Literature DB >> 34708492

Using ethnodrama to support parents in sense-making after prenatal or neonatal diagnosis of a child's disabling condition.

Jacqueline Eaton1, Sydney Cheek-O'Donnell2, Erin Johnson3, Lauren Clark4.   

Abstract

BACKGROUND/AIMS: This study describes the process of developing video vignettes to meet the parent-expressed need for balanced, meaningful messages about what life may be like for parents who have a child with a disability. Each vignette teaches a general audience salient concepts derived from a grounded theory of the parental process of Rescuing Hope after a child's diagnosis with a developmental disability.
METHODS: Using ethnodrama methodology, we completed a secondary analysis of 21 interviews with parents who learned of their child's diagnosis of Down syndrome.
RESULTS: Understanding the grounded theory of Rescuing Hope has the potential to help parents construct meaning and purpose as they adapt to parenting a child with a disability. DISCUSSION: The short dramatic vignettes may be placed across platforms, settings and partnerships, with relevance for teachers, clinicians, family members, caregivers. Designed for wide distribution, video vignettes may reach the people who most need sense-making support.
© 2021 John Wiley & Sons Ltd.

Entities:  

Keywords:  Down syndrome; ethnodrama; parenting; sense-making; video vignettes

Mesh:

Year:  2021        PMID: 34708492      PMCID: PMC8688233          DOI: 10.1111/jar.12945

Source DB:  PubMed          Journal:  J Appl Res Intellect Disabil        ISSN: 1360-2322


  16 in total

1.  Inside 'Inside View': reflections on stimulating debate and engagement through a multimedia live theatre production on the dilemmas and issues of pre-natal screening policy and practice.

Authors:  Gillian Lewando Hundt; Claudette Bryanston; Pam Lowe; Saul Cross; Jane Sandall; Kevin Spencer
Journal:  Health Expect       Date:  2011-03       Impact factor: 3.377

Review 2.  Staging data: theatre as a tool for analysis and knowledge transfer in health research.

Authors:  Kate Rossiter; Pia Kontos; Angela Colantonio; Julie Gilbert; Julia Gray; Michelle Keightley
Journal:  Soc Sci Med       Date:  2007-09-11       Impact factor: 4.634

3.  The feasibility of ethnodrama as intervention to highlight late-life potential for nursing students and older adults.

Authors:  Jacqueline Eaton
Journal:  Gerontol Geriatr Educ       Date:  2015-02-11

4.  Creating an Ethnodrama to Catalyze Dialogue in Home-Based Dementia Care.

Authors:  Mark Speechley; Ryan T DeForge; Catherine Ward-Griffin; Nicole M Marlatt; Iris Gutmanis
Journal:  Qual Health Res       Date:  2015-11

5.  Beyond the Page: A Process Review of Using Ethnodrama to Disseminate Research Findings.

Authors:  Jamilah Taylor; Emily Namey; Annette Carrington Johnson; Greg Guest
Journal:  J Health Commun       Date:  2017-05-09

6.  Portrait of a Caregiver: Ethnodrama Development and Its Influence on Caregiver Well-Being.

Authors:  Jacqueline Eaton; Nancy Madsen-Wilkerson
Journal:  Gerontologist       Date:  2020-08-14

7.  What is a "balanced" description? Insight from parents of individuals with down syndrome.

Authors:  Catriona Hippman; Angela Inglis; Jehannine Austin
Journal:  J Genet Couns       Date:  2011-12-20       Impact factor: 2.537

8.  Family Sense-Making After a Down Syndrome Diagnosis.

Authors:  Lauren Clark; Heather E Canary; Kyle McDougle; Rebekah Perkins; Ruth Tadesse; Avery E Holton
Journal:  Qual Health Res       Date:  2020-07-03

9.  Conducting secondary analysis of qualitative data: Should we, can we, and how?

Authors:  Nicole Ruggiano; Tam E Perry
Journal:  Qual Soc Work       Date:  2017-04-14

10.  Mothers of children with Down syndrome reflect on their postnatal support.

Authors:  Brian Skotko
Journal:  Pediatrics       Date:  2005-01       Impact factor: 7.124

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