Karly M Murphy1, Christina Sauer, Dershung Yang, Niina Hass, Kristian Novakovic, Brian Helfand, Robert Nadler, Benjamin D Schalet, David Victorson. 1. Author Affiliations: Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine (Drs Murphy, Schalet, and Victorson and Ms Sauer), Chicago; Bright Outcome (Dr Yang and Ms Hass), Buffalo Grove; Division of Urology, NorthShore University Health System (Drs Novakovic and Helfand), Evanston; and Department of Urology, Northwestern University Feinberg School of Medicine (Dr Nadler), Chicago, Illinois; and Department of Social Sciences and Health Policy, Wake Forest School of Medicine (Dr Murphy), Winston Salem, North Carolina.
Abstract
BACKGROUND: Prostate cancer (PC) often impacts 4 major aspects of health-related quality of life (HRQL): urinary, sexual, and bowel dysfunction, and anxiety. Online tools may be helpful in supporting the development of self-management skills that can improve HRQL. OBJECTIVE: The aim of this study was to develop and pilot-test an online symptom monitoring and self-management program, iManage-PC. METHODS: A literature search, input from experts, and feedback from patients were used to develop iManage-PC. A 4-week, single-arm pilot study was conducted with 96 men with prostate cancer. We evaluated system usability, acceptance, and satisfaction and examined preliminary effects on patient-reported outcomes. RESULTS: Rates of retention (94.8%) and adherence to symptom monitoring (95.0%-97.0%) were high. Most participants rated the tool as satisfactory and acceptable (81.2%-94.3%). Related-samples Wilcoxon signed rank tests revealed that participants reported increased self-efficacy related to their ability to manage their adverse effects (T = 1772.0, P < .001, r = 0.39), physical discomfort (T = 1259.0, P < .001, r = 0.40), and stress and worry (T = 1108.5, P = .001, r = 0.34). Global mental and physical health also improved (T = 1322.0, P = .032, r = 0.23, and T = 1409.0, P = .001, r = 0.35, respectively). CONCLUSIONS: Future research with such tools should examine the potential role of cut-score-derived management interventions to improve engagement, symptom management self-efficacy, and HRQL. IMPLICATIONS FOR PRACTICE: Our findings are consistent with a growing body of literature that supports the feasibility and acceptability of remotely delivered interventions.
BACKGROUND: Prostate cancer (PC) often impacts 4 major aspects of health-related quality of life (HRQL): urinary, sexual, and bowel dysfunction, and anxiety. Online tools may be helpful in supporting the development of self-management skills that can improve HRQL. OBJECTIVE: The aim of this study was to develop and pilot-test an online symptom monitoring and self-management program, iManage-PC. METHODS: A literature search, input from experts, and feedback from patients were used to develop iManage-PC. A 4-week, single-arm pilot study was conducted with 96 men with prostate cancer. We evaluated system usability, acceptance, and satisfaction and examined preliminary effects on patient-reported outcomes. RESULTS: Rates of retention (94.8%) and adherence to symptom monitoring (95.0%-97.0%) were high. Most participants rated the tool as satisfactory and acceptable (81.2%-94.3%). Related-samples Wilcoxon signed rank tests revealed that participants reported increased self-efficacy related to their ability to manage their adverse effects (T = 1772.0, P < .001, r = 0.39), physical discomfort (T = 1259.0, P < .001, r = 0.40), and stress and worry (T = 1108.5, P = .001, r = 0.34). Global mental and physical health also improved (T = 1322.0, P = .032, r = 0.23, and T = 1409.0, P = .001, r = 0.35, respectively). CONCLUSIONS: Future research with such tools should examine the potential role of cut-score-derived management interventions to improve engagement, symptom management self-efficacy, and HRQL. IMPLICATIONS FOR PRACTICE: Our findings are consistent with a growing body of literature that supports the feasibility and acceptability of remotely delivered interventions.
Authors: Kathryn E Flynn; Mary Amanda Dew; Li Lin; Maria Fawzy; Felicia L Graham; Elizabeth A Hahn; Ron D Hays; Robert L Kormos; Honghu Liu; Mary McNulty; Kevin P Weinfurt Journal: Qual Life Res Date: 2015-06-03 Impact factor: 4.147
Authors: David E Victorson; Stephanie Schuette; Benjamin D Schalet; Shilajit D Kundu; Brian T Helfand; Kristian Novakovic; Nathaniel Sufrin; Michael McGuire; Charles Brendler Journal: J Urol Date: 2016-05-31 Impact factor: 7.450
Authors: Camille E Short; Ann DeSmet; Catherine Woods; Susan L Williams; Carol Maher; Anouk Middelweerd; Andre Matthias Müller; Petra A Wark; Corneel Vandelanotte; Louise Poppe; Melanie D Hingle; Rik Crutzen Journal: J Med Internet Res Date: 2018-11-16 Impact factor: 5.428