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3.1. Rapidly increased
communication between
HBPC, MFH coordinators,
and caregivers to provide
education and support
| Caregiver, site K: “I think they [VA] did the best they could, absolutely, without, you know, putting themselves and others at risk… and they jumped on it pretty quick… it didn’t take them long to, to see what was going on and react to it as far as communicating with the Veterans via different ways…I think they did an excellent job.” |
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| Caregiver, site A: “You know, of course, if I need anything, she [MFH Coordinator] is always there, just a phone call away, so I get quite a bit of support actually from the VA, which I am very glad and thankful for…I have a very good team that works with me and communication is very good… their support’s awesome.” |
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| Coordinator, site H: “When the travel was restricted, to keep up with the caregivers, I started doing a weekly caregiver call just to touch base with them, and kind of, like a support group, so they could network with other caregivers on the phone.” |
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3.11. Providing caregivers education on COVID-19
| Coordinator, site J: “The whole team, like the HBPC team… we would discuss the challenges of the homes, and how this one was particularly more resistant to education. And so, I worked with the nurse primarily, the case manager, who was very involved, and we made a plan like, routine education, framing it in a way that [was] to their level… they’re high school graduates. They’ve done primarily like, blue collar work, and they’ve been caregivers for many years, so, it’s not like they didn’t know what they were doing, but it was… we tried to provide the education in the context of where they were coming from.” |
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| Caregiver, Site B: “In the beginning… we’ve got an area coordinator. She calls and talks to the guys, we’ve got a… kind of like a counselor talks to them on the phone. We’ve got a [HBPC] psychologist that will call and talk to any of them, so I’ve got a great support system, and it’s just we’ve transferred it from being on, in-person, to everybody being online.” |
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3.2. A shared commitment to prioritizing Veterans’ safety
| HBPC Provider, Site C: “Our caregivers are top notch and, and if they had any concerns at all, they would give us a call, which we encouraged… they were prepared for anything.” |
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3.2.1. Realities of lack of respite and relief care for caregivers
| Caregiver, Site D: “We could not do respite anymore for them [Veterans] and we had to be careful about who come into our home and people had to wear masks and stuff… so every time they [HHA] come, we have to do their temperature and stuff like that. So, they made sure that they put the foundation in on what we had to do to keep the guys safe…It was, it was a little stressful at first. I’m not gonna lie.” |
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| HBPC Provider, Site E: “Due to COVID, we are seeing a reduction in caregivers [HHA] that, that want to come to the home. They, we are having issues finding enough aides to work with our Veterans and that’s for several reasons… we contract with home health agencies… and we are finding that there seems to be a shortage of caregivers now because of COVID. Some of them, you know, aides, they don’t want to work because of the risk of COVID.” |
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| Caregiver, Site L: “We [MFH caregivers] all network together, so, what I did when I had the two weeks in December, I had to take them [Veterans] to get COVID test at the VA and it was a drive-thru, and they gave us a result two hours later and once they were OK, then I packed them up, and took [them], and then the caregiver that they were going to had to have a COVID test and whoever lives in that house had to have a COVID test… and I took them, and they stayed two weeks, and then you go back and pick them up two weeks later.” |
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3.2.2. Managing day-to-day changes to ensure safety, and continuing to admit Veterans to MFHs
| Caregiver, Site J: “Before the pandemic, it was easy. I didn’t have any fear. I didn’t have any struggles. Then, after that [the pandemic] came in, I had to start thinking differently about where to take them [Veterans], what to do with them and who to let in the house and make sure everybody washed their hands a thousand times a day, just, just to keep them safe, it is a, it has been a total change, of course, not just for me but for everybody else, it’s been a total change for our habits and our approach to things and what we do during the day.” |
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| Caregiver, Site B: “We thought it was gonna be temporary, so in the beginning, right off the bat, everybody was pretty good with it… cause nobody wanted to get sick. You know, they were all capable of understanding and… if one of them got sick, then the rest of them could get sick and anybody could die from it… it’s only gotten rougher as it’s gotten on, and they can’t see the family.” |
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| Caregiver, Site K: “Visitors could not come for a while because that was our state governor that ruled that. And then, once that was released then visitors were supposed to, you know, wear masks and social distancing type thing.” |
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| Caregiver, Site L: “It’s kind of hard because you’re having to make sure that whoever comes in the house doesn’t bring anything and when we go somewhere that we’re not gonna be exposed to it or vice versa… but were hanging in there, and they [Veterans] understand the reason why we don’t go as much and why we don’t let as many people come in the home because we just don’t want anyone sick with the virus.” |
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| Coordinator, Site F: “They [Veterans’ families] know the [COVID-19] numbers of going into assisted living or to a nursing home, their numbers are way higher, you know, I don’t know what the numbers are throughout the United States for Medical Foster Homes, but I think it’s kind of low as far as the COVID positive tests that have been received in the Medical Foster Home versus the nursing home. So, most families are all in for the Medical Foster Home program versus placing them in a nursing home, and then that would stop them from visiting the Veteran. If they’re in a nursing home, they can’t go in and visit. So, I think that’s one of the things that they all, you know, took into consideration when placing them into a Medical Foster Home.” |
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3.3. Caregivers navigating technological challenges as VA introduced and expanded telehealth for care and oversight
