Literature DB >> 474624

Genetic counseling: provision and reception of information.

A Lippman-Hand, F C Fraser.   

Abstract

To explore verbal communication between family and counselor, transcripts of 30 tape-recorded or observed genetic counseling sessions are analyzed qualitatively. In half the cases, available data did not allow counselors to give parents a single estimate of the recurrence rate. Moreover, limits on the language available for communicating small probabilities made common the use of nonnumerical statements about a family's chance of having an abnormal child. Counselees processed the factual information they were given, most commonly translating recurrence rates in ways that emphasized the uncertainties associated with them. They tended to view these rates in binary form and requested guidelines for their behavior, indicating uncertainty about how to proceed with reproductive decision-making. The findings suggest that strategies for processing information are an important element influencing parental perspectives on and approaches to the problems created by being at-risk and to possible courses of action.

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Year:  1979        PMID: 474624     DOI: 10.1002/ajmg.1320030202

Source DB:  PubMed          Journal:  Am J Med Genet        ISSN: 0148-7299


  25 in total

1.  Nuance, complexity, and context: qualitative methods in genetic counseling research.

Authors:  Diane Beeson
Journal:  J Genet Couns       Date:  1997-03       Impact factor: 2.537

Review 2.  Nondirectiveness and genetic counseling.

Authors:  Gerhard Wolff; Christine Jung
Journal:  J Genet Couns       Date:  1995-03       Impact factor: 2.537

3.  Genetic counselling: the psychological impact of meeting patients' expectations.

Authors:  S Michie; T M Marteau; M Bobrow
Journal:  J Med Genet       Date:  1997-03       Impact factor: 6.318

4.  A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making.

Authors:  Jan Hodgson; Merle Spriggs
Journal:  J Genet Couns       Date:  2005-04       Impact factor: 2.537

5.  Toward a new conceptualization and operationalization of risk perception within the genetic counseling domain.

Authors:  C G Palmer; F Sainfort
Journal:  J Genet Couns       Date:  1993-12       Impact factor: 2.537

6.  Practice variability in prenatal genetic counseling.

Authors:  E T Matloff
Journal:  J Genet Couns       Date:  1994-09       Impact factor: 2.537

7.  Counseling families with hereditary breast and ovarian cancer: A psychosocial perspective.

Authors:  M P Richards; N Hallowell; J M Green; F Murton; H Statham
Journal:  J Genet Couns       Date:  1995-09       Impact factor: 2.537

8.  Resistance and adherence to the norms of genetic counseling.

Authors:  F Brunger; A Lippman
Journal:  J Genet Couns       Date:  1995-09       Impact factor: 2.537

9.  Explaining Mendelian inheritance in genetic consultations: an IPR study of counselor and counselee experiences.

Authors:  Theodora Gale; Sara Pasalodos-Sanchez; Lauren Kerzin-Storrar; Georgina Hall; Rhona MacLeod
Journal:  J Genet Couns       Date:  2010-01-05       Impact factor: 2.537

10.  Factors that affect the decision to undergo amniocentesis in women with normal Down syndrome screening results: it is all about the age.

Authors:  Julia Grinshpun-Cohen; Talya Miron-Shatz; Liat Ries-Levavi; Elon Pras
Journal:  Health Expect       Date:  2014-05-12       Impact factor: 3.377

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