Date:  2018-05       Impact factor: 2.683

5.  Assessment of parental disclosure of a 22q11.2 deletion syndrome diagnosis and implications for clinicians.

Authors:  Dana Faux; Kelly Schoch; Sonja Eubanks; Stephen R Hooper; Vandana Shashi
Journal:  J Genet Couns       Date:  2012-08-31       Impact factor: 2.537

6.  Essential elements of genetic cancer risk assessment, counseling, and testing: updated recommendations of the National Society of Genetic Counselors.

Authors:  Bronson D Riley; Julie O Culver; Cécile Skrzynia; Leigha A Senter; June A Peters; Josephine W Costalas; Faith Callif-Daley; Sherry C Grumet; Katherine S Hunt; Rebecca S Nagy; Wendy C McKinnon; Nancie M Petrucelli; Robin L Bennett; Angela M Trepanier
Journal:  J Genet Couns       Date:  2011-12-02       Impact factor: 2.537

7.  Stakeholder Perspectives on Overcoming Barriers to Cascade Testing in Lynch Syndrome: A Qualitative Study.

Authors:  Swetha Srinivasan; Heather Hampel; Jennifer Leeman; Amit Patel; Alanna Kulchak Rahm; Daniel S Reuland; Megan C Roberts
Journal:  Cancer Prev Res (Phila)       Date:  2020-07-29

8.  Perception of young adults with sickle cell disease or sickle cell trait about participation in the CHOICES randomized controlled trial.

Authors:  Patricia E Hershberger; Agatha M Gallo; Robert Molokie; Alexis A Thompson; Marie L Suarez; Yingwei Yao; Diana J Wilkie
Journal:  J Adv Nurs       Date:  2015-06-15       Impact factor: 3.187

9.  Life events may contribute to family communication about cancer risk following BRCA1/2 testing.

Authors:  Julie Lapointe; Claudia Côté; Karine Bouchard; Béatrice Godard; Jacques Simard; Michel Dorval
Journal:  J Genet Couns       Date:  2012-08-15       Impact factor: 2.537

10.  Children with sex chromosome trisomies: parental disclosure of genetic status.

Authors:  Nikki C Gratton; Jessica Myring; Prisca Middlemiss; Deborah Shears; Diana Wellesley; Sarah Wynn; Dorothy Vm Bishop; Gaia Scerif
Journal:  Eur J Hum Genet       Date:  2015-08-26       Impact factor: 4.246
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