Literature DB >> 31307831

Using Patient Advisory Boards to Solicit Input Into Clinical Trial Design and Execution.

Annick Anderson1, Jasmine Benger2, Ken Getz2.   

Abstract

Academic institutions, pharmaceutical and biotechnology companies, foundations, and associations are routinely implementing patient advisory boards (PABs) to solicit patients' voices and perspectives on a variety of clinical research-related areas, including protocol design, clinical trial execution, informed-consent form design, clinical trial medicine kit design, wearable devices and mobile technologies, and patient-communication materials. Based on experience conducting >50 PABs during the past several years, the authors provide insights into how to best plan and execute PABs and their value in informing improvement in patient engagement.
Copyright © 2019 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  patient advisory boards; patient centricity patient engagement; voice of the caregiver; voice of the patient

Year:  2019        PMID: 31307831     DOI: 10.1016/j.clinthera.2019.06.006

Source DB:  PubMed          Journal:  Clin Ther        ISSN: 0149-2918            Impact factor:   3.393


  5 in total

1.  Input of Patients for New Diabetes Technology Products.

Authors:  Lutz Heinemann; David C Klonoff
Journal:  J Diabetes Sci Technol       Date:  2021-08-12

2.  A Communication Perspective on What Patient Advisory Boards Do: Action-Implicative Discourse Analysis and Negotiating Advice.

Authors:  Evelyn Y Ho; Robert R Agne; Trilce Santana; Nicole Thompson; Genevieve McClendon; Eliza Ng; Shannette Merrick; Felicia Gonzalez; Tenaya Smith; Kathleen Drewke; Amalia Gutierrez; Gary Floyd; Maria T Chao
Journal:  J Gen Intern Med       Date:  2021-09-30       Impact factor: 6.473

3.  Understanding Patient Perspectives of the Impact of Anemia in Chronic Kidney Disease: A United States Patient Survey.

Authors:  Susan Grandy; Eirini Palaka; Nicolas Guzman; Alicia Dunn; Eric T Wittbrodt; Fredric O Finkelstein
Journal:  J Patient Exp       Date:  2022-04-07

Review 4.  Lessons learned from recruiting into a longitudinal remote measurement study in major depressive disorder.

Authors:  Carolin Oetzmann; Katie M White; Alina Ivan; Jessica Julie; Daniel Leightley; Grace Lavelle; Femke Lamers; Sara Siddi; Peter Annas; Sara Arranz Garcia; Josep Maria Haro; David C Mohr; Brenda W J H Penninx; Sara K Simblett; Til Wykes; Vaibhav A Narayan; Matthew Hotopf; Faith Matcham
Journal:  NPJ Digit Med       Date:  2022-09-03

5.  Characteristics, Symptom Severity, and Experiences of Patients Reporting Chronic Kidney Disease in the PatientsLikeMe Online Health Community: Retrospective and Qualitative Study.

Authors:  Glen James; Elisabeth Nyman; Marcy Fitz-Randolph; Anna Niklasson; Katarina Hedman; Jonatan Hedberg; Eric T Wittbrodt; Jennie Medin; Carol Moreno Quinn; Alaster M Allum; Cathy Emmas
Journal:  J Med Internet Res       Date:  2020-07-15       Impact factor: 5.428

  5 in total

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