Literature DB >> 16947039

Reducing the unmet needs of patients with colorectal cancer: a feasibility study of The Pathfinder Volunteer Program.

Michelle L Macvean1, Victoria M White, Sarah Pratt, Suzanne Grogan, Robert Sanson-Fisher.   

Abstract

GOALS OF THE WORK: Many cancer patients experience unmet needs and elevated levels of anxiety and depression. This paper describes a volunteer-delivered intervention to reduce the psychosocial needs of cancer patients and presents findings from a feasibility study of this intervention.
MATERIALS AND METHODS: The telephone-based intervention, called the Pathfinder Program, involves the assignment of volunteers to patients to assist them in addressing their needs as identified in questionnaires. Fifty-two patients with colorectal cancer were involved in the feasibility study, with 18 in the intervention. Sixty-two percent of the sample was male and the mean age was 64 years. Patients' needs were assessed using The Supportive Care Needs Survey, a colorectal cancer symptom checklist, and the Hospital Anxiety and Depression Scale. All patients completed baseline questionnaires (Time 1) and 47 completed Time 2 questionnaires 3 months later. MAIN
RESULTS: The most common needs were fear of the cancer spreading and returning, concerns about the worries of others, gas or wind, changes in weight, and bowel problems such as diarrhea, constipation, and pain. A statistically significant Time 1 to Time 2 decrease in supportive care needs and depression was found for the intervention group.
CONCLUSIONS: The Pathfinder Program has been found to be feasible, acceptable for patients, and has the potential to reduce needs and depression. A larger, randomized controlled trial is needed to determine the impact of this program on colorectal symptoms and anxiety.

Entities:  

Mesh:

Year:  2006        PMID: 16947039     DOI: 10.1007/s00520-006-0128-4

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  15 in total

1.  Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial.

Authors:  Symone B Detmar; Martin J Muller; Jan H Schornagel; Lidwina D V Wever; Neil K Aaronson
Journal:  JAMA       Date:  2002-12-18       Impact factor: 56.272

2.  The unmet supportive care needs of patients with cancer. Supportive Care Review Group.

Authors:  R Sanson-Fisher; A Girgis; A Boyes; B Bonevski; L Burton; P Cook
Journal:  Cancer       Date:  2000-01-01       Impact factor: 6.860

3.  Prevalence of anxiety and depression in cancer patients seen at the Norwegian Radium Hospital.

Authors:  N Aass; S D Fosså; A A Dahl; T J Moe
Journal:  Eur J Cancer       Date:  1997-09       Impact factor: 9.162

4.  Psychological morbidity in newly referred patients with cancer.

Authors:  S Ford; S Lewis; L Fallowfield
Journal:  J Psychosom Res       Date:  1995-02       Impact factor: 3.006

5.  Supportive telephone intervention for patients receiving chemotherapy. A pilot study.

Authors:  C L Alter; S B Fleishman; A B Kornblith; J C Holland; D Biano; R Levenson; V Vinciguerra; K R Rai
Journal:  Psychosomatics       Date:  1996 Sep-Oct       Impact factor: 2.386

6.  Uptake of psychosocial referrals in an outpatient cancer setting: improving service accessibility via the referral process.

Authors:  C Curry; T Cossich; J P Matthews; J Beresford; S A McLachlan
Journal:  Support Care Cancer       Date:  2002-07-24       Impact factor: 3.603

7.  The hospital anxiety and depression scale.

Authors:  A S Zigmond; R P Snaith
Journal:  Acta Psychiatr Scand       Date:  1983-06       Impact factor: 6.392

8.  Preference for information and involvement, information seeking and emotional responses of women undergoing colposcopy.

