Literature DB >> 16439373

Offering results to research participants.

S Danielle MacNeil, Conrad V Fernandez.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research

Mesh：

Year:  2006        PMID： 16439373      PMCID： PMC1352038          DOI： 10.1136/bmj.332.7535.188

Source DB:  PubMed          Journal:  BMJ        ISSN： 0959-8138


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  10 in total

1.  Informing study participants of research results: an ethical imperative.

Authors:  Conrad V Fernandez; Eric Kodish; Charles Weijer
Journal:  IRB       Date:  2003 May-Jun

2.  Informing clinical trial participants about study results.

Authors:  Ann H Partridge; Eric P Winer
Journal:  JAMA       Date:  2002-07-17       Impact factor: 56.272

3.  Do patients participating in clinical trials want to know study results?

Authors:  Ann H Partridge; Harold J Burstein; Rebecca S Gelman; P Kelly Marcom; Eric P Winer
Journal:  J Natl Cancer Inst       Date:  2003-03-19       Impact factor: 13.506

4.  Disclosing individual results of clinical research: implications of respect for participants.

Authors:  David I Shalowitz; Franklin G Miller
Journal:  JAMA       Date:  2005-08-10       Impact factor: 56.272

5.  Informing research participants of research results: analysis of Canadian university based research ethics board policies.

Authors:  S D Macneil; C V Fernandez
Journal:  J Med Ethics       Date:  2006-01       Impact factor: 2.903

6.  Reactions of participants to the results of a randomised controlled trial: exploratory study.

Authors:  C Snowdon; J Garcia; D Elbourne
Journal:  BMJ       Date:  1998-07-04

7.  The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.

Authors:  C V Fernandez; D Santor; C Weijer; C Strahlendorf; A Moghrabi; R Pentz; J Gao; E Kodish
Journal:  Pediatr Blood Cancer       Date:  2007-04       Impact factor: 3.167

8.  Receiving a summary of the results of a trial: qualitative study of participants' views.

Authors:  Mary Dixon-Woods; Clare Jackson; Kate C Windridge; Sara Kenyon
Journal:  BMJ       Date:  2006-01-09

9.  Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting.

Authors:  Heather Rigby; Conrad V Fernandez
Journal:  Blood       Date:  2005-05-05       Impact factor: 22.113

10.  Impact on survivors of retinoblastoma when informed of study results on risk of second cancers.

Authors:  Charlene J Schulz; Mary P Riddle; Heiddis B Valdimirsdottir; David H Abramson; Charles A Sklar
Journal:  Med Pediatr Oncol       Date:  2003-07
  10 in total
  14 in total

1.  Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.

Authors:  Christopher A Cassa; Sarah K Savage; Patrick L Taylor; Robert C Green; Amy L McGuire; Kenneth D Mandl
Journal:  Genome Res       Date:  2012-01-06       Impact factor: 9.043

2.  Critical appraisal guidelines for assessing the quality and impact of user involvement in research.

Authors:  David Wright; Claire Foster; Ziv Amir; Jim Elliott; Roger Wilson
Journal:  Health Expect       Date:  2010-12       Impact factor: 3.377

3.  Offering results to research participants.

Authors:  Eleanor M Dinnett; Moira M B Mungall; Claire Gordon; Elizabeth S Ronald; Allan Gaw
Journal:  BMJ       Date:  2006-03-04

4.  Public perspectives on returning genetics and genomics research results.

Authors:  J O'Daniel; S B Haga
Journal:  Public Health Genomics       Date:  2011-05-07       Impact factor: 2.000

5.  Researcher practices on returning genetic research results.

Authors:  Christopher Heaney; Genevieve Tindall; Joe Lucas; Susanne B Haga
Journal:  Genet Test Mol Biomarkers       Date:  2010-10-12

6.  Research Participants' Attitudes towards Receiving Information on Genetic Susceptibility to Arsenic Toxicity in Rural Bangladesh.

Authors:  Lizeth I Tamayo; Hannah Lin; Alauddin Ahmed; Hasan Shahriar; Rabiul Hasan; Golam Sarwar; Hem Mahbubul Eunus; Habibul Ahsan; Brandon L Pierce
Journal:  Public Health Genomics       Date:  2020-02-18       Impact factor: 2.000

7.  Communicating the results of research: how do participants of a cardiac rehabilitation RCT prefer to be informed?

Authors:  Hasnain Dalal; Jennifer Wingham; Colin Pritchard; Sharon Northey; Philip Evans; Rod S Taylor; John Campbell
Journal:  Health Expect       Date:  2009-11-10       Impact factor: 3.377

8.  Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.

Authors:  E Ormondroyd; C Moynihan; M Watson; C Foster; S Davolls; A Ardern-Jones; R Eeles
Journal:  J Genet Couns       Date:  2007-05-11       Impact factor: 2.537

9.  Public expectations for return of results from large-cohort genetic research.

Authors:  Juli Murphy; Joan Scott; David Kaufman; Gail Geller; Lisa LeRoy; Kathy Hudson
Journal:  Am J Bioeth       Date:  2008-11       Impact factor: 11.229

10.  Response to written feedback of clinical data within a longitudinal study: a qualitative study exploring the ethical implications.

Authors:  Karen Lorimer; Cindy M Gray; Kate Hunt; Sally Wyke; Annie Anderson; Michaela Benzeval
Journal:  BMC Med Res Methodol       Date:  2011-01-27       Impact factor: 4.615
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