Literature DB >> 25825842

Evaluating patient and stakeholder engagement in research: moving from theory to practice.

Laura Esmail1, Emily Moore, Alison Rein.   

Abstract

Despite the growing demand for research that engages stakeholders, there is limited evidence in the literature to demonstrate its value - or return on investment. This gap indicates a general lack of evaluation of engagement activities. To adequately inform engagement activities, we need to further investigate the dividends of engaged research, and how to evaluate these effects. This paper synthesizes the literature on hypothesized impacts of engagement, shares what has been evaluated and identifies steps needed to reduce the gap between engagement's promises and the underlying evidence supporting its practice. This assessment provides explicit guidance for better alignment of engagement's promised benefits with evaluation efforts and identifies specific areas for development of evaluative measures and better reporting processes.

Entities:  

Keywords:  PCOR; comparative effectiveness research; evaluation; patient engagement; patient-centered outcomes research; review; stakeholder engagement

Mesh:

Year:  2015        PMID: 25825842     DOI: 10.2217/cer.14.79

Source DB:  PubMed          Journal:  J Comp Eff Res        ISSN: 2042-6305            Impact factor:   1.744


  131 in total

Review 1.  Framework for Advancing the Reporting of Patient Engagement in Rheumatology Research Projects.

Authors:  Clayon B Hamilton; Jenny C Leese; Alison M Hoens; Linda C Li
Journal:  Curr Rheumatol Rep       Date:  2017-07       Impact factor: 4.592

Review 2.  Interdisciplinary team science and the public: Steps toward a participatory team science.

Authors:  Jacob Kraemer Tebes; Nghi D Thai
Journal:  Am Psychol       Date:  2018 May-Jun

3.  Querying stakeholders to inform comparative effectiveness research.

Authors:  Yoon Duk Hong; Daisuke Goto; C Daniel Mullins
Journal:  J Comp Eff Res       Date:  2017-05-09       Impact factor: 1.744

4.  Strengthening stakeholder-engaged research and research on stakeholder engagement.

Authors:  Kristin N Ray; Elizabeth Miller
Journal:  J Comp Eff Res       Date:  2017-06-16       Impact factor: 1.744

5.  Patient engagement in a trial testing a new strategy of care for acute heart failure.

Authors:  Douglas S Lee; Robert Armstrong; Shanas Mohamed
Journal:  CMAJ       Date:  2018-11-07       Impact factor: 8.262

6.  Practical Guidance for Involving Stakeholders in Health Research.

Authors:  Thomas W Concannon; Sean Grant; Vivian Welch; Jennifer Petkovic; Joseph Selby; Sally Crowe; Anneliese Synnot; Regina Greer-Smith; Evan Mayo-Wilson; Ellen Tambor; Peter Tugwell
Journal:  J Gen Intern Med       Date:  2018-12-18       Impact factor: 5.128

7.  The top research questions asked by people with lived depression experience in Alberta: a survey.

Authors:  Lorraine J Breault; Katherine Rittenbach; Kelly Hartle; Robbie Babins-Wagner; Catherine de Beaudrap; Yamile Jasaui; Emily Ardell; Scot E Purdon; Ashton Michael; Ginger Sullivan; Aakai'naimsskai'piiaakii Sharon Ryder Unger; Lorin Vandall-Walker; Brad Necyk; Kiara Krawec; Elizabeth Manafò; Ping Mason-Lai
Journal:  CMAJ Open       Date:  2018-09-28

8.  PaTH to partnership in stakeholder-engaged research: A framework for stakeholder engagement in the PaTH to Health Diabetes study.

Authors:  Jennifer M Poger; Hsin-Chieh Yeh; Cindy L Bryce; Jennifer K Carroll; Lan Kong; Erica B Francis; Jennifer L Kraschnewski
Journal:  Healthc (Amst)       Date:  2019-05-14

9.  Developing a model of a patient-group pathway to accessing cancer clinical trials in Canada.

Authors:  G Batist; S Michaud; D P Richards; F Servidio-Italiano; B D Stein
Journal:  Curr Oncol       Date:  2018-12-01       Impact factor: 3.677

10.  Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research.

Authors:  James D Harrison; Wendy G Anderson; Maureen Fagan; Edmondo Robinson; Jeffrey Schnipper; Gina Symczak; Catherine Hanson; Martha B Carnie; Jim Banta; Sherry Chen; Jonathan Duong; Celene Wong; Andrew D Auerbach
Journal:  Patient       Date:  2018-08       Impact factor: 3.883

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