| Literature DB >> 33792428 |
Bruce Leff1,2, Orla C Sheehan1, Krista L Harrison3, Ashley Eaton England4, Alex Mickler5, Pragyashree Sharma Basyal1, Sarah K Garrigues3, Mattan Schuchman1, Carla Perissinotto3, Sarah B Garrett3, Christine S Ritchie6.
Abstract
Homebound older adults have not had a voice in establishing a research agenda relevant to their needs and perspectives. We engaged homebound older adults receiving home-based primary care and caregivers to serve as stakeholder advisors to develop a patient- and caregiver-centered research agenda for home-based care. Over 9 months, we facilitated eight tablet-enabled videoconference meetings. We oriented advisors to patient-centered outcome research and research question development. Advisors developed and prioritized a list of 14 research domains and 127 associated research questions. The top three prioritized research domains in descending rank order (number of associated research questions) were out-of-pocket costs of caregiving (10), access to home-based care and related policy issues (19), and relationship with doctors (15). This research agenda can guide researchers' efforts to focus on areas of importance to the ultimate end users of their research.Entities:
Keywords: health outcomes; home care; home-based primary care; patient-centered outcomes research; person-centered care; research agenda
Mesh：
Year: 2021 PMID： 33792428 PMCID： PMC8604613 DOI： 10.1177/07334648211004731
Source DB: PubMed Journal: J Appl Gerontol ISSN： 0733-4648