BACKGROUND AND OBJECTIVE: Cleft lip and palate (CLP) is the most common congenital craniofacial abnormality. The interventions' intensity and psychosocial burden of the cleft may have a lasting impact on the child. The aim of this study was to assess the psychosocial functioning of 4 to 7-year-old children with non-syndromic CLP. MATERIAL AND METHODS: Health-Related Quality of Life (HRQoL) was assessed using the revised German KINDL HRQoL questionnaire, a five-point, 24-Likert-item questionnaire covering six domains (physical well-being, emotional well-being, self-esteem, family life, friends and school). The total score is the sum of all item scores. In addition, a chronic generic module consisting of six items, and a specific parent module consisting of 22 items have been added to the core KINDL questionnaire. Higher scores indicate better HRQoL. All the parents of 4 to 7-year-old children with non-syndromic CLP treated at the interdisciplinary CLP center at Cologne University Hospital were invited to participate in the study. RESULTS: A total of 74 families were contacted, 61 of whom agreed to study participation (82% response). The 61 children (32 boys and 29 girls) had a mean age of 5.39 years. The mean values for the total scale were slightly lower for children with CLP, but when compared, CLP and non-CLP children revealed no statistically significant difference in HRQoL levels. CONCLUSION: This study demonstrated that 4 to 7-year-old children with CLP do not appear to experience major psychosocial problems when compared with their non-CLP peers.
BACKGROUND AND OBJECTIVE:Cleft lip and palate (CLP) is the most common congenital craniofacial abnormality. The interventions' intensity and psychosocial burden of the cleft may have a lasting impact on the child. The aim of this study was to assess the psychosocial functioning of 4 to 7-year-old children with non-syndromicCLP. MATERIAL AND METHODS: Health-Related Quality of Life (HRQoL) was assessed using the revised German KINDL HRQoL questionnaire, a five-point, 24-Likert-item questionnaire covering six domains (physical well-being, emotional well-being, self-esteem, family life, friends and school). The total score is the sum of all item scores. In addition, a chronic generic module consisting of six items, and a specific parent module consisting of 22 items have been added to the core KINDL questionnaire. Higher scores indicate better HRQoL. All the parents of 4 to 7-year-old children with non-syndromicCLP treated at the interdisciplinary CLP center at Cologne University Hospital were invited to participate in the study. RESULTS: A total of 74 families were contacted, 61 of whom agreed to study participation (82% response). The 61 children (32 boys and 29 girls) had a mean age of 5.39 years. The mean values for the total scale were slightly lower for children with CLP, but when compared, CLP and non-CLPchildren revealed no statistically significant difference in HRQoL levels. CONCLUSION: This study demonstrated that 4 to 7-year-old children with CLP do not appear to experience major psychosocial problems when compared with their non-CLP peers.
Authors: W C Shaw; E Dahl; C Asher-McDade; V Brattström; M Mars; J McWilliam; K Mølsted; D A Plint; B Prahl-Andersen; C Roberts Journal: Cleft Palate Craniofac J Date: 1992-09
Authors: Andrea Luiza; Diego Noronha de Góis; Jadson Alípio Santana de Sousa Santos; Rosany Larissa Brito de Oliveira; Luiz Carlos Ferreira da Silva Journal: Int Arch Otorhinolaryngol Date: 2013-10
Authors: Adam D Glener; Alexander C Allori; Ronnie L Shammas; Anna R Carlson; Irene J Pien; Arthur S Aylsworth; Robert Meyer; Luiz Pimenta; Ronald Strauss; Stephanie Watkins; Jeffrey R Marcus Journal: Plast Reconstr Surg Glob Open Date: 2017-06-29