Literature DB >> 24303825

The state of the science of health and wellness for adults with intellectual and developmental disabilities.

Lynda Lahti Anderson, Kathy Humphries, Suzanne McDermott, Beth Marks, Jasmina Sisirak, Jasmina Sisarak, Sheryl Larson.   

Abstract

Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, inadequate preparation of health care providers to meet their needs, the social determinants of health (e.g., poverty, race and gender), and the failure to include people with IDD in public health efforts and other prevention activities. Over the past decade, a greater effort has been made to both identify and begin to address myriad health disparities experienced by people with IDD through a variety of activities including programs that address health lifestyles and greater attention to the training of health care providers. Gaps in the literature include the lack of intervention trials, replications of successful approaches, and data that allow for better comparisons between people with IDD and without IDD living in the same communities. Implications for future research needed to reduce health disparities for people with IDD include: better monitoring and treatment for chronic conditions common in the general population that are also experienced by people with IDD, an enhanced understanding of how to promote health among those in the IDD population who are aging, addressing the health needs of people with IDD who are not part of the disability service system, developing a better understanding of how to include people with IDD in health and wellness programs, and improving methods for addressing the health care needs of members of this group in an efficient and cost-effective manner, either through better access to general medical care or specialized programs.

Entities:  

Mesh:

Year:  2013        PMID: 24303825      PMCID: PMC4677669          DOI: 10.1352/1934-9556-51.5.385

Source DB:  PubMed          Journal:  Intellect Dev Disabil        ISSN: 1934-9491


  67 in total

Review 1.  The epidemiology of mental retardation: challenges and opportunities in the new millennium.

Authors:  Helen Leonard; Xingyan Wen
Journal:  Ment Retard Dev Disabil Res Rev       Date:  2002

2.  Make measurable what is not so: national monitoring of the status of persons with intellectual disability.

Authors:  Glenn T Fujiura; Violet Rutkowski-Kmitta; Randall Owen
Journal:  J Intellect Dev Disabil       Date:  2010-12

3.  Left behind: health services and people with severe disabilities.

Authors:  Arnold Birenbaum
Journal:  Intellect Dev Disabil       Date:  2009-02

4.  Perspectives on health care of adults with developmental disabilities.

Authors:  Susan L Parish; Kathryn Moss; Erica L Richman
Journal:  Intellect Dev Disabil       Date:  2008-12

5.  Oral health status of people with intellectual disabilities in the southeastern United States.

Authors:  Maureen L Pezzementi; Monica A Fisher
Journal:  J Am Dent Assoc       Date:  2005-07       Impact factor: 3.634

6.  Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States.

Authors:  Amanda Reichard; Hayley Stolzle; Michael H Fox
Journal:  Disabil Health J       Date:  2010-07-14       Impact factor: 2.554

7.  Overweight and obesity among adults with intellectual disabilities who use intellectual disability/developmental disability services in 20 U.S. States.

Authors:  Roger J Stancliffe; K Charlie Lakin; Sheryl Larson; Joshua Engler; Julie Bershadsky; Sarah Taub; Jon Fortune; Renata Ticha
Journal:  Am J Intellect Dev Disabil       Date:  2011-11

8.  Neighborhoods and health.

Authors:  Ana V Diez Roux; Christina Mair
Journal:  Ann N Y Acad Sci       Date:  2010-02       Impact factor: 5.691

9.  Prevalence of overweight in children with developmental disorders in the continuous national health and nutrition examination survey (NHANES) 1999-2002.

Authors:  Linda G Bandini; Carol Curtin; Charles Hamad; David J Tybor; Aviva Must
Journal:  J Pediatr       Date:  2005-06       Impact factor: 4.406

10.  Electronic Health Record Analysis of the Primary Care of Adults with Intellectual and Other Developmental Disabilities.

Authors:  Carl Tyler; Sarah Schramm; Matthew Karafa; Anne S Tang; Anil Jain
Journal:  J Policy Pract Intellect Disabil       Date:  2010-09
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  29 in total

1.  Birth outcomes among US women with intellectual and developmental disabilities.

Authors:  Ilhom Akobirshoev; Susan L Parish; Monika Mitra; Eliana Rosenthal
Journal:  Disabil Health J       Date:  2017-04-06       Impact factor: 2.554

2.  Postpartum Health Care Among Women With Intellectual and Developmental Disabilities.

Authors:  Karen M Clements; Monika Mitra; Jianying Zhang; Susan L Parish
Journal:  Am J Prev Med       Date:  2020-06-27       Impact factor: 5.043

3.  Effectiveness of a HealthMessages Peer-to-Peer Program for People With Intellectual and Developmental Disabilities.

Authors:  Beth Marks; Jasmina Sisirak; Rubia Magallanes; Kristin Krok; Dina Donohue-Chase
Journal:  Intellect Dev Disabil       Date:  2019-06

4.  What adults with intellectual and developmental disabilities say they need to access annual health examinations: System navigation support and person-centred care.

Authors:  Lynne A Potvin; Casey Fulford; Hélène Ouellette-Kuntz; Virginie Cobigo
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

Review 5.  Post-graduate Medical Training in Intellectual and Developmental Disabilities: a Systematic Review.

Authors:  Zachary Adirim; Sanjeev Sockalingam; Anupam Thakur
Journal:  Acad Psychiatry       Date:  2021-01-12

6.  A longitudinal assessment of adherence to breast and cervical cancer screening recommendations among women with and without intellectual disability.

Authors:  Xinling Xu; Suzanne W McDermott; Joshua R Mann; James W Hardin; Chelsea B Deroche; Dianna D Carroll; Elizabeth A Courtney-Long
Journal:  Prev Med       Date:  2017-04-25       Impact factor: 4.018

Review 7.  Clinical Utility of Multisensory Environments for People With Intellectual and Developmental Disabilities: A Scoping Review.

Authors:  Lauren Breslin; Nichole Guerra; Lori Ganz; David Ervin
Journal:  Am J Occup Ther       Date:  2020 Jan/Feb

8.  Testing a Wellness Indicators Measure for People with Intellectual and Developmental Disabilitiesa.

Authors:  Matthew Bogenschutz; Michael Broda; Sarah Lineberry; Parthenia Dinora; Seb Prohn
Journal:  Dev Disabil Netw J       Date:  2021

9.  Health Conditions and Functional Status in Adults with Autism: A Cross-Sectional Evaluation.

Authors:  Robert J Fortuna; Laura Robinson; Tristram H Smith; Jon Meccarello; Beth Bullen; Kathryn Nobis; Philip W Davidson
Journal:  J Gen Intern Med       Date:  2015-09-11       Impact factor: 5.128

10.  Expanding Public Health Surveillance for People with Intellectual and Developmental Disabilities in the United States.

Authors:  Michael H Fox; Alexandra Bonardi; Gloria L Krahn
Journal:  Int Rev Res Dev Disabil       Date:  2015
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