| Literature DB >> 34974414 |
Haley M LaMonica1, Frank Iorfino1, Grace Yeeun Lee1, Sarah Piper1, Jo-An Occhipinti1, Tracey A Davenport1, Shane Cross1, Alyssa Milton1, Laura Ospina-Pinillos1, Lisa Whittle1, Shelley C Rowe1, Mitchell Dowling1, Elizabeth Stewart1, Antonia Ottavio1,2, Samuel Hockey1, Vanessa Wan Sze Cheng1, Jane Burns2, Elizabeth M Scott1, Ian B Hickie1.
Abstract
BACKGROUND: Globally, there are fundamental shortcomings in mental health care systems, including restricted access, siloed services, interventions that are poorly matched to service users' needs, underuse of personal outcome monitoring to track progress, exclusion of family and carers, and suboptimal experiences of care. Health information technologies (HITs) hold great potential to improve these aspects that underpin the enhanced quality of mental health care.Entities:
Keywords: co-design; health care reform; mental health; mobile phone; participatory research; stakeholder participation; technology
Year: 2022 PMID: 34974414 PMCID: PMC8943544 DOI: 10.2196/33060
Source DB: PubMed Journal: JMIR Ment Health ISSN: 2368-7959
Figure 1Example dashboard from the InnoWell Platform.
Figure 2Example explanation of a health domain and assessment result from the InnoWell Platform.
Figure 3Example nonclinical care options from the InnoWell Platform.
Figure 4A summary of the methodologies and key outcomes from phase II of Project Synergy [14-16,18-19,21-22,23]. NSW: New South Wales.
Figure 5Research methodologies and ethics approvals underpinning Project Synergy. HREC: human research ethics committee; NSW: New South Wales; NSLHD: Northern Sydney Local Health District.
Summary of Project Synergy co-design activities.
| Population | Service partner | Research aim | Co-design activities |
| Current and ex-serving Australian Defence Force personnel and their families | Open Arms–Veterans & Families Counselling Sydney and Lismore, NSWa | Co-design, develop, implement, and evaluate the InnoWell Platform to achieve improved outcomes |
4 participatory design workshops (n=21)b 2 service mapping workshops (n=21) 18 user testing sessions |
| Young people aged 12-25 years residing in the NSW North Coast | NSW North Coast | Enhance quality and timeliness of mental health services for NSW North Coast youth |
11 participatory design workshops (n=48) 9 service mapping workshops (n=46) 30 user testing sessions |
| Australians with eating disorders and body image issues | The Butterfly Foundation’s National Helpline | Evaluate, prototype, and configure a digital system for a nonconventional (web-based, phone, and email) service providing support for eating disorders and body image issues through the use of co-design processes |
6 participatory design workshops (n=47) 2 service mapping workshops (n=12) 3 user testing sessions |
| NSW North Coast residents | Connect to Wellbeing North Coast NSW (administered by Neami National) | Configure and implement the InnoWell Platform to support community-based primary intake and referrals across the North Coast NSW Primary Health Network |
1 user testing sessionc |
| Service users in a community general practice setting | Kildare Road Medical Centre, Blacktown, NSW | Configure and implement the InnoWell Platform to support Kildare Road Medical Centre’s delivery of mental health care |
2 service mapping workshops (n=6)c |
| Older adults (aged ≥50 years) | N/Ad | Co-design and configure the InnoWell Platform to evaluate the accessibility, engagement, and appropriateness of the technology for an older age group |
4 participatory design workshops (n=21) 19 older adults consented to provide user feedback on the InnoWell Platform after using it for up to 90 days |
| Younger children and families | N/A | Co-design a configuration of the InnoWell Platform that is appropriate for younger children and their families |
3 participatory design workshops (n=15) |
aNSW: New South Wales.
bA total of 9 cofacilitated participatory design workshops, including 2 service mapping workshops, were conducted in 2017 with current and former military personnel and their families as well as Open Arms’ health professionals, service managers, and administrators from Sydney, Canberra, Maitland, Singleton, and Port Stephens [28]. Importantly, the outcomes from this collaboration served as the basis for the configuration of the InnoWell Platform with supplementary participatory workshops being conducted in 2018 specifically as part of Project Synergy.
cFurther information informing the service-specific configurations and user acceptance of the InnoWell Platform was captured during routine project management meetings with each of the participating services.
dN/A: not applicable.
