Literature DB >> 11584901

Psychological impact of genetic counselling and testing in women previously diagnosed with breast cancer.

J Randall1, P Butow, J Kirk, K Tucker.   

Abstract

BACKGROUND: The recent discovery of susceptibility genes relating to breast cancer, BRCA1 and BRCA2, now allows women with breast cancer and a family history of breast/ovarian cancer to undergo genetic testing to identify a causative germ-line mutation. The present study assessed the psychological status over time of women affected by breast cancer requesting genetic testing (cases; n = 32) compared with matched controls (n = 28).
METHODS: Subjects were recruited through two Sydney-based hospitals. Data were collected via questionnaire and telephone interview at baseline, and 2 weeks and 3-6 months following counselling.
RESULTS: Genetic test results were not received by the subjects within the study period. Cases showed a greater increase in knowledge of cancer genetics following counselling compared with controls, and this was maintained over time. Psychological symptoms remained stable over the study period and there were no differences between groups.
CONCLUSIONS: Increased knowledge following genetic counselling was not accompanied by an increase in anxiety or depression. Further assessment will be required in the long term to determine the psychological impact of receiving a genetic test result.

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Year:  2001        PMID: 11584901     DOI: 10.1046/j.1445-5994.2001.00091.x

Source DB:  PubMed          Journal:  Intern Med J        ISSN: 1444-0903            Impact factor:   2.048


  16 in total

1.  Elucidating Genetic Counseling Outcomes from the Perspective of Genetic Counselors.

Authors:  Heather A Zierhut; K M Shannon; D L Cragun; S A Cohen
Journal:  J Genet Couns       Date:  2016-01-19       Impact factor: 2.537

2.  Evaluating genetic counseling: client expectations, psychological adjustment and satisfaction with service.

Authors:  Angela Davey; Kristie Rostant; Karen Harrop; Jack Goldblatt; Peter O'Leary
Journal:  J Genet Couns       Date:  2005-06       Impact factor: 2.537

3.  Psychosocial conditions of women awaiting genetic counseling: a population-based study.

Authors:  Ellen M Mikkelsen; Lone Sunde; Christoffer Johansen; Søren P Johnsen
Journal:  J Genet Couns       Date:  2008-02-07       Impact factor: 2.537

4.  Genetic testing for BRCA1: effects of a randomised study of knowledge provision on interest in testing and long term test uptake; implications for the NICE guidelines.

Authors:  Julia Hall; Susan Gray; Roger A'Hern; Susan Shanley; Maggie Watson; Kathryn Kash; Robert Croyle; Rosalind Eeles
Journal:  Fam Cancer       Date:  2008-08-05       Impact factor: 2.375

5.  Enhanced counselling for women undergoing BRCA1/2 testing: Impact on knowledge and psychological distress-results from a randomised clinical trial.

Authors:  Pagona Roussi; Kerry Anne Sherman; Suzanne Miller; Joanne Buzaglo; Mary Daly; Alan Taylor; Eric Ross; Andrew Godwin
Journal:  Psychol Health       Date:  2010-04

Review 6.  A Rapid Systematic Review of Outcomes Studies in Genetic Counseling.

Authors:  Lisa Madlensky; Angela M Trepanier; Deborah Cragun; Barbara Lerner; Kristen M Shannon; Heather Zierhut
Journal:  J Genet Couns       Date:  2017-02-06       Impact factor: 2.537

7.  Linking genetic counseling content to short-term outcomes in individuals at elevated breast cancer risk.

Authors:  Kimberly M Kelly; Lee Ellington; Nancy Schoenberg; Parul Agarwal; Thomas Jackson; Stephanie Dickinson; Jame Abraham; Electra D Paskett; Howard Leventhal; Michael Andrykowski
Journal:  J Genet Couns       Date:  2014-03-28       Impact factor: 2.537

8.  The decision to test in women receiving genetic counseling for BRCA1 and BRCA2 mutations.

Authors:  Kimberly Kelly; Howard Leventhal; Michael Andrykowski; Deborah Toppmeyer; Judie Much; James Dermody; Monica Marvin; Jill Baran; Marvin Schwalb
Journal:  J Genet Couns       Date:  2004-06       Impact factor: 2.537

9.  Breast Cancer Survivors' Knowledge of Hereditary Breast and Ovarian Cancer following Genetic Counseling: An Exploration of General and Survivor-Specific Knowledge Items.

Authors:  Courtney L Scherr; Juliette Christie; Susan T Vadaparampil
Journal:  Public Health Genomics       Date:  2015-09-22       Impact factor: 2.000

10.  Knowledge about breast cancer risk factors and hereditary breast cancer among early-onset breast cancer survivors.

Authors:  S Miesfeldt; W Cohn; M Ropka; S Jones
Journal:  Fam Cancer       Date:  2001       Impact factor: 2.375

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