Authors:  A M Barsevick; J E Johnson
Journal:  Res Nurs Health       Date:  1990-02       Impact factor: 2.228

9.  Psychiatric illness and psychosocial concerns of patients with newly diagnosed lung cancer.

Authors:  M L Ginsburg; C Quirt; A D Ginsburg; W J MacKillop
Journal:  CMAJ       Date:  1995-03-01       Impact factor: 8.262

10.  Assessment of and intervention for psychosocial problems in routine oncology practice.

Authors:  A Cull; M Stewart; D G Altman
Journal:  Br J Cancer       Date:  1995-07       Impact factor: 7.640

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  13 in total

Review 1.  A systematic review of unmet needs of newly diagnosed older cancer patients undergoing active cancer treatment.

Authors:  M T E Puts; A Papoutsis; E Springall; A E Tourangeau
Journal:  Support Care Cancer       Date:  2012-04-04       Impact factor: 3.603

2.  Survivorship care experiences, information, and support needs of patients with oral and oropharyngeal cancer.

Authors:  Sharon Manne; Shawna V Hudson; Soly Baredes; Antoinette Stroup; Shannon Myers Virtue; Lisa Paddock; Evelyne Kalyoussef
Journal:  Head Neck       Date:  2016-01-20       Impact factor: 3.147

3.  Examining the introduction of a supportive care screening and referral process for cancer patients: how does practice compare with protocols?

Authors:  Melanie Regan; Eli Ristevski; Rebecca Jones; Sibilah Breen; Allison Hartney
Journal:  Support Care Cancer       Date:  2011-01-06       Impact factor: 3.603

4.  The role of volunteers at an outpatient cancer center: how do volunteers enhance the patient experience?

Authors:  Shaun Lorhan; Michael van der Westhuizen; Stacey Gossmann
Journal:  Support Care Cancer       Date:  2014-11-22       Impact factor: 3.603

5.  Symptoms, psychological distress, and supportive care needs in lung cancer patients.

Authors:  Yu-Chien Liao; Wei-Yu Liao; Shiow-Ching Shun; Chong-Jen Yu; Pan-Chyr Yang; Yeur-Hur Lai
Journal:  Support Care Cancer       Date:  2010-10-15       Impact factor: 3.603

6.  Development and feasibility assessment of telephone-delivered supportive care to improve outcomes for patients with colorectal cancer: pilot study of the CONNECT intervention.

Authors:  Jane Young; James Harrison; Michael Solomon; Phyllis Butow; Rebecca Dennis; Daine Robson; Sally Auld
Journal:  Support Care Cancer       Date:  2009-07-22       Impact factor: 3.603

Review 7.  Measuring psychosocial outcomes: is the consumer or the professional the best judge?

Authors:  C Paul; R Sanson-Fisher; M Carey
Journal:  Eur J Cancer Care (Engl)       Date:  2013-02-25       Impact factor: 2.520

8.  Cutting the research pie: a value-weighting approach to explore perceptions about psychosocial research priorities for adults with haematological cancers.

Authors:  C L Paul; R Sanson-Fisher; H E Douglas; T Clinton-McHarg; A Williamson; D Barker
Journal:  Eur J Cancer Care (Engl)       Date:  2011-05       Impact factor: 2.520

Review 9.  The unfulfilled promise: a systematic review of interventions to reduce the unmet supportive care needs of cancer patients.

Authors:  Mariko Carey; Sylvie Lambert; Rochelle Smits; Chris Paul; Rob Sanson-Fisher; Tara Clinton-McHarg
Journal:  Support Care Cancer       Date:  2011-11-17       Impact factor: 3.603

10.  A nurse- and peer-led support program to assist women in gynaecological oncology receiving curative radiotherapy, the PeNTAGOn study (peer and nurse support trial to assist women in gynaecological oncology): study protocol for a randomised controlled trial.

Authors:  Penelope Schofield; Ilona Juraskova; Rebecca Bergin; Karla Gough; Linda Mileshkin; Meinir Krishnasamy; Kate White; David Bernshaw; Sylvia Penberthy; Sanchia Aranda
Journal:  Trials       Date:  2013-02-11       Impact factor: 2.279

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