| HBPC Provider, Site K: “There is a great dependence of the Veterans on the Medical Foster Home caregivers to navigate and utilize the technology because they [MFH Veteran], for the most part, cannot do that. I have some that can, but I would say 75% of my Medical Foster Home patients cannot navigate that technology independently.” |
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| Caregiver, Site K: “VA has a special…their own type of video chat type thing…where you actually can see the, your doctor or your dietician or your psychiatrist or whichever, you know, provider it is face-to-face, and you can communicate and that way they can put eyes on the Veteran and ask questions, interview them, so that’s been, that’s been a really, a really good help.” |
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| HBPC Provider; Site J: “I think one of the benefits of the Medical Foster Home program is obviously the caregiver, and we’ve been able to set all of our caregivers up with the Video Veterans Connection service, so we’re able to see our Veterans through the Video Connect program. So, we’re able to see them more safely without exposing them and the families to possible infection.” |
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3.3.2. Navigating telehealth challenges
| Coordinator, Site C: “A lot of my Veterans actually get sort of angry, especially with the mental health side. The mental health folks are very strict on absolutely no in-clinic visits… because they’re [the Veteran] like ‘I need to see a mental health provider face-to-face. I don’t like doing this video connect’, plus it doesn’t work sometimes.” |
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| Caregiver, Site A: “I was more happier when we was more face-to-face. I thought we could communicate more. It is OK that way [telehealth care], but I’m the kind of person, like, hands-on to like to be in the, in the situation to understand it more.” |
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3.4.1. Providing initial vaccine information to ease concern
| Coordinator, Site K: “That they have decided locally is that Veterans that participate in Home Based Primary Care are in higher need than the normal population, so we’re really first in line along with folks in CLC [VA nursing homes known as Community Living Centers]… so we have already started scheduling for our Veterans to go and get those vaccines started.” |
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| Coordinator, Site H: “Once I know for sure what our VA’s plan is going to be moving forward and then how rapidly we will get it distributed to our patients in our Medical Foster Home, I am prepared. I took an extra training yesterday on the TMS [VA’s Training Management System] specifically about how to communicate regarding the vaccine to caregivers and Veterans, so I got more tips and tools from that training as far as… having the open lines of communication, discussing maybe what their perceptions of vaccines are and where they’re at with their knowledge base, and then try to enhance their knowledge of… the COVID vaccine. I’m trying to get myself prepared from that standpoint to be the communicator and the educator for when we do start inoculating our Veterans.” |
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3.4.2. Facilitators and barriers to vaccine distribution
| Coordinator, Site N: “I think the big question now is trying to figure out how to get the Medical Foster Home Veterans that are unable to get out to the site…our facility is only doing the vaccine through the drive-thru site… in the hospital, and so a lot of our caregivers… can’t provide that service getting them in there just because of limited caregiving, you know, limited support caregivers or being able to safely transport due to mobility issues with the Veteran.” |
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| Caregiver, Site G: “We would have to drive 60 miles to VA facility. We were wondering if it would be possible to just take [the] Veteran to a local Walgreens instead of taking him to VA. Also, a [family] caregiver appears to have some hesitancy about having the Veteran take it [the COVID-19 vaccine] himself. Not sure how the Veteran really feels about taking it because of his dementia, he sometimes seems to understand what is being asked and other times he seems like he doesn’t care.” |
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3.4.3. Vaccine receptivity and intention
| Coordinator, Site M: “I feel like the caregivers would just… allow the Veteran to have autonomy in terms if the Veteran wants to get it, but since, you know, we are a pretty small program, I would think that the caregivers are wanting to do whatever they gotta do to kind of get things back to normal.” |
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| Caregiver, Site J: “They don’t know how long it will last [the vaccine], is it a two-week thing, will it keep you from having the virus for two weeks or do you have to have [the vaccine] again… Those are the questions that I hear but I have not heard anything more than that.” |
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3.5. Veterans and caregivers relied on relationships with fellow Veterans and caregivers to combat increased social isolation
| Caregiver, Site J: “First of all being at home, I’m a social person, I like to hug, I like to talk, I like friends, I like to be around other people. And one of my clients [Veterans] is like that, also. When the pandemic set in, and we couldn’t go anywhere and you couldn’t have anybody in the house, we spent a lot more time talking about the past, what he can remember and over and over again, I hear about the same things and he would listen to what I would have to say about my memories of things that had occurred in my family and stuff. He’s very social, and it was, it was good for both of us… It kept us both active.” |
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| HBPC Provider, Site J: “It was nice because, we might have one caregiver that would say ‘Hey, you know, this is kind of what we’re facing,’ and then another caregiver may say, ‘well, you know, we faced that, too, and this is kind of what we’ve done to address that or these are some ideas that, you know, we’ve tried’ and they’ve really helped, you know, helped at my house.” |
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| Caregiver, Site D: “It’s been a little stressful in certain areas because we wouldn’t be able to go a lot of places, and I wasn’t able to take a vacation, and so, it’s like 24/7 you’re with the Vets all the time and you’re different with, you’re dealing with different moods and because they’re tired, too. So, what I would do is like I go outside a lot with them and do different things, so, I would put them in the van, and we would ride to the park, we would get out and have lunch to kind of diffuse the situation of the being depressed or tired or the same situation day after day.” |