Literature DB >> 16502338

"SLANG"--Sensitive Language and the New Genetics--an exploratory study.

J Hodgson1, E Hughes, C Lambert.   

Abstract

SLANG-Sensitive Language and the New Genetics--is a concept that arose out of informal discussions between a number of interested parties, both consumers and professionals, who were becoming increasingly uneasy with some of the language commonly used in medical genetics. Some language choices were felt by the authors to be inappropriate for a variety of reasons. Poor language choice may impede an individual's understanding of a genetic condition or important medical information and the chosen words themselves may simply be perceived as discriminatory and even offensive. SLANG is an important concept to explore partly because literature in this area confirms that language choices in medical settings can be of great significance to both patients and families. Studies have shown how language choices impact on professional practice by, as one example, changing the intended meaning of medical information and affecting individual perception of risk and choice which, in turn, may affect individual or familial well-being. In addition language choice has the power to affect how individuals perceive themselves and are viewed by others. This paper presents the results from our pilot study and discusses the implications for health professionals with particular reference to medical genetics settings.

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Year:  2005        PMID: 16502338     DOI: 10.1007/s10897-005-5886-5

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  14 in total

1.  Mothers and babies, pregnant women and fetuses.

Authors:  L de Crespigny; F Chervenak; L McCullough
Journal:  Br J Obstet Gynaecol       Date:  1999-12

2.  Does indirect speech promote nondirective genetic counseling? Results of a sociolinguistic investigation.

Authors:  J L Benkendorf; M B Prince; M A Rose; A De Fina; H E Hamilton
Journal:  Am J Med Genet       Date:  2001

3.  Lay people's understanding of and preference against the word "mutation".

Authors:  Celeste M Condit; Tasha Dubriwny; John Lynch; Roxanne Parrott
Journal:  Am J Med Genet A       Date:  2004-10-15       Impact factor: 2.802

4.  Parental guilt: The part played by the clinical geneticist.

Authors:  A Chapple; C May; P Campion
Journal:  J Genet Couns       Date:  1995-09       Impact factor: 2.537

Review 5.  Speaking up for ourselves. The evolution of consumer advocacy in health care.

Authors:  H Bastian
Journal:  Int J Technol Assess Health Care       Date:  1998       Impact factor: 2.188

6.  Effect of framing on the perception of genetic recurrence risks.

Authors:  S Shiloh; M Sagi
Journal:  Am J Med Genet       Date:  1989-05

7.  "People Say It's a Little Uncomfortable": Prenatal Genetic Counselors' Use of Constructed Dialogue to Reference Procedural Pain.

Authors:  Cynthia Gordon; Michele B Prince; Judith L Benkendorf; Heidi E Hamilton
Journal:  J Genet Couns       Date:  2002-08       Impact factor: 2.537

8.  Clinical terminology: anxiety and confusion amongst families undergoing genetic counseling.

Authors:  A Chapple; P Campion; C May
Journal:  Patient Educ Couns       Date:  1997 Sep-Oct

9.  Health consumer groups in the UK: a new social movement?

Authors:  Judith Allsop; Kathryn Jones; Rob Baggott
Journal:  Sociol Health Illn       Date:  2004-09

10.  Psychological aspects of genetic counseling. IV. The subjective assessment of probability.

Authors:  S Kessler; E K Levine
Journal:  Am J Med Genet       Date:  1987-10
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  5 in total

1.  Information related to prenatal genetic counseling: interpretation by adolescents, effects on risk perception and ethical implications.

Authors:  Philippe A Melas; Susanne Georgsson Öhman; Niklas Juth; The-Hung Bui
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

2.  Talking about disability in prenatal genetic counseling: a report of two interactive workshops.

Authors:  Jan Hodgson; Jon Weil
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

3.  Perceptions of the concept of mutation among family members of patients receiving outpatient genetic services and university students.

Authors:  Noriko Ando; Yumi Iwamitsu; Kazuhisa Takemura; Yukiko Saito; Fumio Takada
Journal:  J Genet Couns       Date:  2009-09-25       Impact factor: 2.537

4.  Care of men with cancer-predisposing BRCA variants.

Authors:  Rachel Horton; Paul Pharoah; Judith Hayward; Anneke Lucassen
Journal:  BMJ       Date:  2021-10-14

5.  What's in a Name? Parents' and Healthcare Professionals' Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes.

Authors:  Jacqueline D Hunter; Eden G Robertson; Kate Hetherington; David S Ziegler; Glenn M Marshall; Judy Kirk; Jonathan M Marron; Avram E Denburg; Kristine Barlow-Stewart; Meera Warby; Katherine M Tucker; Brittany M Lee; Tracey A O'Brien; Claire E Wakefield
Journal:  J Pers Med       Date:  2022-08-18
  5 in total

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