Kay Sundberg1, Ann Langius Eklöf2, Karin Blomberg3, Ann-Kristin Isaksson3, Yvonne Wengström3. 1. Department of NVS, Division of Nursing, Karolinska Institutet, Stockholm, Sweden. Electronic address: kay.sundberg@ki.se. 2. Department of NVS, Division of Nursing, Karolinska Institutet, Stockholm, Sweden. 3. School of Health and Medical Sciences, Örebro University, Örebro, Sweden.
Abstract
PURPOSE: The aim of this study was to test the feasibility and acceptability of an Information and Communication Technology platform for assessing and managing patient reported symptoms during radiotherapy for prostate cancer. METHODS: In cooperation with a health management company, using a patient experience co-design, we developed the platform operated by an interactive application for reporting and managing symptoms in real time. Nine patients diagnosed with prostate cancer and receiving radiotherapy were recruited from two university hospitals in Sweden. Evidence-based symptoms and related self-care advice specific to prostate cancer were implemented in the application based on a literature review and interviews with patients and health care professionals. In the test of the platform the patients reported symptoms, via a mobile phone, daily for two weeks and were afterwards interviewed about their experiences. RESULTS: Overall, the patients found the symptom questionnaire and the self-care advice relevant and the application user friendly. The alert system was activated on several occasions when the symptoms were severe leading to a nurse contact and support so the patients felt safe and well cared for. CONCLUSIONS: The platform enabled increased patient involvement and facilitated symptom assessment and communication between the patient and the health care provider. The study's results support further development of the platform, as well as tests in full-scale studies and in other populations.
PURPOSE: The aim of this study was to test the feasibility and acceptability of an Information and Communication Technology platform for assessing and managing patient reported symptoms during radiotherapy for prostate cancer. METHODS: In cooperation with a health management company, using a patient experience co-design, we developed the platform operated by an interactive application for reporting and managing symptoms in real time. Nine patients diagnosed with prostate cancer and receiving radiotherapy were recruited from two university hospitals in Sweden. Evidence-based symptoms and related self-care advice specific to prostate cancer were implemented in the application based on a literature review and interviews with patients and health care professionals. In the test of the platform the patients reported symptoms, via a mobile phone, daily for two weeks and were afterwards interviewed about their experiences. RESULTS: Overall, the patients found the symptom questionnaire and the self-care advice relevant and the application user friendly. The alert system was activated on several occasions when the symptoms were severe leading to a nurse contact and support so the patients felt safe and well cared for. CONCLUSIONS: The platform enabled increased patient involvement and facilitated symptom assessment and communication between the patient and the health care provider. The study's results support further development of the platform, as well as tests in full-scale studies and in other populations.
Authors: Karly M Murphy; Christina Sauer; Dershung Yang; Niina Hass; Kristian Novakovic; Brian Helfand; Robert Nadler; Benjamin D Schalet; David Victorson Journal: Cancer Nurs Date: 2022 Jan-Feb 01 Impact factor: 2.592
Authors: Ann Langius-Eklöf; Mats Christiansen; Veronica Lindström; Karin Blomberg; Maria Hälleberg Nyman; Yvonne Wengström; Kay Sundberg Journal: JMIR Cancer Date: 2017-10-31
Authors: Maria Hälleberg Nyman; Catharina Frank; Ann Langius-Eklöf; Karin Blomberg; Kay Sundberg; Yvonne Wengström Journal: JMIR Mhealth Uhealth Date: 2017-07-26 Impact factor: 4.773
Authors: Kay Sundberg; Yvonne Wengström; Karin Blomberg; Maria Hälleberg-Nyman; Catharina Frank; Ann Langius-Eklöf Journal: Support Care Cancer Date: 2017-02-24 Impact factor: 3.603
Authors: Lindsay A Jibb; Bonnie J Stevens; Paul C Nathan; Emily Seto; Joseph A Cafazzo; Donna L Johnston; Vanessa Hum; Jennifer N Stinson Journal: JMIR Mhealth Uhealth Date: 2018-04-06 Impact factor: 4.773
Authors: Lorraine Warrington; Kate Absolom; Mark Conner; Ian Kellar; Beverly Clayton; Michael Ayres; Galina Velikova Journal: J Med Internet Res Date: 2019-01-24 Impact factor: 5.428
Authors: Ann Langius-Eklöf; Marie-Therése Crafoord; Mats Christiansen; Maria Fjell; Kay Sundberg Journal: BMC Cancer Date: 2017-07-04 Impact factor: 4.430
Authors: Dongxiao Gu; Xuejie Yang; Xingguo Li; Hemant K Jain; Changyong Liang Journal: Int J Environ Res Public Health Date: 2018-09-10 Impact factor: 3.390