Literature DB >> 17085396

Thresholds and boundaries in the disclosure of individual genetic research results.

Lynn G Dressler1, Eric T Juengst.   

Abstract

Mesh：

Year:  2006        PMID： 17085396     DOI： 10.1080/15265160600934830

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  11 in total

1.  Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.

Authors:  Joanna Stjernschantz Forsberg; Mats G Hansson; Stefan Eriksson
Journal:  Eur J Hum Genet       Date:  2009-05-27       Impact factor: 4.246

2.  Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Authors:  Robin Zoe Hayeems; Fiona Alice Miller; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2011-03-16       Impact factor: 4.246

3.  Genomics education for the public: perspectives of genomic researchers and ELSI advisors.

Authors:  Lynn G Dressler; Sondra Smolek Jones; Janell M Markey; Katherine W Byerly; Megan C Roberts
Journal:  Genet Test Mol Biomarkers       Date:  2014-02-04

4.  A framework for analyzing the ethics of disclosing genetic research findings.

Authors:  Lisa Eckstein; Jeremy R Garrett; Benjamin E Berkman
Journal:  J Law Med Ethics       Date:  2014       Impact factor: 1.718

Review 5.  Ethical considerations for pharmacogenomic testing in pediatric clinical care and research.

Authors:  Cassandra Moran; Courtney D Thornburg; Raymond C Barfield
Journal:  Pharmacogenomics       Date:  2011-06       Impact factor: 2.533

Review 6.  The law of incidental findings in human subjects research: establishing researchers' duties.

Authors:  Susan M Wolf; Jordan Paradise; Charlisse Caga-anan
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

7.  Public expectations for return of results from large-cohort genetic research.

Authors:  Juli Murphy; Joan Scott; David Kaufman; Gail Geller; Lisa LeRoy; Kathy Hudson
Journal:  Am J Bioeth       Date:  2008-11       Impact factor: 11.229

8.  Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer.

Authors:  Conrad Vincent Fernandez; Jun Gao; Caron Strahlendorf; Albert Moghrabi; Rebecca Davis Pentz; Raymond Carlton Barfield; Justin Nathaniel Baker; Darcy Santor; Charles Weijer; Eric Kodish
Journal:  J Clin Oncol       Date:  2009-01-21       Impact factor: 44.544

9.  Returning Individual Genetic Research Results to Research Participants: Uptake and Outcomes Among Patients With Breast Cancer.

Authors:  Angela R Bradbury; Linda Patrick-Miller; Brian L Egleston; Kara N Maxwell; Laura DiGiovanni; Jamie Brower; Dominique Fetzer; Jill Bennett Gaieski; Amanda Brandt; Danielle McKenna; Jessica Long; Jacquelyn Powers; Jill E Stopfer; Katherine L Nathanson; Susan M Domchek
Journal:  JCO Precis Oncol       Date:  2018-04-16

10.  IRB perspectives on the return of individual results from genomic research.

Authors:  Lynn G Dressler; Sondra Smolek; Roselle Ponsaran; Janell M Markey; Helene Starks; Nancy Gerson; Susan Lewis; Nancy Press; Eric Juengst; Georgia L Wiesner
Journal:  Genet Med       Date:  2012-01-05       Impact factor: 8.822
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