Literature DB >> 34591265

A Communication Perspective on What Patient Advisory Boards Do: Action-Implicative Discourse Analysis and Negotiating Advice.

Evelyn Y Ho1,2,3, Robert R Agne4, Trilce Santana5, Nicole Thompson5, Genevieve McClendon6, Eliza Ng6, Shannette Merrick6,7, Felicia Gonzalez6, Tenaya Smith6, Kathleen Drewke6, Amalia Gutierrez6, Gary Floyd6, Maria T Chao8,5,9.   

Abstract

Stakeholder advisory boards are recognized as an essential and useful part of patient-centered research. However, such engagement can involve exchanges of diverse individual experiences, multiple opinions, and strong feelings in the face of researchers' limitations, deadlines, and agendas. Yet, little work examines how these potential tensions occur and are resolved in actual advisory board meetings. This perspective article describes and employs a communication framework for analyzing a patient advisory council (PAC) for a comparative effectiveness study on acupuncture and pain counseling for inpatients with cancer. The framework, Action-Implicative Discourse Analysis (AIDA), is an observational method that examines challenges through recorded and transcribed, naturally occurring interaction. Our analysis focused on two short excerpts from the first PAC meeting to demonstrate members' navigation of advice-giving and advice-receiving-one in which advice was ultimately implemented by the study team and another in which it was deemed unfeasible. Although advice is inherent to the work of all PACs, it often emerges unannounced as negotiated moments, made up of seemingly minor conversation moves. As a recurring event, advice can and should be analyzed and discussed within PACs to improve communication and team dynamics.
© 2021. Society of General Internal Medicine.

Entities:  

Keywords:  acupuncture; cancer; implementation; inpatient; pain; pragmatic effectiveness

Mesh:

Year:  2021        PMID: 34591265      PMCID: PMC8993984          DOI: 10.1007/s11606-021-07062-3

Source DB:  PubMed          Journal:  J Gen Intern Med        ISSN: 0884-8734            Impact factor:   6.473


  9 in total

Review 1.  Evaluating patient and stakeholder engagement in research: moving from theory to practice.

Authors:  Laura Esmail; Emily Moore; Alison Rein
Journal:  J Comp Eff Res       Date:  2015-03       Impact factor: 1.744

2.  "How Can We Talk about Patient-centered Care without Patients at the Table?" Lessons Learned from Patient Advisory Councils.

Authors:  Anjana E Sharma; Rachel Willard-Grace; Andrew Willis; Olivia Zieve; Kate Dubé; Charla Parker; Michael B Potter
Journal:  J Am Board Fam Med       Date:  2016-11-12       Impact factor: 2.657

3.  Patient, Family, and Community Advisory Councils in Health Care and Research: a Systematic Review.

Authors:  Benjamin J Oldfield; Marcus A Harrison; Inginia Genao; Ann T Greene; Mary Ellen Pappas; Janis G Glover; Marjorie S Rosenthal
Journal:  J Gen Intern Med       Date:  2018-07-26       Impact factor: 5.128

4.  Using Patient Advisory Boards to Solicit Input Into Clinical Trial Design and Execution.

Authors:  Annick Anderson; Jasmine Benger; Ken Getz
Journal:  Clin Ther       Date:  2019-07-12       Impact factor: 3.393

5.  The PCORI Engagement Rubric: Promising Practices for Partnering in Research.

Authors:  Susan Sheridan; Suzanne Schrandt; Laura Forsythe; Tandrea S Hilliard; Kathryn A Paez
Journal:  Ann Fam Med       Date:  2017-03       Impact factor: 5.166

6.  The physical examination in cosmetic surgery: communication strategies to promote the desirability of surgery.

Authors:  Julien C Mirivel
Journal:  Health Commun       Date:  2008 Mar-Apr

Review 7.  A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research.

Authors:  Thomas W Concannon; Melissa Fuster; Tully Saunders; Kamal Patel; John B Wong; Laurel K Leslie; Joseph Lau
Journal:  J Gen Intern Med       Date:  2014-06-04       Impact factor: 5.128

8.  Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute.

Authors:  Lori Frank; Laura Forsythe; Lauren Ellis; Suzanne Schrandt; Sue Sheridan; Jason Gerson; Kristen Konopka; Sarah Daugherty
Journal:  Qual Life Res       Date:  2015-01-06       Impact factor: 4.147

9.  Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned.

Authors:  Laura P Forsythe; Lauren E Ellis; Lauren Edmundson; Raj Sabharwal; Alison Rein; Kristen Konopka; Lori Frank
Journal:  J Gen Intern Med       Date:  2015-07-10       Impact factor: 5.128

  9 in total
  1 in total

1.  Patient and Veteran Engagement in Health Research: the Emergence of a Field of Study.

Authors:  Susan L Zickmund; Dominick L Frosch; Kristin L Carman
Journal:  J Gen Intern Med       Date:  2022-04       Impact factor: 6.473

  1 in total

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