Literature DB >> 35721389

Testing a Wellness Indicators Measure for People with Intellectual and Developmental Disabilitiesa.

Matthew Bogenschutz1, Michael Broda1, Sarah Lineberry1, Parthenia Dinora1, Seb Prohn1.   

Abstract

Background and Purpose: People with intellectual and developmental disabilities (IDD) often have health and wellness issues that are not as good as people without disabilities. States are required to monitor health and wellness for people with IDD who use many disability services. However, there are few ways to monitor wellness between states or at different points in time. In this study, we share a new model that states may use to monitor wellness of people with IDD.
Methods: We used data from a survey called the National Core Indicators (NCI) to develop this model. First, we developed the model using our state's data. Then, after we found a model that worked well, we tested that model using the National Core Indicators from the entire U.S.
Results: Our final model worked well in both our state NCI data and the national NCI data. This is important because policies at both levels can affect the services that people with disabilities can use. Our model had three parts: heart health, mental health, and behavioral wellness. These are described more in the paper. We also used statistics to test some factors that might predict outcomes related to heart health, mental health, and behavioral wellness. Age, sex, where someone lives, and level of intellectual disability were all good predictors of all three categories of wellness that we studied. Implications: The model of wellness that we developed worked well but should be tested using data from other individual states. It is very important to know about health and wellness right now since the services people with disabilities can use are changing in many states. We think our model can help planners and advocates understand how services affect wellness in a way that is easy to compare from state to state and at different points in time.

Entities:  

Year:  2021        PMID: 35721389      PMCID: PMC9201682     

Source DB:  PubMed          Journal:  Dev Disabil Netw J        ISSN: 2694-1104


  27 in total

1.  Mental health for people with intellectual disability: the impact of stress and social support.

Authors:  Haleigh M Scott; Susan M Havercamp
Journal:  Am J Intellect Dev Disabil       Date:  2014-11

2.  Self-management of health by people with intellectual and developmental disabilities.

Authors:  Carli Friedman; Mary C Rizzolo; Natasha A Spassiani
Journal:  J Appl Res Intellect Disabil       Date:  2018-12-21

Review 3.  The purported association between depression, aggression, and self-injury in people with intellectual disability: a critical review of the literature.

Authors:  Louise Ellen Davies; Chris Oliver
Journal:  Am J Intellect Dev Disabil       Date:  2014-09

Review 4.  The dilemma of measuring perceived health status in the context of disability.

Authors:  Gloria L Krahn; Glenn Fujiura; Charles E Drum; Bradley J Cardinal; Margaret A Nosek
Journal:  Disabil Health J       Date:  2009-03-20       Impact factor: 2.554

5.  Factors associated with meeting physical activity guidelines by adults with intellectual and developmental disabilities.

Authors:  Roger J Stancliffe; Lynda L Anderson
Journal:  Res Dev Disabil       Date:  2017-01-16

6.  Testing a Wellness Indicators Measure for People with Intellectual and Developmental Disabilitiesa.

Authors:  Matthew Bogenschutz; Michael Broda; Sarah Lineberry; Parthenia Dinora; Seb Prohn
Journal:  Dev Disabil Netw J       Date:  2021

7.  Identifying Predictors for Enhanced Outcomes for People With Intellectual and Developmental Disabilities.

Authors:  Parthenia Dinora; Matthew Bogenschutz; Michael Broda
Journal:  Intellect Dev Disabil       Date:  2020-04

8.  Psychotropic Medication Use for Adults with Autism Spectrum Disorder who Receive Services and Supports Through Adult Developmental Disability Services in the United States.

Authors:  Amy Esler; Amy Hewitt; Jennifer Hall-Lande; Sandra L Pettingell; James Houseworth
Journal:  J Autism Dev Disord       Date:  2019-06

9.  Health Services Use and Costs for Americans With Intellectual and Developmental Disabilities: A National Analysis.

Authors:  Glenn T Fujiura; Henan Li; Sandy Magaña
Journal:  Intellect Dev Disabil       Date:  2018-04

Review 10.  The state of the science of health and wellness for adults with intellectual and developmental disabilities.

Authors:  Lynda Lahti Anderson; Kathy Humphries; Suzanne McDermott; Beth Marks; Jasmina Sisirak; Jasmina Sisarak; Sheryl Larson
Journal:  Intellect Dev Disabil       Date:  2013-10
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  2 in total

1.  Testing a Wellness Indicators Measure for People with Intellectual and Developmental Disabilitiesa.

Authors:  Matthew Bogenschutz; Michael Broda; Sarah Lineberry; Parthenia Dinora; Seb Prohn
Journal:  Dev Disabil Netw J       Date:  2021

2.  Promising Practices in the Frontiers of Quality Outcome Measurement for Intellectual and Developmental Disability Services.

Authors:  Matthew Bogenschutz; Parthenia Dinora; Sarah Lineberry; Seb Prohn; Michael Broda; Angela West
Journal:  Front Rehabil Sci       Date:  2022
  2 in total

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