Sharon Manne1, Shawna V Hudson1, Soly Baredes2, Antoinette Stroup1,3, Shannon Myers Virtue1, Lisa Paddock3, Evelyne Kalyoussef2. 1. Department of Population Science, Rutgers Cancer Institute of New Jersey, New Brunswick, New Jersey. 2. Department of Otolaryngology - Head and Neck Surgery, Rutgers New Jersey Medical School, Newark, New Jersey. 3. Department of Nutritional Sciences, Rutgers School of Public Health, Piscataway, New Jersey.
Abstract
BACKGROUND: There is little research documenting the posttreatment experiences and needs of oral/oropharyngeal cancer survivors. METHODS: In this cross-sectional study, 92 patients with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs. RESULTS: About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common; one-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common; only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs. CONCLUSION: Survivors reported the desire for more oral cancer information. A desire for assistance was less common.
BACKGROUND: There is little research documenting the posttreatment experiences and needs of oral/oropharyngeal cancer survivors. METHODS: In this cross-sectional study, 92 patients with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs. RESULTS: About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common; one-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common; only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs. CONCLUSION: Survivors reported the desire for more oral cancer information. A desire for assistance was less common.
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