Literature DB >> 7955137

Early parental adjustment to visible congenital disfigurement.

E T Bradbury1, J Hewison.   

Abstract

When a baby is born with a visible disfigurement, then parents need to adjust to the loss of the anticipated 'perfect' child and thus accept their baby. The impact of the birth on the parents is described in the context of a measure which identifies areas of potential difficulty. The two groups studied were parents of children with cleft palates and parents of children with congenital hand deficit. A wide range of adjustment was found. There was no significant difference between the two groups in terms of their overall adjustment, but there were individual differences in adjustment which did not relate to the severity or type of anomaly. The only significant variable found to relate to parental adjustment was perceived family support.

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Year:  1994        PMID: 7955137     DOI: 10.1111/j.1365-2214.1994.tb00388.x

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  11 in total

1.  Nasoalveolar molding: prevalence of cleft centers offering NAM and who seeks it.

Authors:  Lacey Sischo; Jenny W Chan; Margot Stein; Christie Smith; John van Aalst; Hillary L Broder
Journal:  Cleft Palate Craniofac J       Date:  2011-07-08

2.  Psychosocial and socioeconomically aspects of mothers having a child with cleft lip and/or palate (CL/P): a pilot-study during the first year of life.

Authors:  Konstanze Scheller; Jasmin Urich; Christian Scheller; Stephan Watzke
Journal:  J Clin Exp Dent       Date:  2020-09-01

Review 3.  Educational paper: parenting a child with a disfiguring condition-how (well) do parents adapt?

Authors:  Willem H Leemreis; Jolanda M E Okkerse; Peter C J de Laat; Gerard C Madern; Léon N A van Adrichem; Frank Verhulst; Arnold P Oranje
Journal:  Eur J Pediatr       Date:  2013-06-18       Impact factor: 3.183

4.  An Evaluation of Health-Related Quality of Life (HRQoL) in a group of 4-7 year-old children with cleft lip and palate.

Authors:  Darius Sagheri; Ulrike Ravens-Sieberer; Bert Braumann; Sylvia von Mackensen
Journal:  J Orofac Orthop       Date:  2009-08-02       Impact factor: 1.938

5.  Psychosocial well-being of parents of children with oral clefts.

Authors:  N Nidey; L M Moreno Uribe; M M Marazita; G L Wehby
Journal:  Child Care Health Dev       Date:  2015-08-25       Impact factor: 2.508

6.  Coping With Cleft: A Conceptual Framework of Caregiver Responses to Nasoalveolar Molding.

Authors:  Lacey Sischo; Hillary L Broder; Ceib Phillips
Journal:  Cleft Palate Craniofac J       Date:  2014-09-16

7.  Clubfoot treatment with Ponseti method-parental distress during plaster casting.

Authors:  Christian Walter; Saskia Sachsenmaier; Markus Wünschel; Martin Teufel; Marco Götze
Journal:  J Orthop Surg Res       Date:  2020-07-17       Impact factor: 2.359

8.  The impact of having a baby with cleft lip and palate on parents and on parent-baby relationship: the first French prospective multicentre study.

Authors:  Bruno Grollemund; Caroline Dissaux; Pascale Gavelle; Carla Pérez Martínez; Jimmy Mullaert; Toni Alfaiate; Antoine Guedeney
Journal:  BMC Pediatr       Date:  2020-05-18       Impact factor: 2.125

9.  Prospective evaluation of parental anxiety related to newborn foot disorder.

Authors:  S T Mahan; P E Miller; C J May; J R Kasser
Journal:  J Child Orthop       Date:  2019-10-01       Impact factor: 1.548

10.  Impact of a child with congenital anomalies on parents (ICCAP) questionnaire; a psychometric analysis.

Authors:  Petra Mazer; Saskia J Gischler; Hans M Koot; Dick Tibboel; Monique van Dijk; Hugo J Duivenvoorden
Journal:  Health Qual Life Outcomes       Date:  2008-11-23       Impact factor: 3.186

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