Literature DB >> 9481350

Communicating cancer risk information: the challenges of uncertainty.

J L Bottorff1, P A Ratner, J L Johnson, C Y Lovato, S A Joab.   

Abstract

Developments in predictive testing for inherited cancers have focused attention on the accurate and sensitive communication of risk information. Although sharing risk information is often equated with genetic testing, it is important to acknowledge that the need for risk information related to familial cancer is also relevant to those not eligible for, or interested in, testing. Communicating cancer risk information is germane to a number of health professions including physicians, geneticists, genetic counsellors, psychologists, nurses, health educators and social workers. Based on a literature review of 75 research reports, expert opinion papers and clinical protocols, we provide a synthesis of what is known about the communication of cancer risk information and make recommendations for the enhancement of knowledge and practice in the field.

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Mesh:

Year:  1998        PMID: 9481350     DOI: 10.1016/s0738-3991(97)00047-5

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  28 in total

Review 1.  Framework for teaching and learning informed shared decision making.

Authors:  A Towle; W Godolphin
Journal:  BMJ       Date:  1999-09-18

2.  Is informed choice in genetic testing a different breed of informed decision-making? A discussion paper.

Authors:  J Emery
Journal:  Health Expect       Date:  2001-06       Impact factor: 3.377

Review 3.  Effects of communicating individual risks in screening programmes: Cochrane systematic review.

Authors:  Adrian Edwards; Silvana Unigwe; Glyn Elwyn; Kerenza Hood
Journal:  BMJ       Date:  2003-09-27

4.  The prediction of disease risk in genomic medicine.

Authors:  Wayne D Hall; Katherine I Morley; Jayne C Lucke
Journal:  EMBO Rep       Date:  2004-10       Impact factor: 8.807

Review 5.  Re-conceptualizing risk in genetic counseling: implications for clinical practice.

Authors:  Jehannine C Austin
Journal:  J Genet Couns       Date:  2010-01-30       Impact factor: 2.537

Review 6.  How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review.

Authors:  Stephanie Sivell; Glyn Elwyn; Clara L Gaff; Angus J Clarke; Rachel Iredale; Chris Shaw; Joanna Dundon; Hazel Thornton; Adrian Edwards
Journal:  J Genet Couns       Date:  2007-10-30       Impact factor: 2.537

Review 7.  Information processing in the context of genetic risk: implications for genetic-risk communication.

Authors:  Holly Etchegary; Colin Perrier
Journal:  J Genet Couns       Date:  2007-05-01       Impact factor: 2.537

8.  Living with multiple endocrine neoplasia type 1: decent care-insufficient medical and genetic information: a qualitative study of MEN 1 patients in a Swedish hospital.

Authors:  Nina Strømsvik; Karin Nordin; Gunilla Berglund; Lars F Engebretsen; Mats G Hansson; Eva Gjengedal
Journal:  J Genet Couns       Date:  2007-02-03       Impact factor: 2.537

Review 9.  Striking a balance in communicating pharmacogenetic test results: promoting comprehension and minimizing adverse psychological and behavioral response.

Authors:  Susanne B Haga; Rachel Mills; Hayden Bosworth
Journal:  Patient Educ Couns       Date:  2014-06-21

Review 10.  Lay understanding of familial risk of common chronic diseases: a systematic review and synthesis of qualitative research.

Authors:  Fiona M Walter; Jon Emery; Dejana Braithwaite; Theresa M Marteau
Journal:  Ann Fam Med       Date:  2004 Nov-Dec       Impact factor: 5.166

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