Key insights learned through participatory design workshops.
| Key insights | Specific findings |
| Overwhelming support for integrating HITsa into mental health care across populations and service settings [ |
The results of a lived-experience-led national community consultation program showed considerable service user interest in and experience with digital health solutions. On the basis of data collected through 5 digital engagements, 8 face-to-face consultations, and 2 community engagement events, 81% of respondents indicated they were comfortable sharing mental health experiences on the web and 94% had already done so [ |
| Service users and carers further emphasized the importance of being provided reputable (academic, government, or nonprofit mental health organization) care options and information [ |
The results of 4 participatory design workshops conducted with 21 community dwelling older adults (aged ≥50 years), including carers, highlighted the need for information delivered via HITs to come from a credible source to be perceived as trustworthy and reliable [ |
| Concerns with data privacy and security of personal and health information were prevalent across all service user groups [ |
Young people emphasized the need for privacy information to be readily available to allow a user to be completely comfortable when entering sensitive information into a HIT (“Always ask, could this site be more secure with my information.” [Member of the headspace Youth Reference Group, participatory design workshop in Wollongong, August 30, 2018]). Given the ubiquity of technology use by young people, some health professionals questioned whether they would be suitably concerned about sharing personal data (“Young people may be so used to this as they have grown up with it that they would not see sharing personal data as a major barrier to accessing a health and wellbeing e-tool” [Health Professional, participatory design workshop in Coffs Harbour, December 4, 2018]). Members of the military community emphasized the need to be fully transparent in relation to limitations to confidentiality and data sharing (“Data security needs to be highlighted, particularly that the information is not shared with DVA [Department of Veterans’ Affairs].” [Veteran, participatory design workshop, August 24, 2017]) [ Older adults indicated that data privacy and security risks are a primary barrier to the use of HITs (“Anything on the Internet I just don’t really trust, I don’t want to put my information of any kind out there.” [Older Adult, participatory design workshop in Sydney October 9, 2019]) [ |
| There is a gap in what is expressed during the co-design process and actual implementation; often, clinicians are very active and willing supporters during the co-design process, however not in practice [ |
The 48 participants, including young people, supportive others, health professionals, service managers, and administrators, from 10 participatory design workshops with headspace services in the North Coast PHNb, recognized the potential for HITs to improve service quality and efficiency; however, a qualitative review of 70 fortnightly logs completed by on-the-ground implementation officers working across 5 headspace centers revealed persistent resistance to change [ |
aHIT: health information technology.
bPHN: Primary Health Network.
Figure 6Preclinic triage system enabled by the InnoWell Platform (as originally published by Davenport et al [45]).
Impact evaluation outcomes.
| Key outcome | Specific findings |
| Staff across multiple service settings consistently support the use of technology as part of their work; however, they also list digital literacy of both service users and health professionals as well as service readiness for change as potential barriers to widespread adoption [ |
A total of 81% (38/47) of health professionals and service administrators reported benefits of using technology as part of their work. Most staff (26/45, 57%) questioned whether their service users’ digital literacy was sufficient to use technology as part of their mental health care; however, of potential users, young people, who were considered digital natives, were expected to be most likely to access and adopt technologies as part of care. Although approximately two-thirds (27/45, 60%) of staff indicated that their service’s policies support the belief that technologies can improve service user outcomes by providing more efficient and effective care, only 44% (20/45) of service staff indicated that their service was ready to implement new technologies to enhance mental health care. Furthermore, only 53% (24/45) of staff reported that their service actively encourages the integration of technologies as part of standard care. |
| There must be organizational leadership (PHNa-level decision-making) as well as a local champion at the service level to support a successful implementation [ |
Qualitative feedback was collected from 40 staff from across 5 headspace centers in the Central Eastern PHN who were involved in implementing a prototype of a web-based mental health clinic, known as the Mental Health eClinic. Their feedback highlighted the significant benefit of both (1) high-level endorsement and coordination at the PHN level and 2) the presence and engagement of on-the-ground leadership to assist in solving day-to-day implementation challenges [ Qualitative analysis of 70 logs completed by on-the-ground implementation officers at 5 headspace services implementing the InnoWell Platform showed a consistent interest among service staff in implementing the InnoWell Platform as a demand management tool and to provide better care; however, a lack of strong and deliberate leadership was highlighted as a barrier to change. Notably, this finding did not change appreciably in response to COVID-19 [ To facilitate a successful implementation, service leadership need to establish clear strategies to mitigate potential barriers to implementation identified by on-the-ground staff responsible for driving the implementation [ |
| Health professionals are often confident about the effectiveness of their current service models (ie, business as usual) and express reluctance to change their usual practices [ |
A primary implementation barrier identified by health professionals relates to concerns that digital tools could replace clinical expertise; however, all participants denied this as a personal concern. |
aPHN: Primary Health Network.
Figure 7Critical learnings from Project Synergy [Figure 7 [4,6,15,19-20,22,27-28,31,36-38,43,53-59]].