Literature DB >> 15570240

Ethical issues in the collection, storage, and research use of human biological materials.

Eric M Meslin1, Kimberly A Quaid.   

Abstract

Human biological materials (HBMs) are samples of blood, DNA, organs and tissues commonly obtained during routine surgical procedures or through direct donation by an individual. This article reviews four of the most pressing issues arising from the collection, storage, and use of HBMs in research: current regulations governing research with human subjects, misuse of genetic information, economic factors, and public knowledge.

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction; Legal Approach

Mesh：

Substances：

Year:  2004        PMID： 15570240     DOI： 10.1016/j.lab.2004.08.003

Source DB:  PubMed          Journal:  J Lab Clin Med        ISSN： 0022-2143


  16 in total

1.  Shifting paradigms in health services research ethics. Consent, privacy, and the challenges for IRBs.

Authors:  Eric M Meslin
Journal:  J Gen Intern Med       Date:  2006-03       Impact factor: 5.128

2.  Use of a community-based participatory research approach to assess knowledge, attitudes, and beliefs on biospecimen research among Pacific Islanders.

Authors:  Patchareeya P Kwan; Greta Briand; Cevadne Lee; Jonathan Tana Lepule; Jane Ka'ala Pang; Melanie Sabado; Lola Sablan-Santos; Dorothy Schmidt-Vaivao; Sora Tanjasiri; Vanessa Tui'one; Paula H Palmer
Journal:  Health Promot Pract       Date:  2014-01-06

3.  Contrasting the ethical perspectives of biospecimen research among individuals with familial risk for hereditary cancer and biomedical researchers: implications for researcher training.

Authors:  Gwendolyn P Quinn; Alexis Koskan; Ivana Sehovic; Tuya Pal; Cathy Meade; Clement K Gwede
Journal:  Genet Test Mol Biomarkers       Date:  2014-04-30

4.  Development and validation of the biobanking attitudes and knowledge survey (BANKS).

Authors:  Kristen J Wells; Mariana Arevalo; Cathy D Meade; Clement K Gwede; Gwendolyn P Quinn; John S Luque; Gloria San Miguel; Dale Watson; Rebecca Phillips; Carmen Reyes; Margarita Romo; Jim West; Paul B Jacobsen
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2014-03       Impact factor: 4.254

5.  Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Authors:  Aaron J Goldenberg; Sara Chandros Hull; Jeffrey R Botkin; Benjamin S Wilfond
Journal:  J Pediatr       Date:  2009-10       Impact factor: 4.406

6.  Lessons that newborn screening in the USA can teach us about biobanking and large-scale genetic studies.

Authors:  Beth A Tarini; John D Lantos
Journal:  Per Med       Date:  2013-01-01       Impact factor: 2.512

7.  New phosphate langbeinites, K2MTi(PO4)3 (M = Er, Yb or Y), and an alternative description of the langbeinite framework.

Authors:  Stefan T Norberg
Journal:  Acta Crystallogr B       Date:  2002-09-24

8.  Differences in preferences for models of consent for biobanks between Black and White women.

Authors:  Katherine M Brown; Bettina F Drake; Sarah Gehlert; Leslie E Wolf; James DuBois; Joann Seo; Krista Woodward; Hannah Perkins; Melody S Goodman; Kimberly A Kaphingst
Journal:  J Community Genet       Date:  2015-08-25

9.  Participant characteristics that influence consent for genetic research in a population-based survey: the Baltimore epidemiologic catchment area follow-up.

Authors:  Briana Mezuk; William W Eaton; Peter Zandi
Journal:  Community Genet       Date:  2008-03-26

10.  Investigator Experiences and Attitudes About Research With Biospecimens.

Authors:  Suzanne M Rivera; Aaron Goldenberg; Beth Rosenthal; Heide Aungst; Karen J Maschke; Erin Rothwell; Rebecca A Anderson; Jeffrey Botkin; Steven Joffe
Journal:  J Empir Res Hum Res Ethics       Date:  2015-12       Impact factor: 1.742
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